78
Your Guide For patients, families, carers and visitors Child and Adolescent Health Service Princess Margaret Hospital for Children Delivering a Healthy WA

For patients, families, carers and · PDF fileFor patients, families, carers and visitors ... Finding your way around the Hospital 13 ... Australia incorporates Princess Margaret Hospital

  • Upload
    dangthu

  • View
    216

  • Download
    1

Embed Size (px)

Citation preview

Your Guide

For patients, families, carers and visitors

Child and Adolescent Health Service

Princess Margaret Hospital for Children

Delivering a Healthy WA

Contents Section 1 Welcome 3

Child and Adolescent Health Service 4 About Princess Margaret Hospital 4

………………………………………………………………………………...… Section 2 Princess Margaret Hospital 6

Public transport 7 Travel assistance 9 Hospital transport 9 Parking 10 Map of local area 12 Finding your way around the Hospital 13

……………………………………………………………...…………………… Section 3 Coming to hospital 15

What to tell your child 16 What to bring and what not to bring 16What we need to know 18 Booked Admissions 20 What to Expect 22

……………………………………………………………………...……………. Section 4 During your Admission 24

The Ward 25Contacting PMH 29 Food Outlets 30 Fire/Emergency 31 Smoke Free Policy 31

……………………………………………………………………….………….. Section 5 Patient Activities and Entertainment 32

33 34 35 36

Hospital School Services (HSS) Megazone Radio Lollipop Starlight

……………………………………………………………...……………………

Section 6 Working together to Provide Care 38

WA Public Patients’ Hospital Charter 39What you can expect of us 41

What we expect of you 42 Providing Safe Care 44 Hand Hygiene 47Consumer & Youth Advisory Council 48 Complaints and Feedback 49 Customer Liaison Service 52

………………………………………………………………………...………… Section 7 Helpful Resources and Facilities 53

Aboriginal Liaison 54 A-Z Resource and Facilities 55 ATM / Cashier / Child Care Centre 57 Disability Access and Inclusion Plan 58 Freedom of Information 59 Friendship Room 59 Language Services 59 Library 60 The APACHE Energy LINC Program 61 Pastoral Care 63

……………………………………………………………………………..……. Section 8 Getting Ready to go Home 64

Checklist for Day of Discharge 66 Hospital in the Home 67 Outpatients 68

…………………………………………………………………...……………… Section 9 Supporting PMH 70

AWCH 71

Children’s Leukaemia and Cancer Research Foundation 71

Health Direct 71 Kalparrin 72 Kidsafe WA 72 PMH Volunteers (Inc) 73 PMH Foundation (Inc) 74 Telethon Institute for Child Health Research 75

Notes 76

Welcome

Welcome to Princess Margaret Hospital for Children. In this section you’ll learn about who we are and what we do.

The Child and Adolescent Health Service (CAHS) of Western Australia incorporates Princess Margaret Hospital for Children (PMH), the Child and Adolescent Mental Health Service (CAMHS), Child and Adolescent Community Health (CACH) and the Perth Children’s Hospital Project. This booklet will help you during your visit to PMH and make your time here as comfortable and safe as possible.

At PMH we are committed to the pursuit of healthier lives for children and young people. If you have concerns or need help at any time while you or your child is in the hospital, please do not hesitate to ask any of our staff who will be more than happy to help and assist you.

A history of care

The Perth Children’s Hospital was opened in Subiaco in 1909 after 12 years of community fundraising. It comprised of 40 beds, an operating theatre and a small outpatient department. It was renamed in 1949 ‘Princess Margaret Hospital for Children’ (PMH).

Today, PMH treats approximately 300,000 children and adolescents every year, as either inpatients or outpatients, from around the State.

A new children’s hospital is currently under construction on the QEII Medical Centre site in Nedlands, Perth. The new hospital will replace PMH in late 2015 and has been named Perth Children’s Hospital. 4 l Your guide to Princess Margaret Hospital

Welcome

Patient and Family-Centered Care At PMH we are committed to a patient and family-centered care approach in the delivery of health care. We believe that excellence in health care happens when we work together to honour the expertise each of us brings to every health encounter.

At the heart of patient and family-centered care is the belief that families and/or carers are the child’s primary source of strength and support. If families and carers work with the health care staff the needs of the child or adolescent can be met.

Our Vision We are committed to the pursuit of healthier lives for children and young people.

Our Mission • Place children, young people, families and

carers at the centre of everything we do. • Deliver high quality health care in hospital and in

the community. • Build partnerships to advocate and deliver care to

those who need it most. • Advance internationally recognised research

focused on health outcomes. • Attract exceptional staff by offering continued

education, training, support and career development.

Our Values • Excellence • Equity • Compassion • Integrity • Respect

Your guide to Princess Margaret Hospital l 5

Princess Margaret Hospital

How to find us and how to get to us.

How to find us You can get to PMH by bus, train or car.

Public transport timetables

Transperth can provide full details of routes and timetables for trains, buses and ferries within the Perth metropolitan area. Telephone 13 62 13 or visit their website –www.transperth.wa.gov.au

Buses

There are a number of free Central Area Transit (CAT) buses that travel in the metropolitan area.

The Yellow CAT buses travel up Wellington St to PMH. The PMH stop is outside Murray Lodge in Murray St, West Perth. You can then use the pedestrian underpass to cross the road safely to PMH. There are signs to the underpass.

The Red CAT buses travel from Wellington Street bus station in the Perth city centre to the corner of Hay and Outram Streets in West Perth, 200 metres southeast of PMH.

The Green CAT bus travels from Leederville station through West Perth to the Esplanade bus station in the Perth city centre. The nearest stop to PMH is in Colin Street between Hay and Murray Streets, West Perth.

A number of other Transperth buses stop close to the Hospital in Hay Street (west-bound) and Roberts Road (east-bound).

Your guide to Princess Margaret Hospital l 7

Princess Margaret Hospital

Trains

The closest train stations are:

• West Leederville, 500 metres northwest of PMH.

• City West, 700 metres northeast of PMH. All stations have ramp access.

Taxis

A free taxi phone is available near the main entrance, on Level 4 of the Patient Services Building (close to the Outpatients Department) and inside the entrance to the Emergency Department. Car Please note that coin operated parking close to the hospital is limited so please allow additional time to find a parking spot.

8 l Your guide to Princess Margaret Hospital

Travel assistance for rural families: Patient Assis ted Travel Scheme (PATS) If you are travelling to PMH from more than 100km outside the metropolitan area you may be eligible for some refund on travel expenses. To access PATS, you must apply at your nearest hospital or nursing post before you leave home. Please present the PATS form for the doctor to sign, to the Ward Clerk on the ward your child is admitted to or at the outpatient appointment. For enquiries, contact your local hospital before you travel. Hospital transport PMH has a minibus for transport of children and/or parents with a medical condition that prevents them using public or volunteer transport, and/or, no other practical or financial transport options within the metropolitan area. Staff referral is essential to access this service. For Transport Assistance or more information contact the Transport Department on 08 9340 8520

Your guide to Princess Margaret Hospital l 9

Parking

Please note parking near the hospital is very limited. It is recommended you bring plenty of change for the parking machines and allow yourself time to find a parking spot.

