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January 2019 1 January 2019 IAP CHAPTER OF NEURO DEVELOPMENTAL PEDIATRICS Chairperson : Dr Jeeson Unni Hon’Secretary : Dr Leena Srivastava Past Chairperson : Dr Samir Dalwai Past secretary : Dr Chhaya Prasad Joint secretary : Dr Zafar Meenai, : Dr Shambhavi Seth Treasurer : Dr M. Narayanan ADVISORS Dr MKC Nair Dr SS Kamath Dr Abraham K. Paul Dr Pratibha Singhi Dr Nandini Mundkur Dr Shabina Ahmed National coordinator of the TOT program Dr Samir Dalwai National coordinator of the Fellowship program Dr Chhaya Prasad EDITORIAL BOARD Chief Editor : Dr Santhosh Rajagopal Editorial Board : Dr Jyoti Bhatia Dr Anjan Bhattacharya Dr Leena Deshpande Dr Anju Agarwal Dr Arun Prasad Dr Sivaprakasam WEBSITE COMMITTEE Dr Zafar Meenai, Dr Somasundaram, Dr Lata Bhat Dr P Sudhakar, Dr Mahesh Mohonto State co-ordinatorS Armed Forces : Wng Cdr Kawaljit Singh Multani Andhra Pradesh : Dr Hanumantha Rao Assam : Dr Sujit Kumar Chaudhary Bihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata Bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar Haryana : Dr Harsh Bhayana HP : Dr Ashwini Sood Karnataka : Dr M Mahadeviah Kerala : Dr Jacob Roy Madhya Pradesh : Dr Jyotsna Shrivastava Maharashtra : Dr Leena Srivastava Orissa : Dr Mahesh Mohanta Rajasthan : Dr S. Sitaraman Tamil Nadu : Dr A. Somasundaram Telangana : Dr Namratha Rao Uttar Pradesh : Dr Alka Agarwal Inside Editorial 2 Charipersons Message 3 Snippets from the Secretary 4 Journal Scan 6 World Braille Day 8 Obituary 10 Activites 13 Presidents page Dr Santosh Soans - Going Beyond Clinician’s Office – Call of the Time - https://www.indianpediatrics.net/ jan2019/11.pdf - wherein he elaborates of various child health issues and appreciates and beckons pediatricians to be better preachers to preserve child health in our country.

Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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Page 1: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

1

January 2019

IAP chAPter of Neuro develoPmeNtAl PedIAtrIcsChairperson : Dr Jeeson Unni Hon’Secretary : Dr Leena Srivastava Past Chairperson : Dr Samir Dalwai Past secretary : Dr Chhaya PrasadJoint secretary : Dr Zafar Meenai, : Dr Shambhavi Seth Treasurer : Dr M. Narayanan

AdvIsors Dr MKC Nair

Dr SS Kamath Dr Abraham K. Paul Dr Pratibha Singhi

Dr Nandini Mundkur Dr Shabina Ahmed

National coordinator of the tot program Dr Samir Dalwai

National coordinator of the fellowship program Dr Chhaya Prasad

edItorIAl boArdChief Editor : Dr Santhosh Rajagopal Editorial board : Dr Jyoti bhatia Dr Anjan bhattacharya Dr Leena Deshpande Dr Anju Agarwal Dr Arun Prasad Dr Sivaprakasam

WebsIte commIttee Dr Zafar Meenai, Dr Somasundaram, Dr Lata bhat

Dr P Sudhakar, Dr Mahesh MohontoState co-ordinatorS

Armed Forces : Wng Cdr Kawaljit Singh Multani Andhra Pradesh : Dr Hanumantha RaoAssam : Dr Sujit Kumar Chaudhary bihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar Haryana : Dr Harsh bhayana HP : Dr Ashwini Sood Karnataka : Dr M Mahadeviah Kerala : Dr Jacob Roy Madhya Pradesh : Dr Jyotsna Shrivastava Maharashtra : Dr Leena Srivastava Orissa : Dr Mahesh Mohanta Rajasthan : Dr S. Sitaraman Tamil Nadu : Dr A. SomasundaramTelangana : Dr Namratha Rao Uttar Pradesh : Dr Alka Agarwal

