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S. Pagliara, G. Cinquemani, G. Novelli A Pepino, C. Freda [email protected] - www.centroausili.org Phone +39 081 19301360

Autonomy at accessible costs

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Page 1: Autonomy at accessible costs

S. Pagliara, G. Cinquemani, G. Novelli

A Pepino, C. Freda

[email protected] - www.centroausili.org

Phone +39 081 19301360

Page 2: Autonomy at accessible costs

Autonomy

“…ability to design own life, to get into relation with others and to take part into

building up of society with them”

(Andrich) Indipendence doesn’t necessarily mean

doing things without help But it means to be actor of one’s own

life, promoter of one’s own choices

Page 3: Autonomy at accessible costs

Introduction

The aim of this work is to facilitate the going back home of a person with a severe disability, by removing those barriers limiting activities and participation (ICF WHO 2001)

Page 4: Autonomy at accessible costs

The case

The person is a women 50 y.o. She has a severe motor impairment She needs rehabilitation therapies all week

long to maintain fine mobility with her arms and hands and the control of respiration

She rests in bed when is unnecessary to do something

She moves with a wheelchair For all of this facts she has been so far

forced to live in rehabilitation centre

Page 5: Autonomy at accessible costs

The needs

Living at home Near the rehabilitation centre Building up a “new” autonomy …

Page 6: Autonomy at accessible costs

The project

Multidisciplinary approach taking into account different levels:Project design with herBuilding or strengthen her “Social Network”Implementation with less discomforts possibleCosts

Page 7: Autonomy at accessible costs

Promoters

ASL NA1 - National Health Service, district of Naples

Department of Biomedical, Electronic and Telecommunication Engineering, University of Naples Federico II

Centro per l’Autonomia Ausilioteca Campana – A SME working in Assistive Technologies for Autonomy

The person with disability and her family

Page 8: Autonomy at accessible costs

Project Phases

She demands ASL-NA1 for independent living at home

ASL-NA1 with UNINA – DIBET and CAAC build up an individual project that takes care the whole needs

CAAC implement the Project

Page 9: Autonomy at accessible costs

Promoters: ASL NA 1

Legislative support partial funding for the project supervisor of the entire process

Page 10: Autonomy at accessible costs

Promoters : Department of Biomedical, Electronic and Telecommunication(UNINA - DIBET) Scientific supervising Validation of multidisciplinary

intervention

Page 11: Autonomy at accessible costs

Promoters:Centro per l’Autonomia Ausilioteca Campana (CAAC) Was born as a natural spin-off from the

Department of Biomedical Engineering Is composed by electronic and

biomedical engineers, psychologysts, AAC and rehabilitation therapists, ITC technicians

Biased on a multisciplinary model of intervention

Use ICF as a common language

Page 12: Autonomy at accessible costs

CAAC’s - Workflow

Page 13: Autonomy at accessible costs

Project implementation:CAAC main role linking in a unique network different

SMEs

For Home renovation Home automation Wheelchair and other assistive

technologies customizations

Page 14: Autonomy at accessible costs

Project implementation:“side effects”

• Building up and strengthening of her social network through the action of health services, rehabilitation centre, family, caregivers and all other actors that could give contributions to this project.

Page 15: Autonomy at accessible costs

Project implementation

Page 16: Autonomy at accessible costs

Project ImplementationOutcomes• installation of an environmental control tailored

to the user’s real needs at lower costs • Two wheelchairs one electronic to get out

home and the other lighter to move faster in her house

• A new life… priceless

Page 17: Autonomy at accessible costs

The Costs

Before: About 45.000 Euros per year only for long

staying

After A one-time expense (investment) of about

30.000 Euros for the first year and less than 10.000 Euros per year

Page 18: Autonomy at accessible costs

The Costs

On a three years experimental project the gross amount is less than 50.000 Euros

Versus a previous expense of 135.000 Euros

Page 19: Autonomy at accessible costs

S. Pagliara, G. Cinquemani, G. Novelli

A Pepino, C. Freda

[email protected] - www.centroausili.org

Phone +39 081 19301360