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Patient Engagement & Empowerment
Healthcare Information System44-F Efrain Uh (吳艾凡 )
Instructor: 王復中 420029019
December 16, 2016
1“Engaged Patients Are Healthier Patients”
Source: Xerox, 2014.
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Figure 1. Rating of the usefulness of the online health information among those who accessed their health information
online, 2013 (n=384).
Source: Patel et al., 2014.
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Today’s ContentPatient-facing Technologies:
1. Personal Health Records (PHRs) Overview2. OpenNotes3. PatientsLikeMe4. Blue Button5. Home Telehealth
-Proteus Digital Health-AliveCor ECG Monitor-“Behavioral Imaging”
-Ginger.io
6. Challenges in Using Technology for Patient Engagement and Empowerment
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1. Personal Health Records (PHRs)
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Personal Health Records (PHRs)
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Are there different types of personal health records (PHRs)?
• Standalone Systems: not tied to any healthcare system.•
- Microsoft’s Health Vault - WebMD Health Manager
• Tethered/Connected Systems: tied into a healthcare system.
- My HealtheVet PHR from the VA
• Networked Systems : access data from multiple locations.
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Attributes of an Ideal PHR
Source: Detmer et al., 2008.
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PHR Adoption
• Access: connect to Internet by users;
• Awareness: knowledge about the PHR tools and their values;
• Usability: easy-of-use;
• eHealth literacy: computer literacy (how), effective usage of the system (what for);
• Meaningful use: favorable user perception;
• Clinical integration: PHR should be considered as a source of information for healthcare professionals.
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2. OpenNotes
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www.myopennotes.org
Would OpenNotes help patients become more engaged in their care?
Source: Delbanco et al., 2012.
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Source: Walker et al., 2014.
Source: Guest & Quincy, 2013.
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OpenNotes is like a New Medicine
• Its goal is to help people manage health and illness more effectively.
• It can have side effects and may hurt some patients.
• Clinicians and patients will need to learn how to use it well.
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3. PatientsLikeMe
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4. BlueButton
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Home Telehealth
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5. Proteus Digital Health
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How does Proteus Work?
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6. AliveCor ECG Monitor
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7. Computational Behavior Science or “Behavioral Imaging”
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8. Ginger.io
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Mobile Medical Applications & FDA
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Medical Device Data Systems (MDDS) & FDA
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Challenges in Using Technology for Patient Engagement &
Empowerment
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Challenge #1
• Usabililty: Elderly patients
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Challenge #2
• Reliable Analytic & Visualization Tools are of critical importance.
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Challenge #3
• Data privacy and security.
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Challenge #4
• “Data Silos”
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Continua Health Alliance & Open mHealth
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Challenge #5
• Health literacy
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Source: Levin, 2011; Demiris, 2016; Palumbo et al., 2016.
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Conclusion• Patient-facing technologies, such as personal health records, patient portals,
and mobile health apps, are being introduced at rapid rates.
• Despite a proliferation of patient-facing health apps, few have been shown to produce health improvements and many are barely used.
• Promoting patient engagement with health technology such as portals is challenging, and rapid expansion of portals could exacerbate existing healthcare disparities if only well-resourced individuals use these websites.
• Nevertheless and frankly, engagement matters more than ever. It's just as important as cybersecurity, interoperability and innovation.
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References• Braunstein, M. L. (2015). Practitioner's Guide to Health Informatics. Springer International Publishing.
• Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., ... & Ross, S. E. (2012). Inviting patients to read their doctors' notes: a quasi-experimental study and a look ahead. Annals of internal medicine, 157(7), 461-470.
• Demiris, G. (2016). Consumer Health Informatics: Past, Present, and Future of a Rapidly Evolving Domain. Yearbook of medical informatics, 25(Suppl. 1).
• Detmer, D., Bloomrosen, M., Raymond, B., & Tang, P. (2008). Integrated personal health records: transformative tools for consumer-centric care. BMC medical informatics and decision making, 8(1), 1.
• Guest, J. A., & Quincy, L. (2013). Consumers gaining ground in health care. JAMA, 310(18), 1939-1940.
• Patel, V., Barker, W., & Siminerio, E. (2014). Individuals’ access and use of their online medical record nationwide. ONC Data Brief, (20).
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References• Palumbo, R., Palumbo, R., Annarumma, C., Annarumma, C., Adinolfi, P., Adinolfi, P., ... & Musella,
M. (2016). The missing link to patient engagement in Italy: The role of health literacy in enabling patients. Journal of Health Organization and Management, 30(8), 1183-1203.
• Xerox. (2014). Annual Xerox EHR survey: Americans open to viewing test results, handling healthcare online. Available from http:// news. xerox. com/ news/ Xerox-EHR-survey-finds-Americans-open-to-online-records Accessed on: November 2, 2016.
• Walker, J., Darer, J. D., Elmore, J. G., & Delbanco, T. (2014). The road toward fully transparent medical records. New England Journal of Medicine, 370(1), 6-8.
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