Please read parking signs carefully to avoid receiving a fine and consider where possible using alternatives such as public transport.

Parking breaches, both on and off the hospital grounds, are subject to fines. Parking off the hospital grounds is strictly controlled by the Perth City and Subiaco Councils. Please contact the councils for traffic and parking infringements.

Coin operated parking Limited spaces are located at: • PMH Roberts Road car park near the hospital main

entrance • PMH visitors’ car park on Murray Street at the corner of

Thomas Street (use the pedestrian underpass to safely cross Thomas Street to PMH).

• Multi-level car park on Mayfair Street, West Perth (use pedestrian underpass to safely cross Thomas Street to PMH).

Street parking is available on Roberts Road, Hamilton Street and York Street. Please observe the signs.

10 l Your guide to Princess Margaret Hospital

Rural patients and families If you require long-term parking and are staying overnight with your child, contact the receptionist in the Social Work Department on 08 9340 8290. Please note that availability on a day to day basis cannot be guaranteed. Disabled and ACROD car parking Disabled and ACROD parking is located at: • PMH upper level Hamilton Street car park

opposite the Hay Street Building • Directly in front of the PMH main entrance (Level

4), Roberts Road car park. • PMH visitor’s car park in Murray Street, at corner

of Thomas Street near the PMH Child Care Centre (Thomas Street entry).

• ACROD stickers must be displayed.

Your guide to Princess Margaret Hospital l 11

1 Administration Building 3 Hamilton St Car Park 4 Roberts Rd Visitors Car Park 5 Multi Faith Centre 6 Charles Moore Building 7 Godfrey House 10 Harry Boan Building 11 Hay St Building 12 Pathology Building 13 Patient Services Building 14 Mental Health Building 15 Research Building 16 Children’s Clinical Research Facility 17 Hydrotherapy Pool Building 18 Child Care Centre 20 Murray St Visitors Car Park

Coming to hospital

Getting ready can be challenging for children and their families and carers. Knowing what to bring and what to expect can help.

What to tell your child Children need to understand what is going to happen when they come to hospital. Be clear and truthful; it is important to use simple words you think your child will understand. When answering their questions try to be truthful. What to bring □ This book

□ Admission paperwork, or any paperwork sent to you from PMH

□ Details about your GP and or local paediatrician, including name, address and contact number

□ The medications your child currently takes, including non-prescribed medications and herbal preparations

□ Information regarding any allergies to food or medications

□ Information about any special dietary needs. As there may be an initial delay in providing these in some instances, please bring enough drink/food so that your child is comfortable while waiting

□ Medicare card/private health fund book/card

□ Health care card or pension concession card

□ Maternal and child health record book – ‘the Purple book’

16 l Your guide to Princess Margaret Hospital

Coming to hospital

Personal items for your child if staying overnight □ Medical equipment or disability aids

□ Pyjamas (light weight), dressing gown and slippers

□ Toiletries – toothbrush, toothpaste, brush, comb etc.

□ Casual clothes and shoes for day wear

□ Sunscreen, hat and sunglasses for when your child is able to go outside

□ A favourite toy – please make sure your child’s name is on it

□ Disposable nappies if needed, wipes and disposal bags

□ Schoolwork provided by your child’s school What not to bring □ Valuables, jewellery or large sums of money – the hospital

takes no responsibility for any lost property, theft or breakage

□ Please where possible we respectfully request that siblings and visitors who are unwell with, for example, a rash, fever (raised temperature) or gastroenteritis-like symptoms are discouraged from attending the hospital.

Private Electrical Appliances In accordance with Australian Standards privately owned electrical appliances (iPads, laptops, mobile phones etc) that are plugged into the hospital power supply are required to have electrical clearance and approval prior to use. Please ask a staff member on admission to the ward to arrange the clearance, they will be happy to assist.

Your guide to Princess Margaret Hospital l 17

What you need to tell us

• Allergies and dietary requirements – Staff caring for your child need to be aware of any allergies your child may have. These need to be documented and your child will be given a red identification band to wear. Please discuss with the staff any allergic reactions your child may have to any medications, foods, or other products.

• Medications and complementary alternative medicatio ns – For your child’s safety, we need to know about all the medicines they have been taking. This includes medicines prescribed by a doctor, bought without a prescription from pharmacies, health food shops or supermarkets and any complementary or alternative medicines. These are sometimes called natural remedies and include vitamins, minerals, herbal therapies, tonics, aromatherapy and homeopathic medicines. Share this information with the doctor, nurse or ward pharmacist when you arrive so there is less chance of missing an important medicine, doubling up or giving medicines that might interact with each other.

• Dietary requirements – Tell us about your child’s dietary needs once he/she has been admitted. However, if your child has very special dietary needs and you would like to discuss these before admission, please ask to speak to the Nutrition and Dietetics department.

18 l Your guide to Princess Margaret Hospital

GP/family doctor It is important that your child has a regular healthcare provider in the community, such as a general practitioner (called a GP or family doctor). This doctor gets to know your child and family over time and can provide consistent, quality care. Please carry your GP’s business card with your Medi care card and show it to our staff every time you visit the hospital. Then we can check we have the correct details for your usual GP on your child’s record. Sometimes your child may be seen and referred to PMH by a different GP. We need to know which GP you prefer us to correspond with. We will send you and your chosen GP a summary letter about your child’s hospital visit and follow-up care. If you do not want us to contact the GP, please make sure you tell our staff.

Your guide to Princess Margaret Hospital l 19

Booked admission There are two types of booked admissions. Your admission letter will tell you what you need to do and where you need to go. When you arrive at PMH you should come to the Admission Centre located in the main entrance on Level 4 of the Charles Moore Building. Children under the age of 16 should be accompanied by their parent, next of kin or a legal guardian, as there are forms to be filled in and signed. Please inform staff at this time of any change of address, telephone number, health insurance status, Medicare details and or changes in guardianship or local GP. When an operation is needed Before surgery you will be provided with specific information on the operation, anaesthetic and fasting instructions. Please ask staff if you have any questions. We also note there is a ‘My Operation’ information booklet on our internet site that may provide useful information for your child - www.cahs.health.wa.gov.au/brochures/consumers/my_operation.pdf Consent When your child has an operation or test where a level of risk may be involved, you will be asked to give ‘informed consent.’ Informed consent means your health practitioner must explain the treatment options and risks involved, so that you can make the decision that is best for your child. If you are unsure or require further details, please discuss with your healthcare team. 20 l Your guide to Princess Margaret Hospital

