LED BY GRAHAM ATHERTONSUPPORTED BY

NAC CENTRE MANAGER CHRIS HARRIS

CHRISTMAS QUIZ 2013

NATIONAL ASPERGILLOSIS CENTREUHSM

MANCHESTER

Support Meeting for Aspergillosis Patients &

Carers

Fungal Research Trust

Programme

1.30 Questions 2.15 Break 2.45 Answers 3.30 End

Question 1

Next year the National Aspergillosis Centre will have been operating for:

4 years 5 years 6 years More?

Question 2

Who (Other than Prof Denning) has worked for the aspergillosis clinic longest?

Dr Newton Graham & Chris Georgina & Debbie Kennedy

Question 3

When was the Aspergillus Website started?

1996 1997 1998

Question 4

When did we start our first online support group for patients?

1996 1998 2000 2002

Question 5

When did we start our Yahoo! Aspergillosis Support group?

1998 2000 2002 2004

Question 6

Who was the first person to run the Aspergillus Website?

Graham Atherton

Adam Huffman

Emma Prebble

Question 7

How many people are currently in our Facebook Aspergillus Support group?

200 253 294 315

Question 8

In the last month, how many people have visited the (new) Aspergillus Support Website for Patients?

nacpatients.org.uk

500 1400 7500 15000

Question 9

Our websites are available all across the world. Our main users are people in the UK and in the US but there are many more. Which is the country is our next most frequent visitor?

Canada China Australia India

Question 10

How many times have the recordings of our patient support meetings been viewed so far? NB there are over 50 recordings available

5000 10000 25000 50000

Question 11

How many pages are there in the Aspergillus Website?

5000 25000 50000 100000

Question 12

Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:

3 miles 13.5 miles 26 miles 46 miles

www.justgiving.com/Deborah-Hawker2013/ gogetfunding.com/project/mend-maddie-s-mummy

Question 13

Prof Denning has been on a tour of the world this year as we educate many on the importance of identifying and treating fungal infections. The countries he has visited include China, Australia, South Africa, USA and much of Europe including Turkey.

How many countries has he visited in total? 13 21 35

Question 14

October Meeting: What was the name of Danielle Yuilles project to coordinate the involvement of patients in several aspects of research & service? VOICE CHOICE VOIP

Question 15

September meeting: New consulant Eavan Muldoon has come to us from

New York San Francisco Boston

Question 16

August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?

MRC questionnaire QOL questionnaire Sf36 questionnaire

Question 17

July meeting: Julia Hamer (UHSM Directorate manager) gave us the new name of the organisation overseeing the NHS here in UHSM. What is it called?

NHS England NHS UK NHS Britain

Question 18

June meeting: Steve Webster gave us a talk on ‘Caring for Carers’. Which organisation does he work for?

Princess Royal Trust Carers UK Manchester Carers Centre

Question 19

May meeting: Alison Wearden told us that stress is a feature of all chronic conditions and has been shown to inhibit:

Wound healing Social interaction Breathlessness

Question 20

April meeting: Mike Bromley showed us that the development of many new drugs is now being done in smaller companies. Why?

Cheaper They are better at it Less risk for the large drug companies

Question 21

March meeting: Riina Richardson told us that one of the main causes of damp & mould in our homes is

Living in a colder country Living in a wet country Dust & condensation

Question 22

February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:

Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min

Question 23

January meeting: Debbie Kennedy told us that common side effects of itraconazole are:

Dizzyness, thirst Photosensitivity Gastro-intestinal upset, rash, headache

Question 24

Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?

Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement

Question 25

Awareness. We have hosted a few projects this year that have involved poetry and been very successful. One (at the Manchester Literature Festival) was described as a ‘remarkable event’ by professional reviewer Chris Ogden. What was it called?

Opening the doors Opening the windows Opening our lungs

Answers

Ready?

Question 1

Next year the National Aspergillosis Centre will have been operating for:

4 years 5 years 6 years More?

Question 2

Who (Other than Prof Denning) has worked for the aspergillosis clinic longest?

Dr Newton Graham & Chris Georgina & Debbie Kennedy

Question 3

When was the Aspergillus Website started?

1996 1997 1998

Question 4

When did we start our first online support group?

1996 1998 2000 2002

Question 5

When did we start our Yahoo! Aspergillosis Support group?

1998 2000 2002 2004

Question 6

Who was the first person to run the Aspergillus Website?

