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On The Move edition 2 - 2015
www.arthritissa.org.au
Achilles tendinitis, Achondroplasia, Acromegalic arthropathy, Adhesive capsulitis, Adult onset Still’s disease, Amyloidosis, Ankylosing spondylitis, Anserine bursitis, Avascular necrosis Behcet’s syndrome, Bicipital tendinitis, Blount’s disease, Brucellar spondylitis, Bursitis Calcaneal bursitis, Calcium pyrophosphate dihydrate (CPPD), crystal deposition disease, Caplan’s syndrome, Carpal tunnel syndrome, Chondrocalcinosis, Chondromalacia patellae, Chronic synovitis, Chronic recurrent multifocal osteomyelitis, Churg-Strauss syndrome, Cogan’s syndrome, Corticosteroid-induced osteoporosis, Costosternal syndrome, CREST syndrome, Cryoglobulinemia Degenerative joint disease, Dermatomyositis, Diabetic finger sclerosis, Diffuse idiopathic skeletal hyperostosis (DISH), Discitis, Discoid lupus erythematosus, Drug-induced lupus, Duchenne’s muscular dystrophy, Dupuytren’s contracture Ehlers-Danlos syndrome, Enteropathic arthritis, Epicondylitis, Erosive inflammatory osteoarthritis, Exercise-induced compartment syndrome Fabry’s disease, Familial Mediterranean fever, Farber’s lipogranulomatosis, Felty’s syndrome, Fibromyalgia, Fifth’s disease, Flat feet, Foreign body synovitis, Freiberg’s disease, Fungal arthritis Gaucher’s disease, Giant cell arteritis, Gonococcal arthritis, Goodpasture’s syndrome,
Gout, Granulomatous arteritis Hemarthrosis, Hemochromatosis, Henoch-Schonlein purpura, Hepatitis B surface antigen disease, Hip dysplasia, HIV induced inflammatory arthritis, Hurler syndrome, Hypermobility syndrome, Hypersensitvity vasculitis, Hypertrophic osteoarthropathy Immune complex disease, Impingement syndrome Jaccoud’s arthropathy, Juvenile ankylosing spondylitis, Juvenile dermatomyositis, Juvenile rheumatoid arthritis Kawasaki disease, Kienbock’s disease Legg-Calve-Perthes disease, Lesch-Nyhan syndrome, Linear scleroderma, Lipoid dermatoarthritis, Lofgren’s syndrome, Lyme disease Malignant synovioma, Marfan’s syndrome, Medial plica syndrome, Metastatic carcinomatous arthritis, Mixed connective tissue disease (MCTD), Mixed cryoglobulinemia, Mucopolysaccharidosis, Multicentric reticulohistiocytosis, Multiple epiphyseal dysplasia, Mycoplasmal arthritis, Myofascial pain syndrome Neonatal lupus, Neuropathic arthropathy, Nodular panniculitis Ochronosis, Olecranon bursitis, Osgood-Schlatter’s disease, Osteoarthritis, Osteochondromatosis, Osteogenesis imperfecta, Osteomalacia, Osteomyelitis, Osteonecrosis, Osteoporosis, Overlap syndrome Pachydermoperiostosis, Paget’s disease of bone, Palindromic rheumatism, Patellofemoral pain syndrome, Pellegrini-Stieda syndrome, Pigmented villonodular synovitis, Piriformis syndrome, Plantar fasciitis, Polyarteritis nodosa, Polymyalgia rheumatica, Polymyositis, Popliteal cysts, Posterior tibial tendinitis, Pott’s disease, Prepatellar bursitis, Prosthetic joint infection, Pseudoxanthoma elasticum, Psoriatic arthritis Raynaud’s phenomenon, Reactive arthritis/Reiter’s syndrome, Reflex sympathetic dystrophy syndrome, Relapsing polychondritis, Retrocalcaneal bursitis, Rheumatic fever, Rheumatoid arthritis, Rheumatoid vasculitis, Rotator cuff tendinitis Sacroiliitis, Salmonella osteomyelitis, Sarcoidosis, Saturnine gout, Scheuermann’s osteochondritis, Scleroderma, Septic arthritis, Seronegative arthritis, Shigella arthritis, Shoulder-hand syndrome, Sickle cell arthropathy, Sjogren’s syndrome, Slipped capital femoral epiphysis, Spinal stenosis, Spondylolysis, Staphylococcus arthritis, Stickler syndrome, Subacute cutaneous lupus, Sweet’s syndrome, Sydenham’s chorea, Syphilitic arthritis, Systemic lupus erythematosus (SLE) Takayasu’s arteritis, Tarsal tunnel syndrome Tennis elbow, Tietse’s syndrome, Transient osteoporosis, Traumatic arthritis, Trochanteric bursitis, Tuberculosis arthritis Arthritis of Ulcerative colitis, Undifferentiated connective tissue syndrome (UCTS), Urticarial vasculitis Viral arthritis Wegener’s granulomatosis, Whipple’s disease, Wilson’s disease, Yersinial arthritis - Arthritis and associated muscular-skeletal conditions.