If you cannot come as arranged If your child is unwell, has a fever (raised temperature), runny nose, cough, rash, diarrhoea or if you cannot attend for any reason, please let us know as soon as possible on 9340 8222. We will contact you 24-36 hours before your expected admission to check that your child is well for admission. Postponement of surgery Occasionally it is necessary to postpone admissions/surgery due to unforseen circumstances. We understand that this can cause stress and frustration and we will do all we can to arrange another admission as soon as possible. Using your private health insurance When your child is admitted as an inpatient, you will be asked to complete the ‘Form of Election for Admission to a Public Hospital.’ You can choose to have your child admitted using your private health insurance. There are generally no out-of-pocket expenses when you use your private health insurance and doing so helps support funding for hospital services. Please contact our Private Patient Liaison Officer if you have any questions or need assistance on (08) 9340 7586 / (08) 9340 7587 or [email protected]

Your guide to Princess Margaret Hospital l 21

Knowing what to expect Our staff

During your stay at PMH, you are likely to meet a number of different health professionals and support staff. They will include nurses, doctors, administrative staff, therapists, dietitians, pharmacists, social workers, teachers and others who might play a part in the team that will be looking after you. The role of each staff member is different so please ask who they are if you are unsure. A description of some of the staff you may meet is below. • Nurses – A Registered or Enrolled Nurse will care for your

child and other patients during your stay.

The Shift Coordinator is an experienced Registered Nurse who is responsible for managing the ward on a daily basis.

The Clinical Nurse Manager has the overall ongoing responsibility for the ward. If you have any concerns about your child’s condition or care, please speak to your child’s nurse or the shift coordinator.

• Doctors – Your child will be admitted under the care of a

specialist doctor, the consultant, who will oversee your child’s care and supervise the work of the other qualified doctors caring for your child. These doctors may be resident medical officers (RMO’s) or registrars who are undertaking their specialist training.

22 l Your guide to Princess Margaret Hospital

• Allied Health – There are many Allied Health professionals who may be involved in your child’s care. They include Social Workers, Physiotherapists, Occupational Therapists, Speech Pathologists, Audiologists, Pastoral Care workers (chaplains), Dietitians and others. If you think your child would benefit from any of these or other services, please discuss this with your child’s nurse.

• Pharmacists – Pharmacists are involved in ward care of inpatients, dispensing for outpatients, preparation of specialised injections, providing information on medications to staff and patients, and sourcing of specialised medications for uncommon or rare conditions. The pharmacy department also includes Technicians, Purchasing Officers and other valuable support staff roles.

• Support staff - There are also many other staff members who provide vital support services that are vital to the day-to-day running of the hospital. These include cleaners, food service staff, administration staff, security and many others.

• A teaching hospital – PMH is a teaching hospital. This means you will probably meet student doctors, nurses and allied health staff during your stay. If you feel uncomfortable with students being involved in your child’s care, please let staff know.

Your guide to Princess Margaret Hospital l 23

During your admission

Your child’s admission may be for a day stay, overnight stay or longer. The more you know about the hospital and what to expect, the better you’ll feel.

Life on the ward PMH is a public hospital and wards are shared with other children and their families and carers. There are limited single rooms at PMH which are usually used to isolate infectious patients.

On arrival you will be welcomed and shown around the ward. If you have any questions please ask your child’s nurse.

Staying with your child Parents and carers are always welcome to spend as much time as possible with their child, including overnight and we encourage you to be involved with their care. However for safety reasons usually only one parent can stay overnight and other siblings may not stay overnight with the parent. We also note that siblings of the patient who are under 18 years of age are not allowed to be left to stay overnight and siblings over 18 years of age can only stay instead of the parent, if the Clinical Nurse Manager of the ward has given consent, although they can not make decisions about care.

As parents and carers you are also encouraged to stay with your child during most medical treatments.

Visiting hours Parents and carers are welcome any time. However, children recovering from illness or surgery need their rest, so other family members and visitors are asked to visit during visiting hours. Visiting hours vary between wards due to the different needs and ages of children. Please speak with the ward staff to confirm visiting hours on your child’s ward.

Your guide to Princess Margaret Hospital l 25

During your admission

Note: Family and visitors who are unwell or have come in contact with an infection disease, should not visit without first discussing this with the Shift Coordinator.

After hours visiting – the main entrance doors are locked for security. Parents and carers need to ask for access at the front desk in the Emergency Department where you will need to provide identification. After hours visits are limited to the parent/carer unless permission has been provided.

Leaving the ward Before leaving the ward with your child please check with the nursing staff to ensure your child is not due for medications, Please also let nursing staff know where you will be going and for approximately how long. Meals Usual mealtimes at PMH are 8am, 12noon and 5pm. Please let the nursing staff know if your child has any special dietary needs. If your child cannot eat or drink staff will inform you. Please do not offer food or drink to other children as they may have special dietary needs or be fasting.

26 l Your guide to Princess Margaret Hospital

For the parent or carer staying in hospital with their child, breakfast (cereal and toast) is provided at no cost. Parent Lounges A parent lounge is located on level 8 and level 9 of the Harry Boan Building and provides a shared space for parents/carers and immediate family members of patients. It is a quiet space where parents are welcome to bring their own food or snacks and can reheat food and make hot drinks. Smoking and alcohol consumption is not permitted.

The parent lounges should not be used for overnight sleeping or accommodation. Friendship Room Our volunteers provide complimentary tea, coffee and biscuits for parents, families and carers. The Friendship Room is located on Level 6 of the Charles Moore Building and is open Monday to Friday from 9am to 9pm. Washing facilities You are able to wash your child’s own clothes in the parent laundry located on Level 3 of the Harry Boan Building, directly opposite a set of lifts. There is a washing machine, dryer and iron. You will need to provide your own washing powder. Small packets are sold at the PMH Volunteers Kiosk located on Level 4 of the Harry Boan Building.

Your guide to Princess Margaret Hospital l 27

Accommodation for parents/carers and families

On the wards The hospital wards have some capacity to enable one parent or carer to stay overnight with the child. If you wish to stay overnight and pending availability, you will be offered a recliner chair which is located next to the bedside or a fold-up bed located in an area close to the ward.

Off the ward Parent/carer accommodation within the hospital but off the ward (single room flats) is very limited. Priority for this accommodation is based on patient/family needs. For example breastfeeding mothers of infant patients or a parent/carer from the country. The flats within the hospital cannot be booked in advance.

If you need information on accommodation options near the hospital please contact the Welfare Officer in the Social Work Department on (08) 9340 8290.

28 l Your guide to Princess Margaret Hospital

Patient enquiries and telephone calls Only calls from parents/carers will be put through to the wards to enquire about a child’s condition.

The enquiries staff are happy to take a message to pass on to the ward. If you are caring for other siblings and want to get a message to a parent who is on the ward with a patient, please explain this to the Enquiries staff.

