De castro h2020_eahil_2014_sparc

SPARC Workshop at EAHIL ● Rome, 10 June 2014 1

OA IN HORIZON 2020 and the health sector

Paola De Castro

Direttore del Settore Attività Editoriali,

Istituto Superiore di Sanità

Main points

Responsibilities in sharing information and data


The EC and Horizon 2020

Some considerationsfrom the health sector

• E-research, E-science

• Global collaboration

• Next generation infrastructure

TRANPARENCY

INTEGRITY

INNOVATION

SHARING

PARTICIPATION

3

SPARC Workshop at EAHIL ● Rome, 10 June 2014

Information dissemination including both

publication and data is strictly associated with research activity in the process of creating knowledge on the basis of existing knowledge.

RESPONSIBILITY

Researchers and health operators must assume such

responsibility as part of their commitment (social implication)

Open access to research information and data is therefore

a moral imperative and is recognised as such by many research performing and funding institutions


Global health has no borders

Access to health information

is critically important for all human beings,

it often makes the difference between like and death,

and as such is an important component of human rights

5

Shocking data on child mortalityto reflect on the role of health ingormation

Each year, around 9 million children

die from preventable and treatable illnesses

Health knowledge can often mean the difference between life and death

The handbook produced by UNICEF, WHO, UNESCO provides vital messages and information for mothers, fathers, other family members and caregivers and communities

Example

6

IMPACT OF INFORMATION IN PUBLIC HEALTH Scientists (progress of science)

Policy makers (regulations, fundings)

General public (behavioural change)

Social value of knowledge, Scientific communicatin as a civil commitmentScientists, in their role of knowledge gatekeepers, should play an active role in public discussions on science

Trust in scientists role • Spread knowledge• Face challanges

HEALTH, INFORMATION, HUMAN RIGHTS

Universal Declaration on Human rights, 1948, Article 25.

Everyone has the right to a standard of living adequate for the health and well-being of himself and of his family

Definition of Health World Health Organization, 1948

Health is a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity

Access to information Is an essential component of human rightsToday people still die for lack of information

Open Access= equality in health

8

Right of information

According to the International Human Rights Law, governments have the legal obligation to ensure that all citizens and health operators have access to the appropriate health information they need to protect their health and the health of the other people

9

The European Commission and the new funding scheme

HORIZON 2020



What is Open Access (OA) for EC?

What OA is NOT

•  Not an obligation to publish

•  OA publications go through the same peer review process11

OA = online access at no charge to the user •  to peer-reviewed scientific publications

•  to research data

Two main OA publishing business models •  Self-archiving: deposit of manuscripts & immediate/delayed OA

provided by author ("Green OA")

•  OA publishing: costs covered & immediate OA provided by

publisher ("Gold OA")


Open access to research publications reaching 'tipping point'

Free availability of the majority of articles has been reached in the fields of general science and technology,

biomedical research, biology and mathematics and statistics.

European Commission Press Release - IP/13/786 21/08/2013

The global shift towards making research findings available

free of charge for readers was confirmed in a study funded by the European Commission.

This research suggests that OA is reaching the tipping point, with around 50% of scientific papers published in 2011 now available for free. … …


Guide to Open Access to Publications and the Open Research Data Pilot in Horizon 2020

From EC (Jarkko SIREN) presentation at the ConferenceHarmonizing Current OA practices with H2020 GuidelinesPisa, 08 April 2014


Why OA is relevant for EC

improving efficiency, quality and impact of publicly-funded research for society and innovation in Europe.

Open access to publications: a general principle in H2020.

Both Green and Gold open access models are promoted.

Depositing underlying data is encouraged.

Open access to data: a pilot in H2020 will test and monitor analyse experiences.

Open access policy is not a goal in itself, but an element in promoting forward-looking digital practices for future research, education and innovation





• Energy;• Environment;

• Health; • ITC• Research Infrastructures • Science in Society;• Socio-economic Sciences


"This pilot is part of our commitment to openness in Horizon 2020. I look forward to seeing the first results, which will be used to help set the course for the future."

Neelie Kroes, Vice-President of the European Commission for the Digital Agenda

Commissioner Máire Geoghegan-Quinn, Research and InnovationH2020

"We know that sharing and re-using research data holds huge potential for science, society and the economy. This Pilot is an opportunity to see how different disciplines share data in practice and to understand remaining obstacles."

About HORIZON 2020 and the Pilot on Open data



NEW


The Commission recognises that research data is as important as publications.




Questions?


