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Copyright © 2013 Center for Integrated Self Advocacy 3 ISA® Training NWESC April 2015 My SelfAdvocacy Experience Think about a time you had to advocate for yourself about something. Can you break the experience down into the three steps? Complete this worksheet, then share your experience with others in the course. SelfAdvocacy Steps Your Experience 1. SelfAwareness 2. Disclosure & Advocacy Plan 3. Implementation

My%Self)Advocacy%Experience% Self)Advocacy%Steps… ·  · 2016-12-20other people that make you feel ... Self-Disclosure Educating others about one’s way of being or condition

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Copyright  ©  2013  Center  for  Integrated  Self  Advocacy  

3  ISA®  Training  NWESC  April  2015  

My  Self-­‐Advocacy  Experience    

 Think  about  a  time  you  had  to  advocate  for  yourself  about  something.  Can  you  break  the  experience  down  into  the  three  steps?  Complete  this  worksheet,  then  share  your  experience  with  others  in  the  course.      

Self-­‐Advocacy  Steps   Your  Experience  1.    Self-­‐Awareness                  

         

2.  Disclosure  &  Advocacy  Plan                    

         

3.  Implementation                    

         

     

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©  2013  The  Center  for  Integrated  Self  Advocacy                                                                      Integrated  Self  Advocacy  ISA®                                                                                                        

INTEGRATED SELF ADVOCACY ISA® Indicators and Skills Assessment Survey

Name: _________________________________ Code: 3=No answer (not adaptive), 2= Answered, but not in context to question (adaptive) Self Report _____ Observation _____ 1= Answered in context to question (highly adaptive)

Skill Area Benchmark

Answer

code Sensory/ Environmental Becoming aware of one’s own self-regulation and sources of comfort

Question Tell me about how you feel when something in the environment bothers or interrupts you.

Response

3

2

1

Social Becoming intimate with propensities for overload and shutdown Question

Tell me about situations with other people that make you feel tired, melt down or tune out.

Response

3

2

1

Self-Disclosure Educating others about one’s way of being or condition (cross cultural communication)

Question Tell me about things you share about yourself in order to get along with classmates, peers, family members.

Response

3

2

1

Strengths/ Focused interests Identifying one’s own strengths and focused interests Question

Tell me about the things you are really interested in or excited about.

Response

3

2

1

Entitlements and Civil Rights Knowing rights under ADA, IDEA or other relevant legislation Question

Tell me about laws that protect people with disabilities at school/work.

Response

3

2

1

Total

Self -

Awar

enes

s

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©  2013  The  Center  for  Integrated  Self  Advocacy                                                                      Integrated  Self  Advocacy  ISA®                                                                                                        

INTEGRATED SELF ADVOCACY ISA® Indicators and Skills Assessment Survey

Code: 3=No answer (not adaptive) 2= Answered, but not in context to question (adaptive) 1= Answered in context to question (highly adaptive)

Skill Area Benchmark

Answer

code Sensory/ Environmental Understanding how to advocate for environmental accommodations

Question

Tell me what you do when something in the environment makes you feel interrupted or uncomfortable or bothered.

Response

3

2

1

Social Communicating social preferences

Question Tell me about your favorite or least favorite ways to spend time with others.

Response

3

2

1

Self-Disclosure Assessing situations to determine how to disclose (full or partial)

Question

Tell me about what makes you decide to tell someone else about your disability or the things you experience because of your disability.

Response

3

2

1

Strengths/ Focused interests Understand when strengths or focused interests can be supportive to self- regulation.

Question Tell me about a time when you used your interests to feel calm and centered.

Response

3

2

1

Entitlements and Civil Rights Participation in an IEP meeting (alternative: any adult services meeting)

Question

Tell me a time when you attended you IEP meeting. (alternative: any adult services meeting)

Response

3

2

1

Total

Comp

etenc

e

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©  2013  The  Center  for  Integrated  Self  Advocacy                                                                      Integrated  Self  Advocacy  ISA®                                                                                                        

INTEGRATED SELF ADVOCACY ISA® Indicators and Skills Assessment Survey

Code: 3=No answer (not adaptive), 2= Answered, but not in context to question (adaptive), 1= Answered in context to question (highly adaptive)

Skill Area Benchmark

Answer

code Sensory/ Environmental Advocating for environmental accommodations

in novel situations or settings

Question Tell me about a time when you made a request to change something in the environment so that you could feel more comfortable.