Letters to PMH patients Our mailing address is: Child and Adolescent Health Service GPO Box D184 PERTH WA 6840 Add the patients name and ward they are staying on if known and the word ‘Inpatient’.

Taking photos / videotaping Permission is required before taking photos or videotaping, either with cameras or any other device, anywhere within PMH. This is to respect the rights and privacy of all patients, visitors and staff. Please talk to the Clinical Nurse Manager if you wish to take photographs or have any concerns regarding this.

Your guide to Princess Margaret Hospital l 29

Kite Café Located on Level 4 of the Harry Boan Building, the Kite Café serves a variety of hot and cold meals, snacks and drinks. Opening hours: 6.30am to 7.30pm 7 days a week. Vending machines Machines with healthy snacks are located on Level 4 near the Kite Café and the Emergency Department. PMH Volunteers Kiosk Located on Level 4 of the Harry Boan Building and sells a variety of healthy snacks, drinks and general goods including stamps, cards, toys, gifts and reading materials.

Cafes and restaurants There are many eating places located in West Perth and Subiaco, within walking distance of the hospital.

30 l Your guide to Princess Margaret Hospital

Hot drinks and liquid spills Hot drink accidents can result in severe burns. Please take care when carrying hot drinks within the hospital and always use a lid. Liquid spills may lead to serious falls so please clean up any spills or let staff know immediately. Fire or emergency If you discover a fire, smoke or similar emergency, please tell the closest staff member immediately. Each area of the hospital has a warden to take charge in the event of any emergency. If you hear an emergency siren or emergency announcement please remain calm and follow the warden’s instructions. Smoke-free policy In the interests of the health of all hospital users, WA Health is committed to a smoke-free policy and smoking is not permitted anywhere within PMH grounds or buildings. People seen smoking on hospital grounds will receive fines.

Your guide to Princess Margaret Hospital l 31

Patient activities and entertainment

Hospital School Services (HSS) HSS provides access to quality, ongoing education for students who are cannot attend school for medical reasons. Learning programs are tailored to students’ academic, social, emotional and health-related needs. HSS teachers work directly with students and liaise with enrolled schools.

Support is provided by specialist teachers on PMH wards from weekdays during school terms. Long-term patients continue with work from their own school wherever possible. Some HSS teachers liaise with schools of patients with ongoing health problems. In this role teachers can work with a student’s own school to: - develop documented plans such as Individual Education

Plans and Health Care Authorisations; - facilitate a smooth transition from hospital back to school.

HSS is managed by the Department of Education and Training and can be contacted on (08) 9340 8529.

Your guide to Princess Margaret Hospital l 33

Activities and entertainment

Megazone Based on the concept of ‘Healing through Happiness’, Megazone is a unique and innovative recreational area for children and their families and carers.

Megazone has computer and interactive games, as well as an art and craft area and an infant play area. Outside there is a sheltered area with a basketball court and a variety of playground equipment. There is also a sensory room for children with special needs to use and enjoy. Each area appeals to differing age groups and serves varied functions including support for families. Opening hours: Monday to Friday from 10.00am – 5.00pm. Saturday and Sunday from 10.00am – 2.00pm.

Location: Level 7 (Harry Boan Building). Turn right out of the lift and proceed through the Rainbow Tunnel, enter through the open glass ‘paw doors’ and follow the ‘paw prints’ on the floor, to the left. Telephone: (08) 9340 7129

34 l Your guide to Princess Margaret Hospital

Radio Lollipop (in the Megazone) Radio Lollipop is a charity run by volunteers which provides care, comfort, play and entertainment to children in hospital through an in-house radio station. Children are welcome to experience what it is like to be a radio announcer. For the children who are unable to leave their beds, our volunteers visit them personally to ensure quality time for all. Radio Lollipop broadcasts live to the children in hospitals at Fremantle, Joondalup and Kalgoorlie and also visits children in Murdoch and Armadale Hospitals.

Radio Lollipop operates: Weekdays from 5.30pm – 7.30pm, Saturday 3.00pm – 5.00pm, and Sunday 4.00pm – 6.00pm.

The station broadcasts from the United Kingdom 24 hours a day with live local shows during operating hours and can be received via bedside Radio Lollipop handsets or through Channel 3 on hospital TV sets. To request a song or to talk to one of the volunteers call 8832 during operating hours.

For more information telephone the Radio Lollipop office on (08) 9340 8835.

Your guide to Princess Margaret Hospital l 35

Starlight Express Room (in the Megazone) This media fun room, open 7 days a week, is a fun place for children staying in or visiting PMH and provides a range of entertainment and activities. The Starlight Express Room is funded and managed by the Starlight Children’s Foundation and offers a great line up of daily activities including arts and crafts, special guest visits, or watching a performance by Captain Starlight. Children can request a movie on Starlight TV (channel 5) by telephoning the Starlight Express Room on (08) 9340 7100.Ask Captain Starlight for more information.

Starlight Livewire Room (in the Megazone) Livewire is open 7 days a week and provides a place for adolescent patients and their friends 12 years of age and older to hang out, have a chat and relax. Livewire also offers an escape from the stress and treatment of being in hospital and is funded and managed by the Starlight Children’s Foundation. Livewire offers a range of activities and entertainment including a pool table, football fussball, music activities, a kitchen and café area, art and crafts and computer games.

Adolescents can also borrow games, books, magazines and movies or take part in the ward based activity programs. Telephone (08) 9340 8820 or ask the ward clerk for more information.

36 l Your guide to Princess Margaret Hospital

Televisions Televisions are provided on most wards and are usually turned off at 8.30pm to allow younger children to sleep.

Your guide to Princess Margaret Hospital l 37

Working together to provide care

PMH is committed to providing patient and family–centered care. We want to work in partnership with you, as patients, parents and carers, to ensure the best possible outcomes.

PMH is committed to patient and family-centered car e and an important part of our philosophy is to support t he rights and responsibilities of patients and their families . The Western Australian Public Patients’ Hospital Ch arter All patients in Western Australian public hospitals have a number of fundamental rights to: 1. choose to receive free public hospital services as a public

patient or to be treated as a private patient in a public hospital

2. receive treatment based on your health needs and if you need to wait for this treatment, to be told how long you can expect to wait

3. have access to a range of public hospital services regardless of where you live in Western Australia

4. have access to an interpreter 5. agree or refuse to participate in medical/ nursing

student training or medical research 6. be treated with respect, dignity and consideration for

your privacy and special needs 7. be accompanied by a family member, friend, carer

or person of your choice where appropriate 8. receive safe and high quality health care provided

with professional care, skill and competence 9. receive a clear explanation of any proposed

treatment, including possible risks and alternatives, before agreeing or refusing to have the treatment

10. seek a second opinion

Your guide to Princess Margaret Hospital l 39

Working together to provide care

11. be given information about your continuing health care before you leave the hospital and to have your contact details kept up to date

12. apply for access to your medical records under the Freedom of Information (FOI) Act 1992 and to have personal information kept confidential

13. compliment, comment or complain about the health care you receive and to be given information about how to lodge a complaint without compromising your health care.