Celebrating 40 years
COnTenTs edition 2 2015
8 FEATURE arThriTis sa CelebraTes 40Th anniversary
4 Ceo’s Update
5 president’s report
6 40 years of memories
10 Walk for arthritis
12 neW fUndraisers
13 parliamentary breakfast
14 kidsflix
15 neW Zealand trek 2016
special thanks to Gail Fursenko and Kay hamilton for photographing our Walk for arthritis, 40th Morning Tea and Parliamentary breakfast.
arthritis Foundation of south australia inc.incorporating Osteoporosis sa,118 richmond road, Marleston sa 5033
Telephone: (08) 8379 5711Country Free Call: 1800 011 041 Fax: (08) 8379 5707email: [email protected]: www.arthritissa.org.auabn: 53 784 654 861
editor Julie black Telephone: (08) 8379 5711 email: [email protected]
advertising enquiries Telephone: (08) 8379 5711 email: [email protected] Celdesigns Telephone: 0412 824 463 email: [email protected]
Published June 2015
DisClaiMer: views expressed by contributors to On The Move, and advertisements appearing in the publication, are not necessarily endorsed by the arthritis Foundation of south australia.
Vision statement
“To improve the quality of life of people with arthritis and related conditions.”
mission statement
“To be recognised as the leading provider in sa that empowers people with arthritis and related conditions. To achieve the best quality of life through advocacy, education, self-management and the support of research.”
aims
•toprovidefundsforresearchprogramsinordertofindacureandbettertreatments.
•togivepracticaladviceandsupportto people with arthritis and other musculoskeletal conditions and their carers.
•toorganiseeducationprogramsforpeople affected by arthritis and other musculoskeletal conditions, their families and carers, health professionals and awareness in the wider community.
Valued donationsarthritis sa values your donations to help provide services and support to the many thousands of south australians who suffer from musculoskeletal conditions. Donations can be made by telephone on (08) 8379 5711 or Country Freecall 1800 011 041. alternatively, secure online donations can be made at www.arthritissa.org.au
3
2015 Take Charge courses cost $30 and for arthritis sa members the courses are Free.To book into any of the courses you may do so at www.arthritissa.org.au or phone 8379 5711.For further information on the courses email [email protected] or call 8379 5711.
take Charge of pain coursesTwo 2.5 hour interactive workshops that will provide you with the strategies to deal with pain. learn more about the causes and treatments for pain, medications, complementary therapies, and what to do when medication does not work.
part 1: friday 3rd July - part 2: friday 10th July10am-12:30 pmst David’s anglican Church, Parish hall484-496 Glynburn rd, burnside, sa 5066
part 1: tuesday 14th July - part 2: tuesday 21st July10am-12.30pmarthritis sa, 118 richmond road, Marleston, sa 5033
part 1: tue 11th august part 2: tue 18th august 1.30pm-4pmarthritis sa, 118 richmond road, Marleston, sa 5033
part 1: thur 20th august part 2: thur 27th august 2pm-4:30pm Unley Community Centre, 18 arthur street, Unley, sa 5061 For bookings: Call Unley CC on 08 83725401
part 1: tue 15th sept part 2: tues 22nd sept 10am-12.30pmarthritis sa, 118 richmond road, Marleston, sa 5033
part 1: mon 12th oct part 2: mon 19th oct 1.30pm-4pmarthritis sa, 118 richmond road, Marleston, sa 5033
taking Charge of arthritis Courses1dayxfivehourinteractiveworkshopthatwillcoverosteoarthritisorinflammatoryarthritis.Learnaboutcausesand treatments for your arthritis, including medications, current research, joint surgery and lifestyle issues.