Inside

editorial . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2

charipersons message . . . . . . . . . . . . . . . . . . . . . . . . . . 3

snippets from the secretary . . . . . . . . . . . . . . . . . . . . . 4

Journal scan . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6

World braille day . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8

obituary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .10

Activites . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . .13

Presidents page

Dr Santosh Soans - Going Beyond Clinician’s Office – Call of the Time - https://www.indianpediatrics.net/

jan2019/11.pdf - wherein he elaborates of various child health issues and appreciates and beckons pediatricians

to be better preachers to preserve child health in our country.

Page 2: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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setting Agendas

The election season is upon us. In any advanced country health care is one of the important topics that dominate political discussion. Unfortunately in India elections are more about emotively charged issues or corruption. While this is unavoidable and in the latter case even desirable we cant allow important issues like Health and education be relegated to the fine print in a voluminous manifesto.

beggining this year our professional organisations should insist on a before and after progress card on cardinal health indicators both at state and central levels.

Our chapter should whet manifestoes for their commitment to rights of the differently abled and creation of facilities for differently abled children in medical and health sectors.

Agenda setting is a prime function of the civil society. Its time

we stepped up to the plate.

dr . santhosh rajagopal

Chief Editor

Editorial

Page 3: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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Chairperson’s Message

Dear friends,We are completing a year of activities and I presume you have all contributed to the compiling of our Chapter activities for our annual report submitted for the best Speciality branch Award. All of us have worked towards making life that much easier for the differently abled children of our country and I take this opportunity to congratulate each one of you for your dedicated services.I am sure all of you had celebrated the birth anniversary of Loius braille on Jan 4th with awareness of programs for the visually impaired in our society. We have been hoping for a re-look at the No Detention Policy (NDP) and now there is news that the Government is proposing examinations in Std V and Std VIII in the near future. This has been following a a sharp indictment of this policy by The National Achievement Survey (NAS) which stated that due to this the learning outcomes deteriorated as students progressed to high classes. Class X students of state boards were found to be struggling to get even 40% of answers right in maths, social science, science and English, and were faring satisfactorily only in Indian languages. Our concern was that due to NDP were : 1. Lack of a learning environment in schools2. Compromise on programs for early detection of Learning Disorders The NDD Guidelines workshops have been conducted all over the country and we must thank our President Dr Santosh Soans, HSG Dr Remesh Kumar, IAP Executive board 2018, Dr bakul Parekh, Dr Gyanamurthy, Dr Samir Dalwai, Micro Labs and all those involved in the program.There is a proposal that was made at the meeting under Dr Surjeet Singh’s Chairmanship as Director of NCDC to involve IAP and our chapter in particular for formulating a module on Mental Health in children and adolescents. We could start by allotting topics to our members and have a discussion at Pedicon on the way forward.Another activity that is envisaged is the creation of a Training module on `Early Detection of Learning Disabilities` for teachers in schools. The proposed module will be discussed at Pedicon among us before finalising the program.I would like to thank Dr Leena Srivastava, our efficient secretary, all executive committee members, regional and state coordinators exemplary work during the year and I am sure that all of us will continue the good work as long as we have life in ourselves.See you all at Pedicon, Mumbai.Regards,dr . Jeeson c . unni Chairperson IAP Chapter of Neurodevelopmental Pediatrics

Page 4: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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Snippets from the Secretary

The new year has brought Dr Jeeson Unni our Chairperson, myself and our team towards the completion of the first year of our tenure as office bearers of the chapter. We have been fortunate to be on this journey together with so many committed, like minded colleagues on the team working with us with the vision, constant guidance and advice of the seniors like Dr MKC Nair, Dr SS Kamath , Dr Abraham Paul, Dr Nandini Mundkur, Dr Shabina Ahmed, Dr Pratibha Singhi, and others.