Mental health patients The Mental Health Act 1996 provides a number of extra rights for patients receiving psychiatric treatment. For more information please contact the Office of the Chief Psychiatrist on telephone (08) 9222 4462 or visit www.chiefpsychiatrist.health.wa.gov.au If you would like any more information on the WA Public Patients’ Hospital Charter, speak to a staff member, contact the hospital’s customer liaison service, or visit the Department of Health website. Customer Liaison Service (08) 9340 8315 Department of Health www.health.wa.gov.au 40 l Your guide to Princess Margaret Hospital

What you can expect of us

Best care We will: • provide you with all available health services and care

• include you and your family in decision making about treatment

• arrange a second opinion when possible if asked to do so

• provide an interpreter, at no charge, if required

• give you the choice to be involved in research or training

• allow you to refuse treatment and explain the consequences of that choice,

Respect We will:

• treat you with dignity, courtesy and respect

• listen to your opinion

• allow someone to liaise on your behalf if you wish

Information

We will:

• give you information about your child’s healthcare, including options and possible complications

• obtain your consent before starting any treatment

• maintain your privacy and confidentiality

Your guide to Princess Margaret Hospital l 41

• give you access to your child’s personal and health information, and change details if necessary

• ask you to tell us if these things have not happened so we can improve our services

What we expect of you

Staff provide care in the spirit of our values, and we expect that these values – Excellence, Equity, Compassion, Integrity, Respect – are also upheld by all patients, families, carers and visitors to PMH. We want to be sure that we can give you the best care and treatment.

To do this we expect you will:

• give us accurate and truthful information about you or your child’s health

• tell us of any personal information or health condition changes

• attend appointments or tell us if you cannot attend

• ask for more information if there is anything that you do not understand

• follow the instructions for treatment or tell us if you decide not to

• accept the possible health consequences if you refuse treatment

• recognise the effects of your lifestyle choices on you or your child’s health

42 l Your guide to Princess Margaret Hospital

• provide information that could assist with your child’s care and treatment

Our aim is to make PMH a safe, professional and friendly environment, so please respect the rights of all those around you. Patients, families, carers, staff and visitors are expected to:

• treat all people with dignity, courtesy and respect

• be sensitive to the needs of others

• respect the privacy of others and keep in confidence any information gained about them

• not accept or display behaviour or language that may be offensive

• respect visiting hours and be mindful of quiet times

• respect the property of PMH

• report to the hospital staff any unsafe aspects of the environment

• honour the non-smoking policy

Please be aware that violent, threatening and abusive behaviour is not acceptable.

Your guide to Princess Margaret Hospital l 43

Providing safe care

Who’s who Please speak up if you have any questions or concerns. It can be confusing not knowing who is in charge of your child’s health. Don’t hesitate to ask, ‘Who is who?’ and, in particular, ‘Who is in charge?’

Please ask as many questions as you need about your child’s treatment and care.

Parents and carers At PMH we know all families have individual needs and recognise that when children are in hospital, parents and carers play a critical role in helping us to look after them and provide the best quality care.

As an organisation we pride ourselves on family partnership in care and we want to provide you and your family with high quality health care.

We recognise that you as parents/carers know your child far better than the health care providers. As parents/carers you know what is ‘normal’ for your child.

We encourage you to ask questions of the medical and nursing team looking after your child. We understand that this can be a very stressful and tiring time and suggest you write your questions down as you think of them.

On the ward, nursing handover occurs at the bedside. You can be included in the process by asking questions about the care planned for your child and informing staff of any special needs your child may have. 44 l Your guide to Princess Margaret Hospital

If you have an urgent medical concern about your child’s condition, call immediately for help or ask to speak to the nursing shift coordinator. They will assess your child and will call your child’s medical team to review your child if required. If you are still concerned, discuss this with the shift coordinator. It may be appropriate to arrange a Medical Emergency Team (MET) review. The Medical Emergency Team operates within the hospital and will provide prompt medical and nursing review of any child who requires urgent medical review within five minutes. The team consists of specialist doctors and nurses from the Paediatric Intensive Care Unit (PICU) and are available 24hours a day. What should you look out for? You should notify the nursing staff immediately if you feel your child is; • breathing differently to normal, • a different skin colour - for example turning blue, • unusually sleepy or irritable • becoming sicker, or • looks and acts differently from normal. Tests, treatments and procedures It is important to understand why a test, treatment or procedure is needed, whether medications are being given and how they will help your child.

Tests, treatments and procedures can sometimes cause distress, pain or anxiety to children. It is our aim to reduce this as much as possible. As a parent, you can ask for the test or treatment to be delayed or rescheduled which we will try to accommodate whenever possible.

Your guide to Princess Margaret Hospital l 45

Patient identification All children in hospital must have a patient identification band placed on their wrist or ankle. This band should have the name of your child, his/her hospital record number (URMN number) and date of birth. If your child does not have one on or it has fallen off, please let our nursing staff know so that it can be replaced as soon as possible.

During your child’s admission he/she will be cared for by a number of different medical and nursing staff members. For this reason you will be asked on a number of occasions to confirm that the information contained on your child’s identification band is correct and that any procedures being undertaken are those documented on the consent form you have signed. It may seem repetitive to be asked these questions a number of times, but it is part of a safety system that is in place to ensure the right child gets the right care.

Prevention of infection Infections are caused by germs such as bacteria, fungi or viruses entering the body. They can be minor and stay in one area, like a boil, or they can spread throughout the body, like flu. Often, infections are easily dealt with, but sometimes they can cause serious problems.

PMH has an extensive Infection Control and Prevention program which recognises that patients and staff can be at risk of getting infections while they are in a health care setting and that these infections can be minimised by using appropriate infection control practices. By following a few simple steps, patients and visitors can reduce the risk of spreading germs.

46 l Your guide to Princess Margaret Hospital

Hand hygiene is the single most important way to prevent the spread of infection. Hands should be cleaned with alcohol based hand rub or soap and water before and after visits with patients and also

• after going to the toilet

• after changing a nappy

• after blowing your nose

• after handling animals

• before and after preparing food (wash with soap and water)

• when your hands are visibly dirty (wash with soap and water)

From time to time our staff can become very busy and you may wonder if the doctor, nurse or other healthcare worker cleaned their hands before or after giving care. As part of your role in the fight against infection we encourage you to remind staff about this important practice.

Cough etiquette Many diseases are spread through sneezes and coughs. When you sneeze or cough, the germs can travel a metre or more! Cover your nose and mouth to prevent the spread of infection to others. Use a tissue when you cough or sneeze and clean your hands afterwards.

