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7/30/2019 MCCC What is Maggie_s
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7/30/2019 MCCC What is Maggie_s
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WHAT IS MAGGIES?
Maggies is about empowering people
to live with, through and beyond cancer
by bringing together professional help,
communities of support and building
design to create exceptional centres
for cancer care.
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WHAT IS MAGGIES?
Maggies Centres are for anyone affected by cancer. They are
places where people are welcome whenever they need us from
just bein g diagno sed, or undergoi ng treatmen t, to po st-treatmen t,
recurrence, end of life or in bereavement.
We also welcome family and friends, as they are often deeply
affected by cancer too. We know that those who love and look
after someone with cancer can feel just as frightened, vulnerable
and uncertain.
Our visitors tell us that the welcome they receive at Maggies iswhat they appreciate the most. Just walking through our doors
puts them at ease. This is a key part of our pioneering approach
that integrates professional help with a community of support in
thoughtfully designed centres, a combination which is proving
highly effective in alleviating the emotional distress and practical
difficulties that cancer brings. Everything we provide is free of
charge, so visitors can feel welcome to access our support for as
long as they need it.
EVERYONES
WELCOME
The diagnosis had been as
hard on my family as it was
for me... Seeing the suffering
of my husband, mother andteenage children affected
me physically.
Maggie Keswick Jencks
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WHAT IS MAGGIES?
THE NEED FOR
MAGGIES
IS GROWING
Maggies has helped me so
much, its a place wherepeople r eally un derstand you.
Alan Andreson
A diagnosis of cancer is still one of the most traumatic experiences
anyone has to face. A key concern for us is the increasing number
of new diagnoses, approximately 298,000 each year a figure
predicted to rise by 30% by 2020. Most people will receive excellent
medical care, but their practical, emotional and psychological needs
require specialist support. Maggies Centres are places where those
who are newly diagnosed can access this kind of support.
Over two million people in the UK are living with cancer a figure
increasing by over 3% every year. With one in three people
expected to develop it over the course of their lives, cancer affects
almost every family in the country. We want to expand our network
of centres to provide support to every family who needs it.
Many more people are now surviving cancer, due to better
prevention and treatment, which is good news. However, this
significantly increasing population of people are living with cancer
as a chronic illness and experiencing all the challenges this brings.
At Maggies we want to ensure we can help them through the long
term effects for as long as they need us.
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Mike Charkows Story
I was working in Japan when I found a lump on my neck. I thought it was
a snowboarding injury but I was diagnosed with lymphoma, which was a huge
shock. I underwent treatment but about a year later the cancer returned.
It was incredibly isolating. I just felt this massive weight had been put
on me and there was no one to share it with. I remember going to Maggies,
where I was found a private room, and I broke down. It was many things:
frustration, fear and even panic. But that space was so precious at that
moment. From then on I went to Maggies every time I had an appointmentfor treatment.
After my second diagnosis I was undergoing a stem cell transplant, which
was fairly new and a big unknown. At Maggies I met Annu, who had been
through the same treatment the year previously, and I talked to her about
what happens and how it feels, which really took the fear of the unknown
out of it. Its one thing talking to doctors and specialists, but to meet
someone of a similar age whod been through the same experience was
profoundly important to me. I thought, yes, I can get through this.
For me Maggies represented a community, a place which was extraordinarily
welcoming and where I could just crash out. You didnt have to put on a
front, but could just be. I still call by to catch up with friends I made
there, which says it all.
8
WHAT IS MAGGIES?
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WHAT IS MAGGIES?
Maggies Centres are places where people can drop-in when they
want and use as they wish. No appointment is required and every
visitor is welcomed by a cancer support specialist who will speak
with them immediately. We focus each centre around a kitchen table
and encouragepeople to talk over a cup of tea with staff and others
using the centre. Many of them tell us that coming to Maggies is
like being welcomed into a friends house.
Our centres are also places where we help people to find their own
way forward. We particularly focus on the common feelings of
helplessness, loss of control and isolation that many people affected
by cancer experience. Supporting people to work through these
challenging emotions can help them to face the other physical and
life changing consequences cancer can bring.
At our core is the idea of active participation. Helping each person
to feel a greater sense of control over what is happening and
building their confidence can be crucial to alleviating some of the
distress and despair they can experience when diagnosed or if their
cancer returns.
HOW WE
PROVIDE HELP
AND SUPPORT
Maggies provided me with
a refuge a sanctuary partof the real world but somehow
detached. The world hadnt
changed but cancer had totally
changed who I was and I
needed help to learn how to
live again.
Isobel Rutter
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WHAT IS MAGGIES?
Maggies communities
A unique characteristic of Maggies is the ownership and strong
sense of belonging that people feel for their local centre. The
special environments in our centres help communities of support
to naturally develop and people tell us they feel safe at Maggies
and able to discuss difficult thoughts and feelings. Sharing these
feelings with others affected by cancer helps them to feel less
isolated and distressed.