Our special thanks of course for support, guidance and encouragement goes out to our IAP President Dr Santosh Soans, President Elect Dr Digant Shastri, HSG Dr Remesh Kumar, IAP Eb 2018 and IAP Action plan Dr bakul Parekh , Dr Gnanamurthy and Micro Labs who helped make the NDD guidelines under the IAP Action plan a great success.

both Dr Jeeson and myself couldn’t have managed so many facets of the activities of the chapter had it not been for so many of our team members some of whom have been mentioned here and so many of the members of the chapter who have been silently and sincerely working towards the cause. We humbly acknowledge the efforts of each and very one of our office bearers including Dr Narayanan , EB members , state coordinators and every member of the chapter in making our work for the growth of the chapter smoother.

It has been a fulfilling year and DPT will soon be a year old with the help of Dr Santhosh Rajagopal the editor. Dr Shambhavi Seth, Dr Anjan bhattacharya, Dr Kawaljeet Singh , Dr Lata bhat have all pitched in to help bring academic support to this e newsletter.

The NDD guidelines under the IAP Action plan with the steering force of Dr Samir Dalwai and hard work of his team of Dr Leena Deshpande, Dr Kawaljeet, Dr Jyoti bhatia have been doing exceptionally well and has travelled across the length and breadth of the country with workshops being conducted at all corners after the initial zonal TOTs. From Jalandhar to Hospet and Erode, Meghalaya to Rajkot to Odisha it has reached out to Pediatricians to create awareness about early identification and intervention of Neuro developmental Disorders.

Page 5: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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Snippets from the Secretary

The IAP Fellowship in Developmental behavioral Pediatrics into its third year under Dr Chhaya Prasad has also been successful in creating young dynamic practitioners in this field. The first pass out fellow topper Dr Shruti Kumar from Dehradun after her fellowship at Bharati Vidyapeeth Pune has taken big strides in the field in her first year of practice. This issue contains a glimpse of her journey.

The website with the efforts of Dr Somasundaram and guidance of our senior member Dr Zafar Meenai has been maintained well and a lot of brainstorming has been added to update it and improve its services in the months to come.

Ranging from experienced seniors like Dr Sitaraman, Dr Suchit Tamboli, Dr beena Koshy, Dr Chitra Shankar to Dr Mahesh Mohanta, Dr Himani Khanna to Dr Aparna Shirodkar , Dr Shruti Kumar, Dr Dinesh Saroj, Dr barkha and many such newer entrants have been actively contributing by making a difference in their respective regions in the field and we invite more and more to work actively and make a difference in the world of our children.

The annual report of the chapter with details of all of the above will be mailed to you all soon.

Awaiting also to see you all at the chapter symposium at the Pedicon and at the AGM. Also request you to block your dates for the National conference at Pune. both the details are available in the upcoming events announcement.

The Pedicon being round the corner hope to meet up with many of you there.

Till then Happy learning friends,

dr leena srivastava

National Secretary

IAP Chapter of Neurodevelopmental Pediatrics

[email protected]

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January 2019

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original article

Two-year neurodevelopmental outcomes of extremely preterm infants treated with early hydrocortisone: treatment effect according to gestational age at birth

• Olivier Baud1,2, Clémence Trousson1, Valérie Biran1,3, Emilie Leroy1, Damir Mohamed4,

Corinne Alberti4 : Archives of Disease in Childhood - Fetal and Neonatal Edition 2018; 104 F1-F1 Published Online First: 13 Dec 2018. doi: 10.1136/archdischild-2018-316625

objective To determine whether early hydrocortisone treatment in extremely preterm infants affects neurodevelopmental outcomes at 2 years of age according to gestational age at birth.