• Regulation establishing Horizon 2020 (article 18)

• Specific Programme (preamble 1.3)

• Rules for Participation (article 43)

• Work Programme 2014-15 (Introduction 1.5 and relevant areas)

• Model Grant Agreement (articles 6.2.D.3, 29.2 and 29.3)

• Annotated Model Grant Agreement (reference to Guidelines below)

• Guidelines on OA to Scientific Publications and Research Data in

Horizon 2020

• Guidelines on Data Management in Horizon 2020

OA in Horizon 2020: where to look

Source for all documents: Participant Portal (reference documents)http://ec.europa.eu/research/participants/portal/desktop/en/home.html

Model Grant Agreement, pg. 61

28

HEALTH SCIENCES. Where is the source of data?

Governmental research bodies NIH

INSERM

ISS

+++

Academia

Research councils

Industry

and others

Publications as a reference value

MEDLINE

ISI

DOAJ

ROAR

+ + +

altmetricsSPARC Workshop at EAHIL ● Rome, 10 June 2014

How to evaluate impactfor science and society?


Articles in MEDLINE

YEARS 2011 % 2012 % 2013 %

Total no. articles 954.272953.43

71.032.29

0

full text available 26137 93,6 27575 94,8 30850 94,1

full text free 6211 22,2 7377 25,3 7658 23,4

Necessary to reduce the gap between full text available and full text free

30


Most represented countries

Disciplines

99

31


Publication fees

9

no charges67%

conditional 5%

charges26%

no info2%

How many journals in the worldrequire fees to publish?

no charges87%

conditional 2%

charges10%

no info1%

How many journals in Italy require fees to publish?

No fee67% total87% in Italy


Some considerations on ISS

….as a reserch institute for public healthproducer and publisher of medical literature

Established 1934Total staff

1800Researchers 900Publications 1800


All ISS publications are free online on ISS website in PDF, since 2000

The journal Annali is indexed in ISI and more recentlyin SciELO (producing HTML using the ISI IF formula

NEWSSciELO Citation Index

in WoS


Digital archive Dspace ISS >34.000

Title, Author, Date

Publication Type

MESH terms

Communities(9)

Major awareness towards Open data

High potential, BUT…

Prudent data sharing Training courses

Empowerment

Direct contacts with authors

“Mediated” deposit

35

Databases and registers in ISS website


Free access databases

Reserved access Databases

Nazional registries

What about metadata?


Steps towards OA at ISS

2006 Signature of the Berlin Declaration International Conference to present di presentazione del D-Space ISS

2007 Signature of the Petition to the european Commission in support of OA to publicly funded research( http://www.ec-petition.eu/)

2008, realease of the institutional policy http://www.iss.it/binary/sae4/cont/policy_ISS.jpg

2009-2014 Participation in EU funded projects in support of OA

(NECOBELAC, MEDOANET)

?

http://www.ec-petition.eu/

http://www.ec-petition.eu/

http://www.iss.it/binary/sae4/cont/policy_ISS.jpg




The most populated repository in Italy is in Medicine (ISS)

ROARREGISTRY OF OA REPOSITORIES

Long way towards open data

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NECOBELAC PROJECTFP7 coordinated by ISS

Promote OA for public health in Europe e Latin America (2009-2012)

Promote training in public health institutions (>50 courses)

network > 200 institutions

training support material (topic maps semantic web ) in 4 lunguages


After NECOBELACOA training and advocacy + Open DataOA topics is included in research activity

Objective and results


OA topics in research activitiesSome examples after NECOBELACin Latin America and Africa

CASA (AIDS)E-learning platform in scientific communication

Asbestos project


ECDL Health Doctowards a European patent for scientific information and documentation

Pilot course, Rome, 4,5,12,19 marzo 2014

biomedical databases,

research evaluation parameters,

scientific writing,

open access publishing,

websites assessment,

tools for patient education and empowerment,

Web 2.0 applications.

accesso al documento originale e all’informazione a testo completo

Certify skills on :

Focus on skills needed for managing scientific informationand create awareness on OA

Results of the pilot course will be presented at EAHIL 2014

The heart of the ECDL Project is a Syllabus summarising the basic competences health professionals should have to get the diploma ECDL HealthDoc

1 Sources of health information

2 Access to full-text information

3 Web information quality

4 Research evaluation

5 EBM documentation

6 Scientific writing

7 Health information for citizens and patients 8 Web 2.0


First results on a survey on JCR/DOAJ journals, 2010-2012

How many DOAJ are in JCR?

