Leukaemia & Lymphoma Research David Henderson. Where we started

Leukaemia & Lymphoma Research

David Henderson

Where we started

Our mission

1. We stop people dying from blood cancerAnything short of 100% survival is unacceptable. We’ll work until no one dies from blood cancer again.

2. We make patients’ lives betterPeople with blood cancer should be able to live the lives they’re given. We’ll work to improve patients’ quality of life until blood cancer no longer has an impact.

3. We stop people getting blood cancer in the first placeIf there are ways to prevent blood cancer, we’ll find them.We’ll work to uncover the answers that stop blood cancer happening.

What we do:

Research

Patient Services

Policy & Public Affairs

Understanding Patient Need

Raise funds

Patient Services: We’re here with you

For patients. For carers.For anyone affected by blood cancer.

We provide a range of patient services dedicated to supporting and improving the lives of patients

Information

– Patient, families, carers– Available online and booklet forms– Currently updating and refreshing• Core disease booklets• Key support information (‘My Diary’)

– Created for the patient: so any particular areas needed then do let us know

Online Patient Support

Support and engagement

– Patient Events, Email, Social Media, Telephone

– Clinicians and nurse specialists

–Work with policy & public affairs team

– Support Patient Need research programme

Prioritising Patient Need:Putting patients at the heart

What this enables

What we’ve been up to & how you can get involved

• Interrogating data and research• Patient need survey• Focus groups across the UK• Interviews 1-2-1 with leading professionals

• Speak to me today or visit our website

Thank you