Bringing people together, so they can draw strength from sharing
experiences and knowledge, can be very empowering and we know
that the camaraderie, understanding and reassurance that people
at Maggies offer to one another is an important and powerful
aspect of what makes us so effective.
We also have a thriving online community where anyone affected
by cancer, anywhere in the world, can access many aspects of the
professional support we offer in our physical centres, including
opportunities to link with our specialists and connect with others
through our online support groups.
You can find out more about our full programme of support at
www.maggiescentres.org
I talk about things within the
group that I would never talk
about with my family and
friends. The chance to bounce
off people is so valuable and
helpful, especially when I was
experiencing side effects from
radiotherapy.
Ian McFarlane
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WHAT IS MAGGIES?
Our programme of support
Weve designed our support to help people at any stage of any
cancer and focused it around four key areas identified as the most
important by people affected by cancer:
Comprehensive information on their particular cancer and help to
build their understanding of this information.
Emotional and psychological supportto address the range of
emotions, including severe distress, anxiety, depression, helplessness
and uncertainty, that cancer can evoke.
Stress and distress managementto help people with their diagnosis,
ease the difficulties of treatment, and manage the ongoing impact
of cancer on relationships, activities and personal abilities.
Support to make choices to live differentlyto improve mental and
physical well-being and find ways to live with, through and beyond
cancer, including exercise and healthy eating.
At each Maggies Centre our experienced cancer nurses, clinical
psychologists, specialist therapists, nutritionists and benefits advisers
offer support on an individual basis or through a varied range of
group activities. People can access any aspect of our programme,
from timetabled courses, workshops and group sessions, to one-to-
one support, as and when they need it.
The emotional trauma can be
just as difficult as the p hysical
affects. For our cancer patients
what Maggies does is vital.
Professor Bob Leonard,
Clinical Director, Cancer
Services, Imperial College
Healthcare NHS Trust
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WHAT IS MAGGIES?
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Dr Noelle ORourkes Story
My story is unusual in that I knew about Maggies Centres, and was working
with them as an oncologist, before I was diagnosed with breast cancer. So
I was already aware of what Maggies provided and how special it was.
While I had huge support at the hospital from friends and colleagues, it
remained a scary and unnerving experience, particularly as I was suddenly
on the other side. There is the sense that youve become an object,
something that things happen to. I was in my place of work and yet I
wasnt myself, I was a patient and it was unnerving. What Maggies gave
me was the ability to walk through their front door and feel that it was
me again - I regained my identity.
When I was diagnosed my children were aged 13, 11 and eight, and one of
the really upsetting things for me was the thought of what would happen
to them. While my family were incredibly helpful in providing me with a
focus to stay positive, I needed Maggies for support along the way. I
went to relaxation therapy and the look good feel better programme, but
probably the most important thing was simply sitting around drinking
coffee and chatting, during which I learned more about how people cope
with cancer treatment than in 20 years as a doctor.
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WHAT IS MAGGIES?
Maggies centres blend visionary architecture with warm, homely
spaces, which inspire people to come in and feel comfortable
as they seek out our support. Although each of our centres is
distinctive and different, they all have intriguing, welcoming
interiors that subtly relieve distress and build confidence. People
tell us our centres uniqueness makes them feel valued, which in
turn, helps them to relax, talk about their fears and concerns, and
connect with the community of support that every Maggies offers.
The unusual designs are also an antidote to the often impersonal
hospital environment where people can feel inhibited and
processed. Our centres open plan spaces encourage people to
explore, while thoughtful details, from the help-yourself biscuit tins
and comforting cushions to arresting art on the walls, puts people
at ease and can inspire them to approach things differently.
Some of the worlds leading architects have contributed their
creativity to developing our centres because they knew and loved
Maggie Keswick Jencks. Together we have worked to create
exceptional centres which offer healing potential through their
design and amplify the effectiveness of our support.
You can find out more on all our centres at www.maggiescentres.org
CREATING
EXCEPTIONAL
CANCER
CARING
CENTRES
I just felt the building
enveloped me in love...
its bright, its light and the
first thing you do is smile.
Trudy McLeay
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WHAT IS MAGGIES?
Each one of our centres is based close to a hospital cancer treatment
centre where we have been invited by the local NHS team to bring
our distinctive type of care to their patients. This means our support
is available at the most convenient location for our visitors. They can
drop-in before or after an appointment or treatment session and
relax in the welcome sanctuary our centres provide.
We know that hospital staff have only limited time to spend with
their patients, so in our centres people can take as much time as
they need and visit as often as they want to. No appointments are
necessary and our centres are freely accessible for anyone at any time.
Our support also helps people to get the best out of their medical
treatment by building their confidence about communicating with
their medical team. Our focus on working through each persons
individual questions and concerns, and provision of tailored
psychological support, can decrease anxieties about treatment,
surgery and talking with medical professionals.