20102011

2012

Riviste JCRRiviste DOAJ

8336

8073

8471

9,69 %10,32 %

10,95 %

ISS journals All JCR jounals

E. Poltronieri, C. Mancini, 2014, unpublished

43

Italian translation di E. Poltronieri, A. De Robbio, P. Gargiulo, P. De Castro


To support OA to research publications and data


ECRAN Project

European Communication on Research Awareness Needs

The ECRAN Project aims to make understanding clinical trials - a relevant element of medical research - easy, and tells you all about taking part in them.

• Awareness• Inclusion• Participation• Sharing

Involve all stakeholders

http://www.ecranproject.eu/en/node/1


DNA databanks

Among the pioneers of data sharing Example of the advantages of being open and sharing for all stakeholders


SINIACASistema Informativo Nazionale Incidenti di Ambienti di Civile Abitazione

National informative system on home injuries

• First AID

• Police

National statictics (open)

Minstry of HealthIDB - Injury Data Base

(Europe)

Search per country

Compare data

Example of integration of different local systems


EC public consultation on research data

• How can we define research data and what types of research data should be open?• When and how does openness need to be limited?• How should the issue of data re-use be addressed?• Where should research data be stored and made accessible?• How can we enhance data awareness and a culture of sharing?

LEAD QUESTIONS

Bruxelles, July 2, 2013

Esempio dell’atteggiamento dei ricecatoritratto dal gruppo BRIF


Position of the Editorial Subgroup of the project

BRIF (BIORESOURCE RESEARCH IMPACT FACTOR) agreed upon during the Workshop on Standardization of bioresources citation. ISS, Rome, June 21, 2013

It is important to create awareness and trust on the use of open bioresources. The EC should create mechanisms and incentives that facilitate the culture of sharing through ad hoc recommendations and the inclusion of specific clauses on open research data in their funding schemes. Technical issues about quality, maintenance and long-term preservation of open data should take into consideration the requirements of the different stakeholders. The EC should consider funding measures to create and test tools for implementing such mechanisms.

There is general agreement that it is important that the EC consider the issue of bioresources/biobanks as relevant sources of aggregated open research data that have an impact on both on science and society. It is important that such data are shared for the progress of global research, to avoid duplication and to benefit from large investments in terms of both financial and personnel efforts, including donors’

In consideration of the ethical issues associated to bioresources, only aggregated results can be shared openly

As regards where research data be stored, there was discussion about infrastructures and clouding and about maintenance and preservation issues during and after a research project involving collection and use of bioresources

Awareness and Impact

Levels of sharing. Aggregated data

Data life cycle. Data Management Plan

Awareness, Trust, Binding mechanismsP. De Castro, ISS,

IT


Funding authorities should adopt incentive and binding mechanisms and prioritize funding to research projects whose outputs and underlying research data are openly accessible and reusable. Such research projects should produce data which are natively open and reusable

E-Research, E-science – Global collaboration – Next generation infrastructureResearch data are associated with research activity in the process of creating knowledge on the basis of existing knowledge

Research data and Open data are strictly connected, especially when publicly funded research is involved, but the different nature of research data needs careful consideration

Research data need to be shared and properly managed within and beyond the research process which generated them, and they need to be preserved in such a way as to maximise benefits from their use and re-use for the sake of all individuals and society at large (NSF)

Strategic infrastructures for open data should be globally integrated and should be built on persistent identification mechanisms which account the versioning of the whole chain of research outputs (data, pre-print, post-print and other research products subject to disclosure). This will achieve both the goals of smart access and reuse of research outputs and a coherent framework for digital preservation (OpenAire Plus, EUDAT).Multidimensional Approach to Open Science (liason officers)

Goverments gain from open data sharing (EC, OECD, G8 Open Research data)

Definition, awareness, policies

Data Management Plan

Binding mechanisms in funding schemes

Return on investment

Globally integrated infrastructuresP. De Castro, ISS, IT

Critical points EC Consultation, July 2013


BRIF takes part in the testing of a new journal Ubiquity Press

Final considerationssimplifying the complexity of the processes involved

Researchers pride was to produce and share quality publications (journal articles, reports) as reference tools useful for the scientific community


open data sharing is the only way to keep effective communication towards progress in science and guarantees major equity to access and distribution of resources

Past

Present

Evaluation processes directly influence researchers’ choices

ISS, since 1938 has been publishing;

since 2000 all publications are

Future Conjugate advantages coming from ICT with ethical principles of research within a concerted networked action (sharing, transparency, integrity, privacy, innovation, sustainibility)


… The major concern about data sharing is not associated with one project only (where it seems easier to foresee data sharing and the creation of DMPs) but, it is at broader institutional level, national or international level where a commitment towards open sharing is a real challenge …

“

”

The voice of researchers (ISS)

[email protected] YOU!

Education

De castro h2020_eahil_2014_sparc