Patient Engagement & Empowerment
Healthcare Information System44-F Efrain Uh (吳艾凡 )
Instructor: 王復中 420029019
December 16, 2016
1“Engaged Patients Are Healthier Patients”
Figure 1. Rating of the usefulness of the online health information among those who accessed their health information
online, 2013 (n=384).
Source: Patel et al., 2014.
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Today’s ContentPatient-facing Technologies:
1. Personal Health Records (PHRs) Overview2. OpenNotes3. PatientsLikeMe4. Blue Button5. Home Telehealth
-Proteus Digital Health-AliveCor ECG Monitor-“Behavioral Imaging”
-Ginger.io
6. Challenges in Using Technology for Patient Engagement and Empowerment
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Are there different types of personal health records (PHRs)?
• Standalone Systems: not tied to any healthcare system.•
- Microsoft’s Health Vault - WebMD Health Manager
• Tethered/Connected Systems: tied into a healthcare system.
- My HealtheVet PHR from the VA
• Networked Systems : access data from multiple locations.
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PHR Adoption
• Access: connect to Internet by users;
• Awareness: knowledge about the PHR tools and their values;
• Usability: easy-of-use;
• eHealth literacy: computer literacy (how), effective usage of the system (what for);
• Meaningful use: favorable user perception;
• Clinical integration: PHR should be considered as a source of information for healthcare professionals.
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OpenNotes is like a New Medicine
• Its goal is to help people manage health and illness more effectively.
• It can have side effects and may hurt some patients.
• Clinicians and patients will need to learn how to use it well.
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Conclusion• Patient-facing technologies, such as personal health records, patient portals,
and mobile health apps, are being introduced at rapid rates.
• Despite a proliferation of patient-facing health apps, few have been shown to produce health improvements and many are barely used.
• Promoting patient engagement with health technology such as portals is challenging, and rapid expansion of portals could exacerbate existing healthcare disparities if only well-resourced individuals use these websites.
• Nevertheless and frankly, engagement matters more than ever. It's just as important as cybersecurity, interoperability and innovation.
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References• Braunstein, M. L. (2015). Practitioner's Guide to Health Informatics. Springer International Publishing.
• Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., ... & Ross, S. E. (2012). Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead. Annals of internal medicine, 157(7), 461-470.
• Demiris, G. (2016). Consumer Health Informatics: Past, Present, and Future of a Rapidly Evolving Domain. Yearbook of medical informatics, 25(Suppl. 1).
• Detmer, D., Bloomrosen, M., Raymond, B., & Tang, P. (2008). Integrated personal health records: transformative tools for consumer-centric care. BMC medical informatics and decision making, 8(1), 1.
• Guest, J. A., & Quincy, L. (2013). Consumers gaining ground in health care. JAMA, 310(18), 1939-1940.
• Patel, V., Barker, W., & Siminerio, E. (2014). Individuals’ access and use of their online medical record nationwide. ONC Data Brief, (20).
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References• Palumbo, R., Palumbo, R., Annarumma, C., Annarumma, C., Adinolfi, P., Adinolfi, P., ... & Musella,
M. (2016). The missing link to patient engagement in Italy: The role of health literacy in enabling patients. Journal of Health Organization and Management, 30(8), 1183-1203.
• Xerox. (2014). Annual Xerox EHR survey: Americans open to viewing test results, handling healthcare online. Available from http:// news. xerox. com/ news/ Xerox-EHR-survey-finds-Americans-open-to-online-records Accessed on: November 2, 2016.
• Walker, J., Darer, J. D., Elmore, J. G., & Delbanco, T. (2014). The road toward fully transparent medical records. New England Journal of Medicine, 370(1), 6-8.
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