Patients and methods This is an exploratory analysis of neurodevelopmental outcomes by gestational age strata from the PREMILOC trial, in which patients were randomly assigned to receive either placebo or low-dose hydrocortisone and randomisation was stratified by gestational age groups (24–25 and 26–27 weeks of gestation). Neurodevelopmental impairment (NDI) was assessed using a standardised neurological examination and the revised Brunet-Lézine scale at 22 months of corrected age.

results A total of 379 of 406 survivors were evaluated, 96/98 in the gestational age group of 24–25 weeks and 283/308 in the gestational age group of 26–27 weeks. Among surviving infants born at 24–25 weeks, significant improvement in global neurological assessment was observed in the hydrocortisone group compared with the placebo group (P=0.02) with a risk of moderate-to-severe NDI of 2% and 18%, respectively (risk difference 16 (95% CI −28% to −5%)). In contrast, no statistically significant difference between treatment groups was observed in infants born at 26–27 weeks (P=0.95) with a similar risk of moderate-to-severe NDI of 9% in both groups. The incidence of cerebral palsy or other major neurological impairments were found similar between treatment groups in each gestational group.

conclusions In an exploratory analysis of neurodevelopmental outcomes from the PREMILOC trial, early low-dose hydrocortisone was associated with a statistically significant improvement in neurodevelopmental outcomes in infants born at 24 and 25 weeks of gestation.

reviewer’s comments : In PREMILOC trial the incidence of BPD was significantly reduced in Extreme preterm babies (< 28 weeks gestation ) who received early hydrocortisone.We need further research to understand why it led to improved neurodevelopment outcomes only at 24 and 25 weeks gestation and not at 26 – 27 weeks gestation.

Journal ScanDr. Lata Bhat

Developmental Pediatrician, [email protected]

Page 7: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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Cognitive outcome in childhood of birth weight discordant monochorionic twins: the long-term

effects of fetal growth restrictionravi shankar swamy1,2,3, helen mcconachie4, Jane Ng5, Judith rankin4, murthy Korada6, stephen sturgiss7, Nicholas d embleton4,8 Archives of disease in childhood - fetal and Neonatal edition 2018; 103 f502-f503 Published online first: 09 mar 2018 . doi: 10 .1136/archdischild-2017-314572

Aim Intrauterine growth restriction (IUGR) is associated with poorer outcomes in later life. We used a monochorionic twin model with IUGR in one twin to determine its impact on growth and neurocognitive outcomes.

methods Monochorionic twins with ≥20% birth weight discordance born in the north of England were eligible. Cognitive function was assessed using the british Ability Scales. The Strength and Difficulties Questionnaire was used to identify behavioural problems. Auxological measurements were collected. Generalised estimating equations were used to determine the effects of birth weight on cognition.

results Fifty-one monochorionic twin pairs were assessed at a mean age of 6.3 years. Mean birth weight difference was 664 g at a mean gestation of 34.7 weeks. The lighter twin had a General Conceptual Ability (GCA) score that was three points lower (TwinL −105.4 vs TwinH −108.4, 95% CI −0.9 to −5.0), and there was a significant positive association (B 0.59) of within-pair birth weight differences and GCA scores. Mathematics and memory skills showed the largest differences. The lighter twin at school age was shorter (mean difference 2.1 cm±0.7) and lighter (mean difference 1.9 kg±0.6). Equal numbers of lighter and heavier twins were reported to have behavioural issues.

conclusions In a monochorionic twin cohort, fetal growth restriction results in lower neurocognitive scores in early childhood, and there remain significant differences in size. Longer term follow-up will be required to determine whether growth or cognitive differences persist in later child or adulthood, and whether there are any associated longer term metabolic sequelae.

reviewer’s comments : There are some Indian studies which have shown that IUGR leads to lower neurocognitive scores in early childhood, but this study is unique because it has been done in monochorionic twin cohort which minimizes the genetic influence on neurocognitive score.

Journal Scan

Page 8: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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We celebrate World braille Day every year on January 4th because it’s Louis braille’s birthday. He’s the inventor of braille! Louis was born in 1809 in France and became blind after a childhood accident. but, he quickly mastered his new way of living. Despite not being able to see at all, he excelled in his education and received scholarship to France’s Royal Institute for blind Youth.

During his studies, Louis braille, inspired by the military cryptography of Charles barbier of the French Army which enabled night writing, he developed a system of tactile code that could allow the blind to read and write quickly and efficiently. Braille presented the results of his hard work to his peers for the first time in 1824 when he was just fifteen years f age. In 1829, he published his first book about the system he had created, called “Method of Writing Words, Music, and Plain Songs by Means of Dots, for Use by the blind and Arranged for Them”. Unfortunately, Louis braille didn’t get to see just how helpful his invention became. He died in 1852; two years before his alma mater, France’s Royal Institute for the Blind Youth, adopted a braille curriculum. By 1916, schools around the United States taught braille to their students with blindness. Adjusted over time, braille is now easier to read and used all over the world!