osteoarthritis Wednesday 5th august 10am-4pmarthritis sa, 118 richmond road, Marleston, sa 5033
Inflammatory arthritis, including rheumatoid arthritis and often painful gouttuesday 8th september 10am-4pmarthritis sa, 118 richmond road, Marleston, sa 5033
osteoarthritisWednesday 7th october 10am-4pm arthritis sa, 118 richmond road, Marleston, sa 5033
Consumer information seminars COsT $10 ($5 concession, Free to members of arthritis sa)
living with fibromyalgiasunday 28th June2-3.30pmlearn about Fibromyalgia and how to live with your condition and improve your quality of life.arthritis sa CeO Julie black
osteoarthritisWednesday 29th July7- 8.30pm Osteoarthritis is the most common type of arthritis. learn new strategies to manage pain and increase mobility. Discover more about joint replacement and its effect on your quality of life.Dr simon burnett FraCP
arthritis and physical activity thursday 20th august1.30-3pmis physical activity good for arthritis? What types of exercise should i do and how much? learn about your choices in keeping active with arthritis.amanda Foley-Gooding - accredited exercise Physiologist
fibromyalgia - dealing with fatiguesunday 13th september2-3.30pm are you always tired? Does fatigue interfere with your life? Gain a better understanding of understanding Fibromyalgia and fatigue and what you can do to cope with ongoing tiredness.Dr sam Whittle FraCP
back painWednesday 21st october 7-8.30pm Do you have back pain? is it affecting your life choices? learn how to manage your back pain from our expert speaker.James schomburgk – Physiotherapist
living at home with arthritisWednesday 18th november 2-3.30pm learn how you can manage at home when living with arthritis and hear from the independent living Centre on what is available to help you.Occupational Therapist - independent living Centre a better life.
2015 evenTs & haPPeninGs
We’ve gone from strength to strength with your supporti was very humbled to be part of arthritis sa’s 40th birthday celebrations as the arthritis Foundation of south australia’s eighth president. it was wonderful to see many of the past presidents and board members, life members and CeOs, as well as our amazing supporters and volunteers, attending a function at Pavilion on the Park, in april, to mark and celebrate the milestone. arthritis sa has had many achievements over the past 40 years and staff captured these on story boards that were on display at the event. They are now on display at arthritis house and i invite you to call in and view them.
The arthritis Foundation of south australia was established in 1975 in response to a community need for the development of adequate services for people with arthritis. These included medical assistance, support, education andresearchtobetteranddiscovernewtreatmentsandfindacure.Overthelast 40 years, under the direction of very capable board members, we have never lost sight of why we were established.
Wehaveseenatotalofsevenmovestodifferentofficesandtheimplementation of many exciting programs aimed at bettering our commitment to people with arthritis in south australia.
We are indebted to the resilience of the founding members of arthritis sa who were determined that the organisation would grow and survive. interestingly enough, the focus at that time was on arthritis in women and howarthritisinthehandcouldhaveasignificantimpactonfamilylife.There was a thought that this was caused by the hand wringing of washing. it was not until electric washing machines came into use that this had to be reconsidered.
During the 1980s, we saw the development and growth of support groups and education sessions to the public. arthritis sa became part of Telethon - thestartofalengthyassociation-andthefirstbequestwasreceived.
The funding of research was as important in the beginning as it is now. Thesamecanbesaidofcommunication.Thefirstdirectmailappealwasintroduced along with the Grandmother of the year event to raise money for research.TheGrandmotheroftheYearraised$93,000inthefirstyear.Thiswent on to be known as the Grandparent of the year event.
arthritis sa now supports research to the value of $250,000 each year. This includes funding national research, local research and more recently, a
Colette smithPresident
PresiDenT’s rePOrT
arthritis and its impact on south australiaarthritis sa is committed to better educating consumers, providing programs to support people to stay in their jobs and live independently. We also continue to raise awareness of arthritis through health promotion and primary prevention strategies.
as part of arthritis Week, a “parliamentary breakfast” was held to highlight the impact of arthritis in south australia. With 17 politicians among the 92 people attending, this was a real chance to educate the audience on many aspects of the work of arthritis sa and share many achievements. in particular, the highlight of the event was hearing from an arthritis sufferer, Jill Kennedy, and Melanie, the mother of young arthritis sufferer lucy. Melanie’s contribution was poignant and especially valuable given the focus of arthritis Week was arthritis and children.
arthritis knows no barriers. There are between 600 and 700 children suffering from juvenile idiopathic arthritis (Jia) in south australia and only one paediatric rheumatologist. Children newly-diagnosed with arthritis can wait many months to be seen in the Women’s and Children’s hospital (WCh) rheumatology Clinic. according to the national health & Medical research Council guidelines and recently published Jia standards of care, children newly diagnosed with Jia should be seen within one month. imagine what it would be like as a parent to see your baby or child in pain and suffering, and having to wait months because there is no other avenue to receive a specialist’s diagnosis and care.
