Peny6,rurca Cp6wja.ATEHTIT4JA 3A PEC TpITvUITJv

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Eeorpa4, Macapuxoea 5p. 5Epoj : 446-0 6 -l 10-9 12020 -01[aryna: 03 jyr 2020. rop.ulr,e

Ha ocuoay r{JraHa 21. 3arona o jaaHuu AreHqujanaa (,,Cryx6esu rlacuuK PC", 6p. 18/05,8l/05 - r4cnp. u 47118), r{JraHa 12. 3axoua orKnanany flocneAnqa oAy3]rMama HMoBHHexprBaMa Xoloxaycra roje neuajy xilBHx 3aKoHcKI4x HacneAHI4Ka (,,C1. TJIacHHK PC", 6p. 6poj13/16), qJraHa 58. ra.{ra 8. 3axona o epaharsy oAy3ere HMoBHHe ra o6eureherry (,,CnyN6esurrracHnK PC" 6poj 72111, 108/13, l42ll4 ra 88/15 - O4nyxa YC u 951208), uraua 10. u 17 . cras2.,raura 8. Craryra Arenqnje 3a pecrr.rryqrajy, rao 14 r{JIaHoBa 4, 78, u 22. cras 6. Illpanra:runxa

o yHyrpaumoj opraHrasaqujra H cucreMarvsaguju paAHI4x Mecra y AreHqujr.r 3a pecrurylrl4jy 6p.

446-06-110-000018/2017-01 oa 11.05.2017. ro4uue, Ar.{peKrop AreHqrzje AoHocH cre4ehe:

YIIYTCTBOo rrocryrrart,y y [peAMerHMa rro 3axreBlrMa perrrcrpoBaHl{x Jenpejcrcux o[Irrrl{Ha

troAHerr.rM y cKJraAy ca 3arcouou o orrJralsaE y rlocJreArrlla oAy3I.rMaIsa LIMoBrrHe xprBaMaXoloraycra rcoje Heuajy xrrBlrx 3aKoHcKIrx HacJTeAHLIKa

(,,Cr. rrracHuK PC",6p. 6poj 13/16)

l. OsuNa yrr),TcrBoM ce ypelyje rocrynarbe rlo 3axreBLIMa perl4crpoBaHux jenpejcxuxorrrrrr[Ha, rroAHerr4M y cKnaAy ca 3axoHoM o orKJla]bal*,y flocneAI{qa oAy3HMarLar4MoBuHe xprBaMa Xoloraycra xoje nerrlajy xHBHx 3aKoHcKt4x HcneAHI4Ka (,,C1.rrracHuK PC", 6p. 6poj l3116).

2. CaeerHraur.r saAvNeHu ga npeANaere JeArrHraue sa spahame lzlaoeaFre Npraea Xororaycra.npilrr,rxoN,t npeor y:hN4arba -v paA raxresa rpe6a Aa:

r43Bpme rperpary 6ase noAaraxa Areuquje 3a pecrnryuhjy HaeoAehv Kao napaMerpe3a flperaxuBame: HMe I4 rrpe3uMe basuer BJracHHKa, caMo I4Me H caMo rIpe3I4Me6ueruer BJracHuKa, I4MoBI4Hy roja ce norpaxyje (6poj xar.napuene ilo crapoM rIeaNehel,r rlpeMepy, ynnlra z 6poj o6jerra, KO, fIO), KoA cnoxenlrjrax rpe3l4MeHacrpaHor [opeKJIa, g6or pa3nutIHre ttHcaHe raurepnperaquje oAHocHo :6orpa3nr,rr{r4Tof Har{r4Ha nvcat,a noje4unux uthcoea, Kao [apaMeTap 3a ilpeTpafy Mofyce HaBecTH r,r caMo IIpBa cnoBa rIpe3HMeHa ys nroryhy 3aMeHy cJIoBa (ua nprauep:

rrpe3gMe EnrelnaaH ce Mox(e fivcarvt ca [oqerHI4M cJIoBoM A - Angelman utu E -Engelman).

- noce6so o6pare ,naxrLy yKonr4Ko ce HaKoH nperpare HHTepHe 6ase noAararaAreHquje, yrrpo, Aa je noAHer 3axreB :a npahau,e oAHocHo o6eureherse y rojerra jexao 6usrxr4 BnacHHK o3HarieHo ruqe xoje je y cpogcrBy ca nuueM roje je o3HatleHoKao 66euu,p-nacnux y npeAMeTy rcojra ce BoAI4 IIo 3axreBy perucTpoBaue JO, y KoM

cnyqaJy norpe6uo je cnponecru 4era-nuzjy [perpary I4 rlo rlorpe6u useputurLl yBtt4

y npeAMer xoju ce BoAr4 ro 3arony o npahamy oAy3ere I4MoBI4He u o6euereherry(Hurr", y jepou cryuajy orKpr4BeHo je aa je noAHer 3axreB:a epahame oA crpaHeJO Cy6oruqa r43a 6ueure BJracHHue, xoja je v cawa rloAHena 3axreB sa npahameoAHocHo o6emreherse, art4 ToM nplrnr4rcorra je Kopucrt4na csoie yAa'ro rrpe3nMe, AoKje y 3axresy JO naee4eHo rbeHo geeojaurco rpe3hMe. ,{o onor ca3HaH,a ce AoIIrno reK

HaKoH ruro je yrnpleHo 4a je rac'ra oco6a rloA4ena 3axreBe sa rpaharse oAHocHoo6eurrehene HMoBr4He cnojux 6a6e u AeAe rlo ouy y KoM ce rlpeAMery Hana3vocraBlrHcKo peuerbe, a raa.rcojer je 4a;re yrnpfeuo racepaI'v. o racroj oco6n Kao H y

3axreBy JO Cy6oruqa).

3. Oro Yny,rcTBO CTyla Ha cHafy AaHoM AOHOIUeBa H AOCTaBJba Ce eJIeKTpoHcKoM IIOIIITOMcguN,I sanocreHl4t\a rl4ular4a I'rg raqxe 2. osor Vnyrcrga.

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Ynyrcrno AocraBlrrrr:- ,{rzperropy JeAranuqe:a apaha6e I4MoBI'IHe xpraBa Xoloraycra- firapercropy ceKropa 3a KoopAl{uauzjy I'I HaA3op- y apxuBy- y rlpeAMer

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