The braille system works by representing the alphabet letters (and numbers) in a series of 6 dots paired up in 3 rows. The simplicity of his idea allowed books to start being produced on a large scale in a format that thousands of blind people can read by running their fingertips over the dots. Thanks to this, blind students have the opportunity to be educated alongside their peers as well as read for pleasure just as easily as any seeing person can.

World Braille Day Let us celebrate the discovery of Louis Braille

Page 9: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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World braille Day is a reminder of the importance of accessibility and independence for people who are blind or visually impaired. Today’s reality is that many establishments such as restaurants, banks, and hospitals don’t offer braille versions of their print materials like menus, statements, and bills. because of this, people with blindness or visual impairments often don’t have the freedom to choose a meal on their own or keep their finances private.

Till 2016 braille books could not be legally shared across borders, and the visually impaired could not read any books that are not produced within their own country. The Marrakesh Treaty is the name of an international agreement finalized in June 2013 that would allow copyright exceptions for published works to be made widely available in accessible formats. The implementation of the Marrakesh Treaty will allow blindness organizations to share their resources with other organizations in developing countries that may not have the resources to produce books for their blind citizens.

India was the first country to ratify the Marrakesh Treaty to facilitate access to published works for persons who are visually impaired, or otherwise print disabled. The Treaty was adopted by 79 member countries of the World Intellectual Property Organisation (WIPO) on June 27, 2013, and India ratified it on June 24 2016.

World braille Day spreads awareness about braille and other accessible forms of communication. Everyone deserves (and is legally entitled to) the same accommodations and service, regardless of ability. On World braille Day, let’s remember that and do our part to make our workplaces more accessible for everyone.

We need to ensure braille on objects one uses every day — signs, ATMs, elevators, calculators, and more.

braille represents competency, independence, and equality.’

World Braille Day

Page 10: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

January 2019

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I woke up to the phone ringing. It was Karan Shandilya. Knowing Anand’s medical history, I felt a chill as I took the call. I heard a distraught Karan say, “Doctor, my dad is no more. He collapsed after his morning walk.” It was eight am on New Years day.

I reached Anand’s house in fifteen minutes. As usual, I was late and he was waiting. This time he was in an ambulance and I didn’t have to make my usual excuses. I jumped in and saw the medic trying CPR. As the ambulance took off towards Holy Spirit Hospital, I joined in and tried to resuscitate him. I could imagine him telling me, “No Samir, this is not going to help. Just relax and take it easy.”

I met Anand Shandilya a couple of years into my practice at a PALS course. We were both delegates; he as usual, thoroughly prepared; I as usual, unprepared. I think Tushar Maniar was also doing this course. I remember Anand always saying how this was one of the two game changers in his academic life. He went on to become perhaps the most loved PALS instructor traveling the country doing the two things that define him in public memory- teaching and making friends.

Anand was the real life “Anand” from Hrishikesh Mukherjee’s film. One thought he was looking to make friends; he was really looking to find the best in others. There was not one person

he grudged, though there were some who did enough to trouble him. He remembered (he was not naïve to not understand), but he forgave. He believed that life is too short to hold grudges. Whenever I go for a talk, and I find the atmosphere a little stiff, I just say “Do you know Anand Shandilya?”, and everyone breaks into a smile. There can be a real contest for the “I am Anand Shandilya’s

Best Friend Award” and you would find everyone from PG Residents to his batch mates, not to mention pediatricians from Kutch to Kohima, lining up confidently.

His other life changing moment came when he met Dr Amdekar while they were traveling together for a talk. I remember him telling me how he was completely taken up by Sir and he started attending Sir’s Thursday clinics at Sion.