HERE TO
COMPLEMENT
MEDICAL CARE
Maggies complements what
the hospital does but it is also
very different. The hospital
focus is very much on tasks,
whereas Maggies is about
starting from the point of v iew
of the patient and responding
to their situation.
Dr John Wilson,
Consultant Physician and
Gastroenterologist,
Victoria Hospital, NHS Fife
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WHAT IS MAGGIES?
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Gordon Kirks Story
I was diagnosed with testicular cancer at about the time my wife Lesley
and I had our first child, Ava. It was strange, as I had this little
bundle of life on the one hand - a fantastic gift - and on the other a
life threatening illness. I had lost a grandfather, three uncles and an
aunt to cancer, and so it was genuinely frightening.
When I first went to Maggies I was feeling very vulnerable, being so
dependent and aware of my wifes burden. Before going through the door I
remember walking around thinking what am I doing here, what do I want to
know, what will they tell me? Then as soon as I entered it was a
different world, a calm world. From that day on I felt an affinity with
the place, that there were people who would understand.
Maggies allowed me time to pause and reflect, and not be frightened of
doing so. Not only the resident psychologist, but also other users at the
centre like Bruce, were incredibly supportive. It was cathartic. You share
the highs and the lows and how to deal with them; it brings you back from
a dark place. And it allows you to see the lighter side of life and get
it into perspective.
WHAT IS MAGGIES?
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WHAT IS MAGGIES?
Our community of supporters, across the UK and beyond, have
made it possible to provide help to many people via our existing
network of centres. But we want to ensure that every person
affected by cancer in the UK has access to a Maggies and you
could help us make this a reality.
If you would like to support us there are lots of ways to do so.
By making a donation or taking part in an event you could help us
build our network, so that we can reach more people in more places
and make sure no one faces cancer alone.
Find out how to get involved or talk about how you would like to
help by contacting us on 0300 123 1801 or visit our website at
www.maggiescentres.org
YOU MAKE
MAGGIES
A REALITY
Maggies has given me so
much. I feel passionately
that more centres must be
built to take this support out
to others who need it.
Elaine Davidson
WHAT IS MAGGIES?
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WHAT IS MAGGIE S?
24
Mark Haskins Story
I was diagnosed with bowel cancer and had been through a period of
treatment that was in many ways surreal: in less than two months I had
seven or eight different scans, chemo and radiotherapy and two separate
operations. Then suddenly I was back home again wondering whether it had
really happened.
Looking back I dont think I had really accepted what had happened and
was in denial, so it was a matter of coming to terms with reality and my
condition. What helped me was having three families, my own, the Ynys
Maedw football team and Maggies, particularly because none of them
treated me differently.
At Maggies I discovered a real community, a place where my worries could
be left at the door. It has been a tremendous support. Being around people
who had different forms of cancer, or who were recovering from it, opened
my eyes and made me feel less alone. People may say that they know what
youre going through but they really dont grasp it. At Maggies I didnt
have to explain myself or what was happening, I was just accepted for
myself and treated like a warm friend.
For such a small building it holds so much love.
WHAT IS MAGGIES?
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A diagnosis of cancer hits you like a punch in the stomach. This is
how Maggie Keswick Jencks (right), our founder (with her husband,
Charles Jencks) described her own diagnosis of breast cancer. It was
during her last 18 months of life, when the cancer had returned,
that she developed a vision for a cancer caring centre that could
make the experience of diagnosis and treatment easier to bear.
As a writer, landscape designer, painter and mother of two,
Maggies vision was influenced by all of her interests. She wanted
a place that offered healing potential through its design, where
people could meet and share with others in similar circumstances.She felt strongly that people could feel better by becoming active
participants and taking greater control over what was happening
to them, and to do this they needed access to expert advice,
information and psychological support.
With the help of her medical team at the Western General Hospital,
Edinburgh, Maggie created a blueprint for her pioneering centre,
adapting a stable block in the hospital grounds. In 1996, a year
after her death, it became the first Maggies Centre.
WHO WAS
MAGGIE?
Above all what matters is
to not lose the joy of living
in the fear of dying.
Maggie Keswick Jencks
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OUR CENTRES
Maggies Edinburgh
Maggies Glasgow (Gatehouse)
Maggies Dundee
Maggies Highlands
Maggies Fife
Maggies London
Maggies Cheltenham
Maggies Lanarkshire
Maggies Oxford
Maggies South West Wales
Maggies Online
CENTRES IN DEVELOPMENTMaggies Glasgow (Gartnavel)
Maggies Nottingham
Maggies North East
Maggies Aberdeen
Maggies Hong Kong
T: +44 (0)300 123 1801
www.maggiescentres.org
Open Centre
Interim Centre
In Development
15 at 15 : Maggies is 15 this year
and were celebrating our growth
to 15 centres across the UK.
Centre user photos: Mary McCartney
Centre user stories: Matthew Barnett
Maggie Keswick Jencks Cancer Caring Centres Trust
(Maggies) is a registered charity, No. SC024414