Response

3

2

1

Social Advocating for social accommodations in novel situations or settings Question

Tell me about a time when you were nervous, shy or confused, and you made a request to feel comfortable or to participate in a way you wanted to.

Response

3

2

1

Self-Disclosure Disclosure, particularly as safety or self-care Question

Tell me a time when you explained your disability to someone so that they could help you with something.

Response

3

2

1

Strengths/ Focused interests Using strengths and interests to support one’s community, employment, social or learning experiences

Question Tell me about a time when you used your strengths or interests to make your life better in school, at work or in other situations.

Response

3

2

1

Entitlements and Civil Rights Understanding when to assert one’s legal or civil rights Question

Tell me a time when you knew it was important to inform someone (or not inform someone) that you have civil and/or legal rights as a person with a disability.

Response

3

2

1

Total

Auton

omy

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©  The  Center  for  Integrated  Self  Advocacy  2013                                                                                            Integrated  Self  Advocacy  ISA®  

ISA SENSORY SCAN™ Text-Based Worksheet Integrated Self-Advocacy ISA®

My Personal Information & Scan Location Your name: _________________________________________ Date: ________________________ Which room or environment will you be scanning? ___________________________________________ The ISA Sensory Scan 1. Auditory Scan: Pay attention to the sound in this environment. Which of the following apply to you? Fill in as many

details as you can in the Notes sections. Background noise is distracting Difficulty with sudden or irregular noises Notes: Notes: Challenge with number or volume of voice(s) Other Notes: Notes: 2. Visual Scan: Pay attention to what you see or how you see in this environment. Which of the following apply

to you? Fill in as many details as you can in the Notes sections. Light in room is too bright or too dim Type of light is distracting or challenging Notes: Notes: Angle of light is difficult (from above, below, etc.) Difficulty reading in this environment Notes: Notes: Distracted by things hanging on the wall, on surfaces, Other or in my peripheral vision Notes: Notes: 3. Olfactory Scan (Smell): Pay attention to the smells in this environment. Which of the following apply to you? Fill

in as many details as you can in the Notes sections. Smell from objects is distracting, challenging The general smell of the room is difficult Notes: Notes: Smell from person(s) is distracting, challenging Other Notes: Notes: 4. Tactile Scan (Touch/Feel): Pay attention to your reaction to touch or to the things or people you

touch/feel in this environment. Which of the following apply to you? Fill in as many details as you can in the Notes sections.

Generally cannot tolerate others’ touch/type of touch Challenges with how things or surfaces Notes: feel to the touch (sticky, wet, rough, etc.)

Notes: Sometimes don’t feel pain the way others do Difficulty with the temperature or drafts Notes: Notes: 5. Oral/Gustatory Scan: Pay attention to tastes or textures on your tongue in this environment. Which of the

following apply to you? Fill in as many details as you can in the Notes sections. Difficulty with the texture or taste Challenges with mixed foods of certain foods Notes:

Notes:

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©  The  Center  for  Integrated  Self  Advocacy  2013                                                                                            Integrated  Self  Advocacy  ISA®  

Other/Notes: 6. Vestibular Scan: Pay attention to how movement affects or doesn’t affect you in this environment. Which

of the following apply to you? Fill in as many details as you can in the Notes sections. Cannot sit for long periods of time Would like to spin in circles Notes: Notes: Motion in vehicles is disruptive/makes me feel Other sick or confused Notes: Notes: 7. Proprioceptive Scan: Pay attention to your experience of your body and the space around you. Which of

the following apply to you? Fill in as many details as you can in the notes sections. Easily bump into others or the walls Need to rock, bounce, or press Notes: against other things or people Notes: Trouble writing on paper (graphomotor) Difficulty using stairs or walking Notes: down an incline Notes: Cannot sit for long periods of time Other Notes: Notes: My Top Three Environmental Needs: Choose up to three results from your Sensory Scan above. You will use these to develop an Advocacy Plan in your Self-Advocacy Portfolio. 1. 2. 3.  