Anand’s life revolved around Dr Amdekar. He worshipped every word Sir said spending hours analysing whatever he heard Sir say. He had this habit of noting things to ask Sir (other than academics) and would relish Sir’s explanation. Sir’s golden touch to Anand’s life helped Anand move into the orbit he had assumed for the last few years. Together with Rajesh Chokhani, they took amazing academics to the entire country travelling, to quote Dr Amdekar, “..30 weekends a year”!

Obituary

Dr Anand Shandilya, Mumbai

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He read and read and learned and learned. He loved sending references to Dr Amdekar and Dr Raju Khubchandani and then calling up and learning about that case.

Anand loved his patients; he genuinely saw little children as friends rather than patients. He cared, which is why he cured. He would follow up every child. Every time he referred a child, he would call and say, “Listen, this is such an amazingly nice family. Please help them.” A day before he passed, I saw a child for follow up who he had referred three years ago, so I took a selfie of the two of us and sent him with a caption, “Hello Anand Sir”. He replied, instantly (and I am copy pasting from his message on my whatsapp) “Hello Aayushi Kar and Samir Sir”. And these were his last words to me.

Once traveling home from dinner at Deepak Ugra’s house, Anand told me how he had suffered a huge health scare at a time when he was a young father and how he resolved to change his life style. He underwent the biggest metamorphosis one could imagine and transformed his personal and professional life. After Dr Amdekar, he was one of the first to begin group practice so he could have time off for himself and his family.

The thing that really set Anand apart from all of us was his simplicity and honesty. Anand never lied, never concealed, never schemed. He believed all these petty things hurt our self as much as others. If he did not like something, he would go and say it in the most direct but polite non-manipulative manner. And his humble way of putting things never failed to make the other person see the point. Anand never hurt anyone- simply because he did not grudge anyone. He always managed to see the person apart from the behaviour.

Anand had enormous amount of love and patience in his heart- for everyone. From his man friday, Munna, to the exam going student at the PG clinic, to the uneducated simple patient in his clinic to the most pesky irritating delegate in a workshop, Anand never lost his cool. His way of analysing life’s situations was as brilliant as his analysis of a case. His ability to break up the most complex condition into a simple take home message was his most astounding quality. He was the master of humour in brevity - a funny photograph was enough to sum up the most complex topic.

I have been the person who irritated him the most; because he would let me get away with it. He would love listening to new “dhinchak” numbers; he said they were so full of life and upbeat. I would chide him and make him listen to my versions of glum sorrowful urdu poetry or old sad songs. He would threaten to jump off the car if I didn’t stop. So I would then address the same to Munna. Munna dared not laugh and it was funny to see Anand try to ignore us. I was always late; he was so punctual that you could set your watch by him. At 9 am sharp, when there weren’t enough delegates in the hall, he would be after me, “Abbey, Chalu kar! Public aayega. Tu time dekh!” I loved to irritate him by pulling off the many pens from his pocket. “Arre, pen ki dukaan!”, I would say. “Tereko touch bhi nahin karne ko milega, tu idhar dekh bhi mat!” “bhai, mera presentation dekh na”, i would plead. “Tereko bol ke koi faida hai kya? Itna bada pakaoo presentation kisko sunne ka hai? Isko cut kar!” That goes for this write up too. I’m sure he wouldn’t have read such a long one.

Anand started preparing for his presentations the moment he accepted the invitation. As humourous as they were, Anand took his

Obituary

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January 2019

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speeches very seriously and toiled endlessly on them. He discovered the Précis format and used it tellingly in his talks. Last Saturday at the Pedicon mega meeting, he made it a point to enquire that the audio visual system supported this format.

Wherever Anand went, laughter followed. And flowed. There could not be a serious gloomy room if Anand was present in it. Many of you may remember his “Dil pe mat le yaar, kidney pe ley..!” and “Hataa saawan ki ghata” were his own ‘Anand’ style of saying ‘que sera sera’! His sense of timing was fabulous. Once I opened my laptop to show him something and there was a ‘thin’ layer of dust on it. “Have you powdered your laptop?”, he remarked! Deepti Kanade, my colleague and psychologist at New Horizons, was his friend too. This is about ten years back- Deepti was very thin and petite. She was carrying one of those very tiny ’Aesus’ laptops, so Anand looks at her and says, “Tumhare Centre mein mg/kg ke hisaab se laptop lete hain kyaa?” His imitation of “baburao Ganpatrao Apte” (Paresh Rawal in Andaz Apna Apna) could make you crack up in the midst of the most serious conversation.