Your guide to Princess Margaret Hospital l 47

Stay away if you are sick Please do not visit if you are unwell, especially if you have a fever, rash, vomiting or diarrhoea. Falls Falls in children are not uncommon. While in hospital please remember to stay close to your child especially when they are on a bed, cot or trolley and use bed or cot sides at all times. If you are unsure of how to use the bed or cot sides, please ask the staff to show you. Supervision The hospital is an unfamiliar place for children. Please don’t let your children wander around the wards or hospital unsupervised. Let the staff know when you are leaving the ward and ensure visiting children are always supervised. Consumer participation At PMH, consumers are represented by two groups – our Consumer Advisory Council and our Youth Advisory Committee.

Consumer Advisory Council The Consumer Advisory Council (CAC), is made up of members representing the Child and Adolescent Health Service community which incorporates PMH, Child and Adolescent Community Health and Child and Adolescent Mental Health. The CAC members provides support and advice to the Child and Adolescent Health Service on a range of issues in order to improve the experience primarily for patients but also for their family/carers, relative and other consumers.

48 l Your guide to Princess Margaret Hospital

Youth Advisory Committee The Youth Advisory Committee, also known as YAC, is a group of young people that comes together to share ideas and advise about how to make Child and Adolescent Health Service a better place for all children, young people, families and staff. YAC members are passionate young people who use their own experiences to help improve the experience of others. Members are, or have been, inpatients, outpatients, siblings or friends of patients.

If you would like to discuss any concerns with members of either of these groups you can email them direct on - [email protected]

Your experience – every patient, every family, every time

PMH recognises the value of feedback, both positive and negative. All feedback is reviewed as an opportunity for improvement and we encourage all patients and families to discuss any concerns they have about the care they received, the level of customer service, the facilities and staff members. We strive to ensure that children and their families receive quality care at all times.

Who can I contact? Wherever possible we encourage you to resolve your concerns directly with the ward, department, doctor or clinical nurse manager.

Your guide to Princess Margaret Hospital l 49

We recognise that this can sometimes be difficult, therefore PMH has a Customer Liaison Service that offers a range of options for you to consider when wanting to provide feedback. You can: • complete a feedback form or make a formal complaint or

compliment • use the suggestion boxes located around the hospital to

share your ideas • contact customer liaison officers who provide a dedicated

point of contact to help parents, families and visitors with their concerns.

How to make a complaint or compliment Making a complaint will not impact negatively on any future care or treatment you may receive at PMH and is viewed as an opportunity for us to improve our services.

Complaints or compliments can be lodged with the Customer Liaison Service (CLS) by telephone, in person or in writing (letter or email).

You can contact the CLS by: Mail: Child and Adolescent Health Service Customer Liaison Service GPO Box D184 PERTH WA 6840 Email: [email protected] Telephone: 9340 7198 / 9340 8315 Fax: 9340 7966 50 l Your guide to Princess Margaret Hospital

Information to include in your complaint Describe the situation and include: • what happened, when and where it happened and who was

involved • what you would like to see happen • your contact details, if you would like feedback.

The Customer Liaison Service can assist you with the feedback process and guide you through the steps involved in making a formal complaint.

Compliments Your compliment is recorded and passed onto the area identified for their information. It is always gratifying to receive compliments for the service provided and it boosts the staff morale considerably when patients/relatives take the time to share their appreciation.

Feedback Your feedback is recorded and passed onto the area identified for their information and action. It is a way of letting us know that your journey through PMH could have been better. Your feedback is very important and is used to ensure we continually improve.

Formal complaint A formal complaint is feedback where you have indicated you would like to know the outcomes and be provided with a response to your complaint and concerns. None of the documentation is filed with your medical records. It is stored in a separate area with restricted access and kept confidential.

Your guide to Princess Margaret Hospital l 51

You will then receive a phone call or letter letting you know your complaint has been received and will be investigated. This will take up to 30 working days however, if there is a delay you will be informed.

When the investigation is complete, you will be sent a letter, unless you indicate otherwise, detailing the findings and any intended actions.

Customer Liaison Service (CLS) The CLS is located in the main entrance of the hospital (Level 4), opposite the Patient Enquiries desk. You can contact us by the following methods: • Address: Child and Adolescent Health Service Customer Liaison Service GPO Box D184, PERTH WA 6840 • Email: [email protected] • Telephone: (08) 9340 7198 / (08) 9340 8315 • Fax: (08) 9340 7966 52 l Your guide to Princess Margaret Hospital

Helpful resources and facilities

Some families and carers visit PMH for a day, others may need to stay a number of days, so it’s important to know about useful resources and facilities you can access.

Aboriginal Liaison

The Aboriginal Liaison Officer and Support Officers (ALO’s) can help you to get the most out of your visit or stay at PMH. The ALO’s can:

• provide cultural and social assistance and support;

• help you to make a strong connection with your medical team;

• provide cultural advice and education to hospital staff;

• build links between Aboriginal families, hospital staff and community services.

The ALO’s work with you and your health team to achieve the best health outcomes for your child.

The ALO’s are located on Level 4, next to the Patient Enquiries desk. Telephone (08) 9340 8290.

54 l Your guide to Princess Margaret Hospital

Helpful resources and facilities

A-Z of resources and facilities Amenities – toilets, showers and change tables Patient Services Building (main entrance) Level 3 (near Dietetics) unisex shower (ask staff for towels if needed) male and female toilets (wheelchair accessible)

Level 3 (opposite lifts) laundry facilities

Level 4 toilet (wheelchair accessible) (behind admission desk)

Level 4 baby change table (near Emergency Department) male and female toilets (wheelchair accessible)

Level 5 baby change table (near Radiology) male and female toilets (wheelchair accessible)

Level 5 female shower (near Ward 5B) male and female toilets (wheelchair accessible)

Same Day Procedure Unit female toilets

Level 6 male and female toilets (wheelchair accessible)

Your guide to Princess Margaret Hospital l 55

Level 7 Megazone male and female toilets (wheelchair accessible) baby change table male and female showers

Level 8 female toilet (located in the stairwell)

Level 9 female toilet (located in the stairwell) Hay Street Building (Children’s Rehabilitation Cent re) Level 4 toilet (wheelchair accessible) (near Occupational Therapy) adult sized change table

Level 5 toilet (wheelchair accessible) (near Paediatric Rehabilitation) adult sized change table

Level 6 toilet (wheelchair accessible) (Staff Development) Harry Boan Building Level 6 (near Theatre) baby change table Level 6 & 7 stairwell male toilet Level 8 & 9 stairwell male toilet Psychiatry Building toilet Godfrey House toilet (wheelchair accessible) For off-site services please ask staff for assistan ce.