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ISA  SENSORY  SCAN™  Sensory  Advocacy  Plan    Name:                                                                                Date:                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                            Integrated  Self  Advocacy  ISA®                                              ISA  Sensory  Scan™  

   

 

My  top  3  Sensory  needs:  1.    2.    3.    Can I address these needs on my own? If so how? (For example, do you need tools, fidgets, earplugs, or sunglasses?) 1.  

 2.  

 3.  

 If I can’t address these on my own, what is my advocacy goal? (For example, do you need to make a request for an accommodation?) 1.  

 2.

3.

Do I need an Advocacy Script? (If YES, complete the Advocacy Script worksheet) 1. YES NO 2. YES NO 3. YES NO Do I need someone to support me? If so, how? (You might want to practice your plan first, ask someone to accompany you, or follow up with a mentor after you have executed your Advocacy Plan.) 1.

YES NO

2.

YES NO

3.

YES NO

Ratings: How did it go? 1 2 3

Poorly O.K. Great

ISA

Sens

ory S

can™

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Name:                                                                                                          Date:                                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                      Integrated  Self  Advocacy  ISA®                                                                                                      The  ISA  Sensory  Scan™  

 

ISA SENSORY SCAN™ Sight Words & Visuals-Visual

LOOK

Fluorescent

OK

NOT OK

Notes:

Recessed

OK

NOT OK

Notes:

 

 

 

 

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Name:                                                                                                          Date:                                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                      Integrated  Self  Advocacy  ISA®                                                                                                      The  ISA  Sensory  Scan™  

 

ISA SENSORY SCAN™ Sight Words & Visuals-Visual

LOOK

Objects on wall

OK

NOT OK

Notes:

Objects hanging

OK

NOT OK

Notes:

Moving objects

OK

NOT OK

Notes:

 

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ISA SENSORY SCAN™ Graphic Organizer Name: Date: Scan Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                Integrated  Self  Advocacy  ISA®                                                                                              ISA  Sensory  Scan™  

 

 

 

 

Self- Advocacy Plans

Common Advocacy Plans Implement Notes for active self-advocacy Develop advocacy scripts    Take a break in a quiet place    Do activities in a Sensory Zone    Move to a different seat    Other      

Taste Categories Specific Challenges OK NOT OK Notes Texture Food Mixed foods Other: Taste Food Medication Other: Touch Categories Specific Challenges OK NOT OK Notes Other peoples’ touch Touch:

Too Light / Too Hard

All touch Sudden touch Other: Textures or Surfaces Surface of desk or chair Using pencils, pens Other: Temperature / Air Temperature: Too Hot / Too Cold Draft or breeze Other: Vestibular / Proprioceptive Categories

Specific Challenges YES NO Notes

Movement I can sit for long periods of time. I need to spin in circles. I bump into things or people. I need to rock or bounce. I have trouble using stairs / inclines. I need to flap my hands or stim. Other: Pressure I need deep pressure. I need to bite (self). Other:

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Name:                                                                                                          Date:                                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                      Integrated  Self  Advocacy  ISA®                                                                                                      The  ISA  Sensory  Scan™  

 

ISA SENSORY SCAN™ Text & Visuals-Auditory

Pay attention to the sound in this

environment. What do you hear? Is it ok or not ok (distracting or annoying)?

 

Others talking when teacher is speaking

OK

NOT OK

Notes:

Too many people talking

at the same time

OK

NOT OK

Notes:

 

Loud voices

OK

NOT OK

Notes:

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Name:                                                                                                          Date:                                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                      Integrated  Self  Advocacy  ISA®                                                                                                      The  ISA  Sensory  Scan™  

 

ISA SENSORY SCAN™ Text & Visuals-Taste

Pay attention to tastes or textures on your tongue in this environment. Is it ok or not ok (distracting or annoying)?