Graham Atherton

Adam Huffman

Emma Prebble

Question 7

How many people are currently in our Facebook Aspergillus Support group?

200 253 294 315

Question 8

In the last month, how many people have visited the (new) Aspergillus Support Website for Patients?

nacpatients.org.uk

1400 500 7500 15000

Question 9

Our websites are available all across the world. Our main users are people in the UK and in the US but there are many more. Which is the country is our next most frequent visitor?

Canada Australia China India

Question 10

How many times have the recordings of our patient support meetings been viewed so far? NB there are over 50 recordings available

5000 10000 25000 50000

Question 11

How many pages are there in the Aspergillus Website?

5000 25000 50000 100000

Question 12

Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:

3 miles 13.5 miles 26 miles 46 miles

www.justgiving.com/Deborah-Hawker2013/ gogetfunding.com/project/mend-maddie-s-mummy

Question 13

Prof Denning has been on a tour of the world this year as we educate many on the importance of identifying and treating fungal infections. The countries he has visited include China, Australia, South Africa, USA and much of Europe including Turkey.

How many countries has he visited in total? 13 21 35

Question 14

October Meeting: What was the name of Danielle Yuilles project to coordinate the involvement of patients in several aspects of research & service? VOICE CHOICE VOIP

Question 15

September meeting: New consulant Eavan Muldoon has come to us from

New York San Francisco Boston

Question 16

August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?

MRC questionnaire QOL questionnaire Sf36 questionnaire

Question 17

July meeting: Julia Hamer (UHSM Directorate manager) gave us the new name of the organisation overseeing the NHS here in UHSM. What is it called?

NHS England NHS UK NHS Britain

Question 18

June meeting: Steve Webster gave us a talk on ‘Caring for Carers’. Which organisation does he work for?

Princess Royal Trust Carers UK Manchester Carers Centre

Question 19

May meeting: Alison Wearden told us that stress is a feature of all chronic conditions and has been shown to inhibit:

Wound healing Social interaction Breathlessness

Question 20

April meeting: Mike Bromley showed us that the development of many new drugs is now being done in smaller companies. Why?

Cheaper They are better at it Less risk for the large drug companies

Question 21

March meeting: Riina Richardson told us that one of the main causes of damp & mould in our homes is

Living in a colder country Living in a wet country Dust & condensation

Question 22

February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:

Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min

Question 23

January meeting: Debbie Kennedy told us that common side effects of itraconazole are:

Dizzyness, thirst Photosensitivity Gastro-intestinal upset, rash, headache

Question 24

Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?

Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement

Question 24

Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?

Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement

Question 25

Awareness. We have hosted a few projects this year that have involved poetry and been very successful. One (at the Manchester Literature Festival) was described as a ‘remarkable event’ by professional reviewer Chris Ogden. What was it called?

Open the doors Open the windows Open our lungs

Suggest a subject

Can be on any relevant subject you would like to hear our opinion or get our help with

Send suggestions to admin@aspergillus.org.ukPass notes to me at clinic or at the meetingPhone them in (24 hrs) at 0161 291 5866

Thank You

“The best chance we have of beating this illness is to work together”

Living with it, Working with it, Treating it

Fungal Research Trust

Question 12

Deb Hawker is currently doing a series of runs over 3 months to raise money for Cancer Research and to ‘Mend Maddies Mum’. Is she going to run:

3 miles 13.5 miles 26 miles 46 miles

www.justgiving.com/Deborah-Hawker2013/ gogetfunding.com/project/mend-maddie-s-mummy

Question 16

August meeting: David Denning mentioned that our research using a particular tool shows that patients treated with one antifungal (itraconazole) seem to slowly get worse over time. Which tool?

MRC questionnaire QOL questionnaire Sf36 questionnaire

Question 22

February meeting: Khaled Al-shair told us that those of us with respiratory infections can help ourselves by exercising regularly. It is helpful to do at least:

Gentle Walking 5 - 10 min Walking 20 min Gentle jogging 5 min

Question 24

Creative Writing: Caroline Hawkridge. This year we wrote a poem called ‘Hope is…’ that was read by Rupert Everett at the launch of the Global Action Fund for Fungal Infections (GAFFI www.gaffi.org). What was the initial inspiration for the name?

Hope hospital, Manchester The name of the daughter of one of our doctors To try give everyone encouragement

Low allergen Christmas Trees

Happy low allergen Christmas from us all!!