Due to current funding models at WCh and budget constraints, the employment of another paid rheumatologist is not possible. arthritis sa’s board members have therefore agreed that arthritis sa will fund the employment of a paediatric rheumatology nurse. This role will provide education and support for children and parents. it will also include a nurse led telephone help line to provide rapid access to advice and reduce delays inaccesstotreatment.Thisprojectwillcostover$100,000inthefirstyearbut we believe it’s worth every cent. arthritis sa is committed to providing evidence based research that will demonstrate the value of such a role in the future to the government.
arthritis sa also held an education night for general practitioners and pharmacists as a part of its arthritis Week activities. This provided an excellent opportunity to update those who attended about new trends and treatments for children with arthritis.
Central to these and our other activities was the release of a new document entitled The impact of arthritis on south australia 2015. The effects of arthritis cannot be underestimated and with one in four south australians suffering from this condition arthritis sa is determined to continue its important work. Through research, education and advocacy, our determination to help improve the quality of life of south australians suffering from the many types of arthritis continues to gain strength.
you too can help us on our determined path by making a donation today to support our ongoing work.
Julie blackCeO
CeO’s rePOrT
President of Arthritis SA, Colette smith and adrian pederick mp member for hammond at parliamentary breakfast
The impacT of
arThriTis on
souTh ausTralia 2015
Parliamentary Breakfast Impact.indd 1 10/03/2015 9:31 am
past presidents and Ceo’s of arthritis sa cut the 40th anniversary cake
4 5On The Move | Winter 2015 On The Move | Winter 2015
FeaTUre PresiDenT’s rePOrT (COnT.)
paediatric rheumatology nurse who will be based at the adelaide Women’s and Children’s hospital.
in the foundation’s formative days, camps were introduced for children with arthritis and the move to anZaC highway saw the establishment of self-help courses,growthinsupportgroupsandthefirstadvicecalls taken.
The growth in education programs continued at the anZaC highway premises and with the establishment ofaContactCentreandtheintroductionofKidsflixin1998,theFoundation’sfinancialpositionbegantostabilise.
KidsflixeventsnowruninallAustralianstates.Morethan 10,000 children and their carers attended the 30 events last year. Our Contact Centre, which supports Kidsflix,nowraisesover70percentoftheincomeforthe Foundation.
volunteer educators and speakers, as well as administration volunteers, supported the Foundation strongly throughout its formative years. i was delighted to see so many attend our 40th anniversary event. The cost savings from this work have been invaluable.
it cannot be over-stated and i personally thank each volunteer who has been involved with arthritis sa. They have not only made a difference to arthritis sa and its members, but to the lives of south australians who suffer from arthritis.
The future holds many challenges for arthritis sa as an ageing and increasingly obese population will see the number of people with arthritis double by 2050. Unless we take steps now to reduce the impact of arthritis, the associated costs could overwhelm the health system.
arthritis sa will continue to support and advocate on behalf of all people with arthritis and to work with government, health professionals and other stakeholders to alleviate the burden of this debilitating condition. in particular, support for research and improving the lives of children with arthritis are key priority areas. We are extremely grateful to each and every person who has supported us throughout our 40 years and look forward to continuing this great work in the future.
i greatly enjoyed returning for the 40th birthday celebrations, meeting so many old friends and seeing the organisation continuing to thrive and
help so many in the community.
some of the key highlights of my 16 years as CeO of arthritis sa include establishing the Juvenile arthritis Program with an initial grant from the state Government, setting up Osteoporosis australia with a grant from the Commonwealth Government, re-stablishing the Telephone support service and the difference made to so many peoples’ lives by arthritis. later, there was the Chronic Conditions, self-Management program.
We also established a bequest program and continued to receive many generous bequests which enabled arthritis sa to fund generous research grants and to move from an old house on anZaC highway with six staff to Glen Osmond road, and later to the current
highprofilebuildingwithmorethan50staff.Themoves gave arthritis sa the opportunity to establish atelemarketingcentreandtheKidsflixprogram,providing entertainment for many children and their families, and a steady income to support arthritis sa and other charities.
i will always remember the many passionate volunteers, including the board members, who freely gave their time to help others and to help arthritis sa, and the many wonderful staff who gave up their free timetovolunteerateducationseminarsandKidsflixevents.
Gillian leachexecutive director & Ceo 1992 - 2009
milestones created Gillian’s passiOn
ijoined the board in October 2001 following an invitation by the then President Graham inns. i was impressed by the professionalism of the
organisation and the enthusiasm and dedication of the staff and volunteers. This impression did not change throughout my 12 years association with the board.