56 l Your guide to Princess Margaret Hospital

Automatic teller machine (ATM) There is an ATM Rediteller located near the Kite Café on Level 4. Banks are also located in West Perth and Subiaco and are within walking distance. Cashier There may be some services, equipment or medication that your child requires that incur a cost. If you receive an account, this payment can be made at the Cashier located on Level 4 near the pharmacy dispensary. Opening hours: Monday to Friday 9am – 5pm Closed daily from 1pm – 2pm Child Care Centre The Children’s Hospital Child Care Centre is an independent facility within the hospital grounds. There is provision for only a small number of children who may need care when their sibling is being treated in PMH. Please telephone the centre on (08) 9340 8586 for more details.

Your guide to Princess Margaret Hospital l 57

Disability Access and Inclusion Plan (DAIP) PMH has a Disability Access and Inclusion Plan to ensure that people with disabilities have the same opportunities as other people to: • access our services and events • receive the same level and quality of service from staff • access our buildings and other facilities • make complaints • receive information in an appropriate format

• participate in any public consultation

• access employment This plan was developed in consultation with people with disabilities, their families and carers, community partners and the general public. If you would like to view the DAIP or discuss any concerns you have related to access issues, please contact the Customer Liaison Service on 08 9340 7198. Fire or emergency

In the event of a fire or emergency, please follow the direction and instructions of staff.

58 l Your guide to Princess Margaret Hospital

Freedom of Information

Although patient medical records remain the property of the hospital, they can be accessed under the Freedom of Information Act, 1982. For information, ask a staff member or contact the PMH Freedom of Information Officer on (08) 9340 7050.

Friendship Room The Friendship Room is a lounge area and courtyard where parents and carers can sit, read and enjoy free tea, coffee and biscuits provided by PMH Volunteers. The Friendship Room is located on Level 6 near the Operating Theatres and is open from 9.00am to 9.00pm Monday to Friday.

For the comfort of everyone we ask that you switch mobile telephones to silent or off when using the room.

Language services Consumers and their carers who have limited or no English have the right to access interpreting services when using WA Health. This includes Aboriginal people, people from culturally and linguistically diverse backgrounds and people who are deaf or hearing impaired.

How do you access an interpreter?

You can ask for an interpreter any time you need help to fully understand your child’s condition and care. Look for this symbol in the hospital and health services.

Your guide to Princess Margaret Hospital l 59

Staff will help you find the right interpreting service for your situation, which could be:

• in person, face-to-face • via telephone, or • using video conferencing.

Using friends or family to interpret is not recommended. It is better to use a qualified interpreter to explain medical and complex information. Your family member, carer or friend can stay with you while you are talking to the doctor using a qualified interpreter service.

Library

PMH has a Child Health Collection located in the Medical Library,

Level 3 of the Administration Building. The collection provides

books and DVDs on child and adolescent health suitable for

patients, parents, carers and health professionals. Librarians

are available to help you find accurate and up-to-date information

on child health topics. To contact the Library: Telephone: (08) 9340 8464 Website: http://pmh.health.libguides.com/KidsandTeensHealth Email: [email protected],.au 60 l Your guide to Princess Margaret Hospital

The Apache Energy LINC Program

• Liaising, Informing and Networking for Carers (LINC )

• Liaising, Informing and Networking for Carers in Ru ral areas (LINC+ Senior Social Worker)

This program delivers information, advisory and liaison services to support carers of children with special needs.

If you care for a child with one or more of the following conditions, the Apache Energy LINC Program may be able to assist you:

• intellectual disability

• autism spectrum disorder

• physical disability

• mental illness

• chronic illness

• palliative care needs.

The program can assist carers in many different ways including:

• providing information about respite and support services for carers

• assisting carers to access community based carer support services

• advocating on behalf of carers and their families

Your guide to Princess Margaret Hospital l 61

• providing information about seminars, workshops, social activities and special events of interest to carers

• assisting families to source counselling, recreational services and other ‘time-out’ opportunities external to the hospital.

If you or someone you know is a carer and would like some support and advice we would be happy to hear from you.

The LINC Coordinator can be contacted -

Monday to Friday – 8.30am to 4.30pm

Telephone: (08) 9340 8222 / 0420 967 802

Email – [email protected]

The LINC+ Senior Social Worker can be contacted –

Monday to Friday – 8.30am to 4.30pm

Telephone: (08) 9340 8290

Lost property PMH is not responsible for any loss or theft of patient or visitor property. Lost property at the hospital is managed by Support Services who can be contacted on (08) 9340 8779. 62 l Your guide to Princess Margaret Hospital

Pastoral Care Chaplains and Pastoral Care Team

PMH Pastoral Care services provides spiritual and non-spiritual care, support and compassion to people in need. The service is available to anyone and operates 24 hours a day, 7 days a week.

After hours, weekend and Public Holidays the on-call Chaplain is contactable through the Hospital Communication Centre by telephoning (08) 9340 8222 or internally by pressing 9 from a hospital landline telephone.

To contact Pastoral Care, ask your nurse or telephone (08) 9340 8670.

Multi Faith Centre

The Multi Faith Centre is located in the historic wooden building near the corner of Hay and Thomas Streets close to the children’s playground. It provides a place to go for spiritual reflection, prayer and quiet time and is open 6.00am to 5.00pm daily. After hours, a key is available from the Emergency Department and you are welcome to access the building 24 hours a day.

Your guide to Princess Margaret Hospital l 63

Getting ready to go home

It is important to plan ahead with staff to ensure you’re ready for discharge.

It is important to plan ahead with staff regarding discharge from hospital. This includes discussing when your child may be ready for discharge and arrangements that need to be made.

If you need assistance to arrange transport home, let your nurse know as soon as possible. Ward clerks can assist with travel arrangements for country patients under the Patient Assisted Travel Scheme (PATS).

Discharge medications will be ordered from the PMH Dispensary. If your child needs other medications ordered, please inform the nurse. There is a charge for long-term medications. This needs to be paid to the cashier, located next to the Dispensary on Level 4.

Medical equipment and appliances such as crutches and wheelchairs can be arranged if necessary.

If your child is unable to return to school soon after discharge, educational support can be arranged by contacting Hospital School Services on telephone 08 9340 8529.

Home visits by nurses can be arranged to provide nursing care, assessment, advice and support for families caring for children at home. This is provided by the PMH Hospital in the Home (HiTH) or Post Acute Care Services (PACS). Please ask the staff if this would be appropriate for your child.

Your guide to Princess Margaret Hospital l 65

Getting ready to go home

If your child’s condition is stable and their treatment is complete, they should be discharged before 10am on the day of discharge.

Checklist for Day of Discharge Before leaving the ward, check that you have everything you need such as:

❏ Medications ❏ Equipment ❏ Supplies ❏ Instructions for your child’s ongoing care ❏ A medical certificate for your child’s school or your work

(please ask for this as soon as possible) ❏ Follow up appointment ❏ Private X-rays, if brought to PMH ❏ Personal belongings

Caring for your child at home It is important that you follow the care plan provided regarding the care of your child at home to aid their recovery. If you have concerns about your child’s condition, contact the hospital on (08) 9340 8222, see your General Practitioner, or call HealthDirect on 1800 022 222. If you have urgent concerns for your child’s health and wellbeing please go to an Emergency Department, either at PMH or at a hospital closer to home.