And given my proclivity to living foolishly, I had more than ample opportunity for the latter. For anything that bothered you, in personal or professional life, you had to make a call and by the time the call ended, you were sorted. I remember one of my last such conversations when I called him for help in a spell of sadness and he asked

Obituary

me, “What is your problem?” I had an unending list. And he kept asking me the same question, “Yes but what is your problem?” Finally, I couldn’t take it anymore and said, ”What the hell do you mean- ‘what is your problem’? What have I been telling you all this time?” He replied, as calm as always. “Yes Samir, but you haven’t heard my full question,” What is your problem now? Right now?”

I was stunned. He was right. My heart was beating fine, I could breathe fine, I could walk, talk. I had money in my pocket, food on the table, people who loved me. The rest was perspective.

Today, Anand is no longer with us physically. In spirit, Anand is always with us.

And that is because Anand lived his life by making it a message. Of unconditional love, of integrity, of humility, of understanding the other person’s pain, of trying to make everyone smile, of being rational and simple and free of prejudice. He epitomised “Zindagi badi honi chahiye, lambi nahin!“ We were fortunate to have this angel in our midst for so many years. Heaven has him back now.

I love you, my friend! I don’t believe you are not with me. I will never accept you are no more. You have become a part of my DNA. I am grateful for your presence in my life.

samir hasan dalwai

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the IcANclcoN was held on 4-6th January at Guwahati organised by dr shabina Ahmed and her team . dr chhaya Prasad spoke on sexual abuse in children with mental disabilities, how to assess, how to communicate and counsel them . the conference saw many pediatricians esp developmental Pediatricians aware and working for the cause .

ICANCLCON Guwahati

Teachers training programme at Ahmednagar

dr suchit tamboli conducted 2nd teachers training programme at Ahmednagar .160 teachers participated

In this programme along with opinion makers . It was interesting and interactive program .teachers were trained about how to detect developmental and behavioral disorders like Adhd, l .d ., slow learner, Autism , Anxiety , depression, Internet and mobile addiction etc . early and what class room modifications can be done to bring best out of them. Function was graced by dr Ashok rai and ex central IAP President dr Pramod Jog .

Page 14: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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christmas celebration in social skill group program

dr Shambhavi Seth attended a five day workshop on autism - traditional therapies and expressive arts . A totally enriching experience with a comprehensive program under Adelphi university with a good exposure to various therapies- dance movement, music , play and art which will of course form a good adjunct to the conventional evidence based intervention plan .

Bright Beginnings - Delhi

Five day Workshop on Autism

Page 15: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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dr samir dalwai addressed pediatrician colleagues in Goa on 9th december on counseling of parents .

dr chhaya Prasad conducted disability camp in Govt schools under the crc scheme conducted by her team AshA . they were able to counsel parents on the Intervention plans for physical therapies, education behaviours and social skills, Parenting etc

dr leena deshpande during a workshop for parents and teachers had a pleasant moment when a grandfather came forward to bless her for the work being done . A pat on the back for all professionals in this field. these are the moments which make it all worth it.

Page 16: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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Awareness on neurodevelopment and assessment is been increasing in INDIA. As a part of this, we in our department of paediatrics conduct various activities and projects.

Dr. Mrs. Jyotsna Shrivastav, professor and Head of the department, Department of paediatrics, Gandhi medical college, bhopal had given a presentation- titled “Newer advances and management of Autism” on November 11, 2018 in 49th MPPEDICON at Bandavgarh, Rewa.

Dr. Akshara.E.S 3rd year postgraduate student had her oral paper presentation on “Physical growth and neuromotor development of preterm babies” in the 49th MPPEDICON 2018 on 12th November 2018 at bandavgarh, Rewa.