InmyfirstyearasBoardmember,weputforwardaspecial resolution to members to reduce the board from 15 to nine members. This being accepted resulted in a far more cohesive working board which could focus on performance and develop strategies for the future.
Forme,financialsustainabilitywasalwaysaprerequisite to the long term sustainability of the organisation. in 2001, arthritis sa was well placed financiallyforasmallstate-basedcharitableorganisation, as it was then. in later years it grew significantlytobecomeamuchlargerbusiness.Muchof this growth resulted from strategies introduced by the board and management. however, we were aided significantlybythefinancialinputofmanygenerousbequests. We are indeed indebted to those wonderful people who left us a bequest in their will.
These bequests enabled us to grow and support a larger proportion of consumers in sa who had been diagnosed with some form of arthritis and increase our commitment to research. They also enabled us to relocate to our current building at Marleston and provide increased services.
Throughout my period on the board i was also very appreciative of the many regular donors who supported our appeals and all those who supported ourwonderfulKidsflixcampaigns.
i congratulate the board, staff members and volunteers on this 40th anniversary and wish everyone great success in the future.
david motteram oampresident 2002-2012
CEO Julie Black, Past President David Motteram and former Ceo Gillian leach
What a wonderful achievement – 40 years of service to people with arthritis in south australia. Congratulations to those
dedicated volunteers and their rheumatologists who had the foresight to form the organisation known as saara - south australian arthritis and rheumatism association - in 1975.
in my interview for the job as a part-time coordinator in 1979, i was told to do some fundraising so i could be paid. how could i refuse? The four-hourly job lastedthefirstday:thenitwasfulltime,andbecamemy hobby as well. One thing soon became apparent and that was the dire need for money for both research and to care for people with arthritis.
a few of my memories include: the regular well attended general meetings in north adelaide; changing our name to the arthritis Foundation - to simplifyournameandlogo;employingourfirsthealthprofessional; developing self-help courses; branch formation throughout the state; seminars conducted by eminent overseas specialists; former Premier Des Corcoran forming a fundraising committee of well-known people; the dedicated ladies vying for the Grandmother of the year titles; the wonderful
volunteers, and our committed staff and board members.
Ourgrowthinthefirstdecadecausedseveralquickmoves,finallygettingourfirstofficewithrunningwaterandourownloo,beforebuyingourfirsthomeon anzac highway.
it was a special part of my life, and i feel honoured to have been associated with such a progressive caring organisation.
neila foggo1979 – 1988 Coordinator, Executive Officer and executive director
neila foggo’s fOnd MeMOries
president Colette smith with former executive director and life member neila foggo
david remembers wiTh GraTiTude
6 7On The Move | Winter 2015 On The Move | Winter 2015
FeaTUre
supporters acknowledged at arthritis sa’s ruby celebrationThe incredible efforts for more than 100 of arthritis sa’s supporters were acknowledged at arthritis sa’s 40th anniversary celebration.
The celebration, a morning tea at Pavilion on the Park in the south Parklands, marked the humble beginnings of arthritis sa through to years of great growth, during which the charity has been able to provide substantial support and education to the south australian public, in addition to funding research projects on state and national levels.
among those who attended were many members of support groups – some coming from rural south australia. Former Chief executives, neila Foggo and Gillian leach were also there, as was former President, David Motteram OaM.
Three life Memberships were announced. One was for Marjorie hammond who has raised well over $20,000 for children with arthritis and another was for Fabrizio Porcaro, retiring as a member of the board of Directors after 10 years. The third was for Margaret hames for her commitment to the Western Osteoporosis support Group, all are pictured in the image top left.
Dr. rachel black was also presented with the joint ara/arthritis scholarship.
anniversary cakes served on the morning were made by a volunteer, Jenny Tymons, using a secret family recipe.
it’s time to put your stamp on arthritis sa’s 40th anniversary by submitting up to two pages outlining something that should be recorded for posterity.
it may be a summary of a support group’s history, details of how support from arthritis sa made a decisive difference to your life decades ago, or a story about a special event.
each submission will be kept with arthritis sa’s historical records. it may be possible to publish some on arthritis sa’s internet page.
submissions should be sent to: [email protected] or posted to Celia Painter, arthritis sa, 118 richmond road, Marleston sa 5033.
record your memories for the future
photos from our 40th anniversary morning tea held at pavilion on the park
arThriTis sa 1975-2015 40 years making a difference1975 established in response to a perceived community need for the
development of adequate services for people with arthritis. located at room 102/55 King William street. Fourhundredpeopleattendedthefirstmeeting. Known as south australian arthritis & rheumatism association inc. DavidHendersonfirstPresidentandJeanDrummondfirst
volunteer. First newsletter – handwritten – produced.