Certain food

OK

NOT OK

Notes:

Mixed foods

OK

NOT OK

Notes:

Taste or texture of medications

OK

NOT OK

Notes:

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Name:                                                                                                          Date:                                                                            Scan  Location:  

©  Center  for  Integrated  Self  Advocacy  2013                                                                      Integrated  Self  Advocacy  ISA®                                                                                                      The  ISA  Sensory  Scan™  

 

ISA SENSORY SCAN™ Sight Words & Visuals-Vestibular & Proprioceptive

BODY

Sit

YES

NO

Notes:

Spin

YES

NO

Notes:

 

 

 

 

 

 

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Making Advocacy ScriptsIntegrated Self-Advocacy ISA™

Your name: _________________________________ Date: _______________________________

My Advocacy Goal, Need, or Preference

Briefly describe the advocacy goal, need, or preference for which you’ll be writing a script:

Analyze the Context Write Your Answers

LOCATION:Where will you be using this script? What is the environment like? Public, private? Will you need to request privacy to say your script?

WHO?Who will you be saying your script to? Is it one person or more than one person?

DISCLOSURE:Do you feel you need to self-disclose to reach your advocacy goal? If you do, will you make a full or partial disclosure?

OUTCOME: What outcome do you hope to achieve using this script? What will you do if the outcome is different from what you expected?

SUPPORT:Will you ask a support person to be present when you use your advocacy script? Will you ask a support person to follow up with you after you have attempted advocating with your script?

ADDITIONAL CONSIDERATIONS:Add any additional information that isn’t covered above yet is important to using your script.

INTEG

RATED SELF ADVOCACY

From Paradiz, V. (2009). The Integrated Self-Advocacy ISATM Curriculum – A Program for Emerging Self-Advocates with Autism Spectrum and Other Conditions. Autism Asperger Publishing Company; www.asperger.net. Used with permission.

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Illustrate and Write the Script

Use the space provided below to illustrate and/or write your advocacy script. Be sure to write the words you will say when you advocate for your need or preference.

Illustrate (if you need more space, please use a separate sheet)

Write Your Script Here (keep it simple and courteous)

From Paradiz, V. (2009). The Integrated Self-Advocacy ISATM Curriculum – A Program for Emerging Self-Advocates with Autism Spectrum and Other Conditions. Autism Asperger Publishing Company; www.asperger.net. Used with permission.

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Before You Try out Your ScriptRemember that every time you advocate for yourself, you are in an original moment in your life. Although you have prepared this script and have imagined how you would like things to go when you use it, remember that you might not get the results you want, or that the words you are prepared to say might come out differently. In any advocacy moment, it’s important to keep an open mind and expect that things won’t always go the way you want them to. Advocacy is an ongoing process. The success is in attempting it!

Follow-up and The Self-Advocacy PortfolioAfter you have used your Advocacy Script, assess how things worked out. Make any revisions you would like to the script, then transfer the revised version to your Self-Advocacy Portfolio.

AssessmentA. On a scale from 1 to 4, how effective was your script in achieving your advocacy goal or need?

(Circle one).

1 2 3 4

The plan backfired or was a total disaster.

The plan went O.K., but I didn’t reach my

goal.

The plan went O.K., and I only reached part of my goal.

The plan was a success. I reached

my goal.

B. If you chose 1 above, do you feel you need to take another approach? If yes, how?

C. If you chose 2 or 3 above, how can you improve your advocacy script? Make any changes here:

Transfer your successful or revised script to the scripts section of your Self-Advocacy Portfolio. The portfolio is a living document where you can save helpful advocacy tools that have worked for you.

From Paradiz, V. (2009). The Integrated Self-Advocacy ISATM Curriculum – A Program for Emerging Self-Advocates with Autism Spectrum and Other Conditions. Autism Asperger Publishing Company; www.asperger.net. Used with permission.