Dr Akshara. E. S., 3rd year postgraduate student had her poster presentation titled “ Neurodevelopmental outcome of preterm (32 – 36 week) babies” in The National conference

of IAP neurology chapter 18th NEUROPEDICON on September 9, 2018 at Gurgaon, New Delhi co-author were Dr Poorva Gohiya, Associate Professor and DR Jyotsna Shrivastava, Professor & Head of the Department.

Undergraduate students of Final MbbS part II were sensitised on Autism spectrum disorders on November 26, 2018 at Gandhi Medical college, bhopal by Dr. Jyotsna Shrivastava, Professor and Head, Department of Pediatrics.

Postgraduate students are send for one week in rotation to Composite Regional Centre, bhopal for sensitisation on rehabilitation facilities and interventions in developmental delay and autism.

A camp was organised at Harda (MP) with the help of RBSK on 9.1.2019, for identification of Duchenne’s Muscular dystrophy cases. Dr. barti Choubey, Associate Professor, Dr.Neha Shrivastav, Assisstant Professor, DR.A.S.Meena & Dr.Gourav Gupta, Medical officers attended the camp and identified 11cases of DMD.

UPDATE OF ACTIVITIES ON NEURODEVELOPMENT

IN DEPARTMENT OF PEDIATRICS, GMC BHOPAL

Page 17: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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CP Day celebration with street play

IDPA 2017 Poster

Gold Medal Felicitation at Pedicon , Nagpur

Autism Parent’s training workshop at SGRR Dehradun

Talk in IAP Dehradun CME

Talk in CME at IAPLucknow

Poster at genetics workshop SGPGI

Lucknow

Poster by PG under meTalk in dept of neonatology SGPGI

Lucknow

DR SHRUTI KUMAR-EXPERIENCES AFTER FELLOWSHIP in DBP Have started Child Developmental Clinic at DehradunEnrolled 750 Patients in last 1 year

Webpage at hospital website

dr Shruti Kumar, the topper of the first year of the iaP Fellowship in

developmental behavioral Pediatrics’ career graph in the year after her

passing out from bharati vidyapeeth medical college and hospital Pune

under dr leena srivastava .

Page 18: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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children’s day celebration | christmas celebration | comhAd conference

Events in Centre for Child Development, Bangalore

Page 19: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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Date : 22nd December 2018, 2:30 PM to 7:00 PM Venue : NAZARETH HOSPITAL, Shillong

Facuty : Dr. Samir Dalwai , Mumbai. Dr. Rekha borkotoky, Guwahati, Dr. Santanu Deb , Shillong

Delegates : Post graduate students of Pediatrics from ASSAM and MEGHALAYA, Senior consultants and Junior consultants and a few medical officers, Special Educators and Psychologists from Shillong, Obs of IAP Meghalaya State branch were all present.

Inaugural program started with Welcome address by Dr. Sabrina Yesmin , President IAP Meghalaya, followed by introduction and felicitation of Faculties by Dr.palash Ranjan Gogoi. The IAP Meghalaya State annual journal namely “Cherry sblossoms” was released on the occasion by Lead Faculty DR. Samir Dalwai.

The entire module was conducted in a very interactive manner by the faculty and there was very good participation of the delegates in the discussions. All were in praise of the module design and positive feedback was received about the entire program.

All the topics generated a lot of interest.

Followed by introduction to the NDD module by Dr. Samir Dalwai

NDD Module at Shillong, Meghalaya

Page 20: Presidents pagebihar : Dr Anil Kumar Tiwari Dadra Nagar : Dr Sunil Datt P Daru Haveli Silvassa Delhi /NCR : Dr Lata bhat Goa : Dr Aparna Shirodkar Gujarat : Dr Swati Vinchurkar

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Workshops on Neuro Developmental Disorders - Rajkot - 30.12.2018

Balasore(23.12.2019) - Sambalpur, Odisha (10.1.2019)

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UPCOMING EVENTS

Dr Zafar Meenai at the International conference of Commonwealth Association for disability and Health (COMHAD-2018) - 8-9December, Bangalore spoke on Inclusion or integration- which is the better approach.