1977 First patron appointed - sir Doulas nicholls. Membership 428.
1978 First branch formed at Port Pirie.
1979 ArthritisSAbecamepartofthefirstnationalaffiliationandmembership climbed to 670.
Officeoperated5daysaweekforthefirsttime.
1980s Growth in support groups, to 13 branches, and education sessions to the public began.
First bequest received.
1981 Childhood arthritis Group established.
1982 $7,926 grant for research awarded. Membership 1,000.
1983 First colour member magazine produced.
1985 First Grandmother of the year event raised $93,000. arthritis sa became a member of Channel 9 Telethon. Telethon house lottery tickets $1. home valued at $110,000. First direct mail appeal held. Telephone advice calls began.
1986 First self-help course held and present logo introduced.
1989 First strategic plan written.
1990 The Move it or lose it campaign rolled out.
1995 healthy bones Week established. Jia camp for 19 children with arthritis held.
1997 Premises moved to Glen Osmond road, Fullarton.
1998 Kidsflixestablished. Contact Centre established. First door knock appeal held.
2003 arthritis Walk through Government house established.
2009 Move to arthritis house at Marleston.
2010 Moving Towards Wellness Courses run widely. Kidsflixexpandstofourstates.
2012 Trek to China raises $31,000.
2013 appointment of research Fellow in conjunction with University of adelaide.
2014 Trek to india raises $50,000. More than $200,000 dedicated to research.
Take Charge of Pain courses implemented.
2015 Parliamentary breakfast attended by 90 guests. Walk for arthritis from brighton Jetty to Glenelg Jetty. Celebrating 40 years morning tea at Pavilion on the Park.
8 9On The Move | Winter 2015 On The Move | Winter 20158 on the move | Winter 2015 9on the move | Winter 2015
arthritis sa members and supporters, Mickey and Minnie Mouse, bumbles the Clown and a band of pirates brought colour and fun to brighton and Glenelg foreshores recently by taking part in the 2015 Walk for arthritis.
The band of 260-plus walkers created a visual spectacle as it made its way from brighton to Glenelg along the water’s edge. each was wearing an arthritis sa blue T-shirt printed with the Kids Get arthritis Too logo. Westpac was the generous sponsor of the T-shirts and some Westpac staff members and their families provided volunteer help on the day, helping to make the event possible.
The walk raised money towards the appointment of a paediatric rheumatology nurse at the Women’s and Children’s hospital. among those fundraising and walking to draw attention to the existence and
problems of Juvenile idiopathic arthritis (Jia) were members of 17 families affected by Jia. There-in were the biggest fundraisers: ruby and her mother Christie from a very generous Port Pirie community! ruby was also a great ambassador for the event. some readers may recall hearing her being interviewed by Peter Goers on abC radio.
also especially generous was 10-year-old immanuel College student, Karlie, who took to the foreshores a few weeks beforehand to do some promotional pictures with Mickey and Minnie Mouse that appeared in the Messenger community newspaper, The Guardian.
These contributions built on awareness created by two powerful ambassadors for arthritis, Jill Kennedy, who has rheumatoid arthritis and osteoporosis, and Melanie, mother of lucy, who attended arthritis sa’s “Parliamentary breakfast” in March, with Melanie speaking of the experience of learning about and coping with lucy’s Jia.
WalK FOr arThriTis
a blue briGade spreads The MessaGe ThaT
ArthritisSAChiefExecutiveOfficerJulieBlackdescribed support for this inaugural event as “very exciting,”producingmanybenefits.
Atthefinale,eachparticipantreceivedbottledwaterfrom nippy’s, another sponsor. While many enjoyed a coffee or lunch along Jetty road, Glenelg, at the end of the walk - spreading the Kids Get arthritis Too messagethankstotheirt-shirts–othershadthebenefitof transport back to brighton, subsidised and provided by Des’s Minibuses.
babies and Kids Get arthritis Too
the 2016 Walk for arthritis will be held in april.
you can start fundraising now. Perhaps get others, or a club,
to support you. Go to our website www.arthritissa.org.au
for details.
10 11On The Move | Winter 2015 On The Move | Winter 2015
neWs neWs
3
Charity Car revs up fundraising and benefits you
national pharmacies gives something to smile about
Get a tax deductible receipt for your old bombyou can now make money from that old clunker threatening to become an eyesore in the driveway or backyard and help arthritis sa.
by donating the old car or truck for environmentally friendly recycling through Charity Car – http://www.charitycar.net.au or 1800 678 175 - you can receive a tax deductible receipt for a pre-determined donation for the vehicle. That jalopy might be worth more than you think.
it will be removed from your driveway or yard at no charge through well-known auto dismantlers U Pull it. The vehicle will then be dismantled and recycled.