66 l Your guide to Princess Margaret Hospital

PMH Hospital in the Home (HiTH) HiTH provides a home-based service to children whose condition is stable enough to be nursed at home as an alternative to being a hospital inpatient.

The HiTH service is available seven days a week from 7am to 10pm and provides a maximum of three visits per patient each day, however, you can contact an on call PMH nurse 24 hours a day if needed. In order to become a HiTH patient your consultant must agree that your child is stable enough and you need to be living (or staying) within the HiTH metropolitan boundaries of Perth. If you need any further information about this service, please talk to your consultant or telephone (08) 9340 8379 to speak with a staff member in the HiTH program.

PMH Post Acute Care Services (PACS) The PMH HiTH staff also provide a community based nursing service to children following their discharge from PMH, when ongoing nursing care is required.

A referral to the PAC nursing service can be done by any PMH health professional who is involved with your child’s care. For further information about the PMH PAC service and their location, please telephone (08) 9340 8379.

Your guide to Princess Margaret Hospital l 67

Outpatient clinic appointments You will receive an appointment card or letter approximately 28 days before your child’s appointment. The letter will tell you:

• the clinic you will be going to

• a telephone number to call if you are unable to attend or wish to cancel

• the date and time of your appointment. A text message reminder will be sent to you two days before the appointment. If you are unable to attend and do not cancel your appointment it is possible that your child will be discharged from the clinic and require a new referral from your GP to be given another appointment. To cancel your appointment or to update your personal details, please call 1300 855 275.

68 l Your guide to Princess Margaret Hospital

A parent, carer or legal guardian should accompany any child under 16.

The main Outpatient Department is on Level 4 near the main entrance however there are clinics held in other parts of the hospital. Your appointment letter will advise you where to go.

Please bring your Medicare card and inform the clerk of any changes to personal details or general practitioner.

While we do our best to ensure the clinics run to time, please be aware sometimes delays are unavoidable and we ask that you plan ahead accordingly.

Whenever possible PMH volunteers will provide activities for the children and free tea and coffee for adults during the outpatient clinics.

Your guide to Princess Margaret Hospital l 69

Supporting PMH

Learn about the many ways you can help Princess Margaret Hospital.

Association for the Welfare of Children in Hospital (AWCH) - AWCH is a voluntary not-for-profit organisation concerned with the emotional and social wellbeing of children in health care and it offers: • a familiarisation program to prepare children for the

possibility of hospitalisation and to allay fears through education and play

• education, advocacy, research, and support for families and professionals

For more information telephone on (08) 9340 7800 or visit their website at www.awchwa.org.au Children’s Leukaemia and Cancer Research Foundation (Inc) - The Foundation raises funds to conduct research into childhood leukaemia in children in WA and works cooperatively with the PMH Oncology Total Care Unit, playing an integral part in the treatment of children with cancer in WA. Telephone: (08) 9363 7400. Website: www.childcancerresearch.com.au HealthDirect

HealthDirect is a free 24 hour, seven day a week health advice line. You should always try to contact your regular doctor first, if however they are not available, HealthDirect’s experienced nurses will provide immediate professional advice on how urgent your problem is and what to do about it. To contact HealthDirect telephone 1800 022 226.

Your guide to Princess Margaret Hospital l 71

Supporting PMH

Kalparrin Centre

Located on Level 4 of the Hay Street Building, Kalparrin provides practical and emotional support for families, friends and carers of children with any special need. Kalparrin offers a drop-in centre with parent lounge, play room, tea and coffee making facilities and can assist people in connecting with the services they need.

To contact Kalparrin:

Telephone: (08) 9340 8094 / free call 1800 066 413

Website: www.kalparrin.org.au

Email: [email protected]

Kidsafe WA Located at Godfrey House near Thomas Street, Kidsafe WA is a

non-government, not-for-profit organisation which provides

information to the public about child injury issues, injury

prevention and safety promotion.

Kidsafe offers a telephone information service, resource centre,

a safety demonstration house and a safety products shop as

well as child car restraint hire and a fitting and checking service,

available by appointment on 08 9340 8509 for bookings.

Website: www.kidsafewa.com.au

72 l Your guide to Princess Margaret Hospital

PMH Volunteers (Inc) Most PMH volunteers assist in various areas and roles throughout the hospital including: • wards - as a ward friend, helping teachers or activity

coordinators • outpatients clinics - providing activities for children • Friendship Room - providing support for parents • Kiosk - selling snacks, toys and items parents may require while

at PMH, from which all profits go to PMH • Level 4 tea and coffee room - providing support for parents • Emergency Department - mainly at weekends • Admissions - meeting and greeting patients and their families • various occasional clinics - helping hospital staff.

New volunteers are always welcome. For further information telephone the Volunteer President on (08) 9340 8716.

Your guide to Princess Margaret Hospital l 73

PMH Foundation (Inc)

PMH Foundation is the hospital’s main fundraising body, providing support and funding each year for vital medical equipment, specialist staff, education and training, research and a range of complimentary services designed to make a child’s visit to PMH as comfortable as possible. The Foundation also hosts several activities for children, families and staff including regular free BBQs in Megazone and on Ward 3B (oncology ward), visits from PMH Foundation mascot Stitches the Bear and school holiday programs. To learn more about PMH Foundation and how you can support the hospital through them, visit www.pmhfoundation.com, telephone (08) 9489 1100, or drop into their office at Level 1, 68 Hay Street, Subiaco (opposite the hospital, above Cafeina on the corner of Hay & Hamilton Streets).

74 l Your guide to Princess Margaret Hospital

Telethon Institute for Child Health Research

Institute medical and scientific staff work cooperatively with PMH to research many child health conditions (causes, prevention and improved treatments). You may be asked about your child taking part in research studies that will benefit other sick children.

Location: 100 Roberts Road opposite the hospital. Telephone: (08) 9489 7777 Website: www.childhealthresearch.org.au

Your guide to Princess Margaret Hospital l 75

Notes __________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

__________________________________________________________________________

Disclaimer: The advice and information contained herein is provided in good faith as a public service. However the accuracy of any statements made is not guaranteed and it is the responsibility of readers to make their own enquiries as to the accuracy, currency and appropriateness of any information or advice provided. Liability for any act or omission occurring in reliance on this document or for any loss, damage or injury occurring as a consequence of such act or omission is expressly disclaimed.

Produced by: Customer Liaison Service Website: www.cahs.health.wa.gov.au

This information is available in alternative formats upon request

Child and Adolescent Health Service Princess Margaret Hospital for Children Roberts Road, Subiaco WA 6008 Telephone: (08) 9340 8222

Delivering a Healthy WA