Charity Car will advise you in advance of the amount that your vehicle will be worth as a donation. if you agree to proceed U Pull it will collect and deliver the vehicle for recycling and you will receive the tax deductible donation receipt from arthritis sa.
Charity Car is well established in the United Kingdom, whereitbenefitsArthritisUKandothercharities.Itis
being launched in australia by car recycling network, CarTakeback, exclusively in south australia where one in four people, from babies to the elderly, suffer from arthritis.
Charity Car is possibly the most innovative fundraising idea to come to south australia in many years.
arthritis sa CeO Julie black said Charity Car provided people who might not otherwise be able to give to arthritis sa an opportunity to do so.
“Fundraising is becoming increasingly hard because of tough economic times, increasing needs and increasing competition which puts people in touch with more people,” Julie said. “The concept of Charity Car is very dynamic and it’s this sort of innovation that could impact positively on the future ofthenot-for-profitsector.Italsogivespeopleanopportunity to clean up their back yards – literally – and dispose of unwanted vehicles in a productive and environmentally friendly way.”
Charity Car can collect cars from the inner and greater adelaide metropolitan area, including many fringe areas like some towns in the adelaide hills. it may be expanded to regional areas as it grows.
For details go to http://www.charitycar.net.au/.
national Pharmacies has helped put healthy smiles on the faces of some of south australia’s youngest arthritis sufferers.
The local mutual organisation, which has 39 pharmacies and 18 optical outlets throughout south australia, has raised more than $6,000 by offering arthritis sa toothpaste squeezers to customers, for a nominal cost, during March 2015. The plastic devices make it easier for people with arthritis in their hands to squeeze contents from tubes. The money raised from the squeezers will enable a paediatric rheumatology nurse to work for 120 hours at the Women’s and Children’s hospital.
national Pharmacies Marketing Manager David hall, said: “at national Pharmacies, we think that it is important to be active within the communities in which our members and employees live and work. supporting arthritis sa’s work to help children in this state and their families get access to treatment and support was an easy decision for us and our members and customers to get behind.”
arthritis sa CeO Julie black said arthritis sa was extremely grateful for national Pharmacies’ support as it had provided income and awareness about juvenile idiopathic arthritis, building on work associated with arthritis Week, held in March.
Did you know?• Arthritisisthemostcommonchronicdisease
in south australia, affecting more than 270,000 people.
• ArthritiscoststheSouthAustralianhealthsystemabout $200 million a year in joint replacements and this cost is increasing by $8 million a year.
• Arthritisreducesproductivity,withenormouseconomic consequences. nationally, early retirement due to arthritis costs $9.4 billion is lost GDP alone.
• Emotionallyandsocially,thehiddencostsofarthritis are immeasurable.
These are just some of the facts included in a new four-page summary called The impact of arthritis on south australia 2015. its messages were central to a Parliamentary breakfast, held by arthritis sa in late March to provide the opportunity to educate and inform 60 politicians and business and community leaders about the cost of arthritis.
The document was distributed at the breakfast,
during which it was announced that arthritis sa willbefundingthestate’sfirstdedicatedpaediatricrheumatology nurse at the Women’s & Children’s hospital.
among special speakers at the breakfast was Jill Kennedy, a sufferer of rheumatoid arthritis and osteoporosis. Jill, the face of the 2014 Pain appeal, has collated information on arthritis sa’s history over 40 years. Thank you Jill!
Melanie, the mother of lucy who featured in our Christmas appeal, also spoke of what it was like to learn of and deal with the arthritis of a child.
you can help us continue our important work by making your donation today.
the impact of athritis is greater than many realise
National Pharmacies Marketing Manager, David Hall presents Arthritis SA Business Manager, Andrew Ormandy with the cheque
medical director and board member dr simon burnett spoke at the parliamentary breakfast.
Member for Hammond Adrian Pederick MP, Arthritis SA President Colette Smith, Arthritis SA Board member Alison Adair, Member for Reynell Katrine Hildyard MP, Member for Elder Annabel Digance MP, Miriam Silva, Jill Kennedy, melanie and lucy
dr sam Whittle centre and guests
Rheumatologist Prof. Les Cleland, Member for Elder Annabel Digance, Richard Dennis PSM, Arthritis SA CEO Julie black
12 13On The Move | Winter 2015 On The Move | Winter 2015
KKidsflixwentontheroadforthefirsteventof2015! The sun was shining as 250 riverland families enjoyed a range of children’s
entertainment activities outside before watching the Paddingtonfilm.Itwaswonderfultoseethelocalcommunity embrace the event. Many thanks go to the students from renmark high school who volunteered their time on the day.
ThroughoutMarchandintoMayKidsflixvisitedeverystate in australia. From launceston to brisbane, Perth to elizabeth, thousands of people experienced a Kidsflixmorning.Formany,itisthefirsttimetheyhad
experienced the wonder and excitement of the big screen.Medicalreasonsorfinancialcircumstancesmake this entertainment out of reach for many.
Thank you to every sponsor who has provided a child living with a disability, chronic illness or social disadvantage and their families a much needed, positive family experience.
The remaining half of the year is going to be just as busy. in sa, events will be held in Mitcham, Port augusta, Mount barker and Mount Gambier. if you would like to sponsor a child or a family please visit www.kidsflix.org.au.
KiDsFlix
hear the roar of the wild at Monarto Zoo sponsored by Westpac
Sunday, November 15 – keep the date!arthritis sa, with the kind support of Westpac, is offering children with Jia and their family members free admission to Monarto Zoo, saving families up to $85. you will need to make your own way to the zoo and on the return home. For details email [email protected] or phone leanne vuong at arthritis sa on 8379 5711.
Join the 7 day experience which takes in the majestic mountains in stunning milford sound during a 5 day / 4 night Queenstown to Queenstown all-inclusive guided walk through the heart of fiord land national park to milford sound. funds raised from the trek will help us improve the quality of life of south australians living with arthritis.
find out more visit www.arthritissa.org.au
Arthritis SA Joint Adventure: New Zealand, February 2016
High Tea
When: saturday 10 october 2015
Where: Arthritis SA, 118 Richmond Rd, Marleston, 5033
entry: $25.
save the date
Join us at the Mr Holmes Film NightFriday 14 August 2015 6pm
Regal Cinema 275 Kensington Rd, Kensington ParkEasy Parking Tickets: $25 includes a glass of wineAll proceeds will go directly to funding South Australia’s first ever paediatric rheumatology nurse at the Women’s & Children’s Hospital. Bring your friends for a fun night! Raffle and door prizes!To book visit www.arthritissa.org.au or call (08) 8379 5711
14 On The Move | Winter 2015
YOUR donation will provide support to babies and children suffering from arthritis.
Thank you for your kind support
$50 for one hour $200 for half a day
other amount $__________Name: _________________________________________________
Address: ________________________________________________
Phone: _________________ Email: _________________________
Remember, your donation of $2 or more is tax deductible.
Cheque Money Order (either payable to Arthritis SA)
Card number:___ ___ ___ ___ /___ ___ ___ ___ /___ ___ ___ ___ /___ ___ ___ ___
Expiry date ___ /___ *CCV ___ /___ /___ *The CCV is mandatory; this is the last three digits on the back of your card
Name on card ______________________________________________
Signature ___________________________________________________Direct Deposit: BSB 035 212 Account Number 220101 It is critical that you put your ID number above in the reference/description when making your direct desposit.www.arthritissa.org.au
Children, even babies can suffer with arthritisArthritis affects people of all ages - even little ones just learning to walk. Early diagnosis and treatment are critical to control the disease and prevent complications and deformity for these special children – to say nothing of easing sometimes crippling pain.
Arthritis SA wants to make the children feel and get better quicker. To do this the Foundation is working closely with the Women’s and Children’s Hospital to employ a paediatric rheumatology nurse to support both the children and their parents or carers.
The cost of this will be in excess of $100,000 and these children, their families and Arthritis SA need your help to reach the goal!
A paediatric rheumatology nurse will make a huge difference to the children and their families, by providing cutting edge information, education, and support. Parents tell us they often feel overwhelmed, particularly with sometimes complex drug treatments. This is just the sort of situation where a paediatric rheumatology nurse can help.
The cost of the nurse is just $50 an hour. I am therefore asking you to please give generously today to help make life better for children with arthritis. You can donate by completing this form overleaf and returning your donation to us in the reply paid envelope or by phoning us on 8379 5711. Alternatively, you can donate online via our website www.arthritissa.org.au
Yours sincerely
Julie BlackChief Executive OfficerArthritis SA
Donate:
✆ (08) 8379 5711 1800 011 041 country freecall
www.arthritissa.org.au
118 Richmond Road, Marleston SA 5033
✄
