DEMENTIA TOPICS

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ORGANIZATION OF DEMENTIA CARE

2014

Cahill S, Pierce M, Moore V. A national survey of memory clinics in the

Republic of Ireland. Int Psychogeriatr. 2014 Apr;26(4):605-13.

Davies N, Maio L, Rait G, Iliffe S. Quality end-of-life care for dementia:

What have family carers told us so far? A narrative synthesis. Palliat Med.

2014 Mar 13;28(7):919-930.

Edwards R, Voss S, Iliffe S. Education about dementia in primary care: is

person-centredness the key? Dementia (London). 2014 Jan;13(1):111-9.

Klich-Rączka A, Piotrowicz K, Mossakowska M, Skalska A, Wizner B,

Broczek K, Wieczorowska-Tobis K, Grodzicki T. The assessment of

cognitive impairment suspected of dementia in Polish elderly people:

results of the population-based PolSenior Study. Exp Gerontol. 2014 Jun

14;57C:233-242.

Raymond M, Warner A, Davies N, Iliffe S, Manthorpe J, Ahmedzhai S.

Palliative care services for people with dementia: a synthesis of the

literature reporting the views and experiences of professionals and family

carers. Dementia (London). 2014 Jan;13(1):96-110.

Smeets CH, Smalbrugge M, Zuidema SU, Derksen E, de Vries E, van der

Spek K, Koopmans RT, Gerritsen DL. Factors related to psychotropic drug

prescription for neuropsychiatric symptoms in nursing home residents with

dementia. J Am Med Dir Assoc. 2014;15(11):835-40. doi:

10.1016/j.jamda.2014.08.016.

Stephan A, Afram B, Koskenniemi J, Verbeek H, Soto ME, Bleijlevens MH,

Sutcliffe C, Lethin C, Risco E, Saks K, Hamers JP, Meyer G; the

RightTimePlaceCare Consortium. Older persons with dementia at risk for

institutionalization in eight European countries: a cross-sectional study on

the perceptions of informal caregivers and healthcare professionals. J Adv

Nurs. 2014 Aug 4. doi: 10.1111/jan.12493

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Van Mierlo LD, Meiland FJ, Van Hout HP, Dröes RM. Towards

personalized integrated dementia care: a qualitative study into the

implementation of different models of case management. BMC Geriatr.

2014 Jul 8;14:84. doi: 10.1186/1471-2318-14-84.

Vernooij-Dassen M, Moniz-Cook E. Raising the standard of applied

dementia care research: addressing the implementation error. Aging Ment

Health. 2014 Sep;18(7):809-14.

Vollmar HC, Goluchowicz K, Beckert B, Dönitz E, Bartholomeyczik S,

Ostermann T, Boustani M, Buscher I. Health care for people with

dementia in 2030 – results of a multidisciplinary scenario process. Health

Policy. 2014 Feb;114(2-3):254-62. doi: 10.1016/j.healthpol.2013.07.023.

Epub 2013 Aug 6.

DEMENTIA TOPICS

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2013

Davies N, Maio L, Paap JV, Mariani E, Jaspers B, Sommerbakk R,

Grammatico D, Manthorpe J, Ahmedzai S, Vernooij-Dassen M, Iliffe S; for

the IMPACT research team. Quality palliative care for cancer and

dementia in five European countries: some common challenges. Aging

Ment Health. 2013 Oct 17.

Faber M, Voerman G, Erler A, Eriksson T, Baker R, De Lepeleire J, Grol

R, Burgers J. Survey of 5 European countries suggests that more

elements of patient-centered medical homes could improve primary care.

Health Aff (Millwood). 2013 Apr;32(4):797-806

Frijters DH, van der Roest HG, Carpenter IG, Finne-Soveri H, Henrard JC,

Chetrit A, Gindin J, Bernabei R. The calculation of quality indicators for

long term care facilities in 8 countries (SHELTER project). BMC Health

Serv Res. 2013 Apr 15;13:138.

Holmerová I, Koopmans R, Skela Savič B, Egervári A, Hermann B,

Ruseckiene R, Tolson D. Advancing long term care: central European

perspectives. J Am Med Dir Assoc. 2012 Sep;13(7):578-80.

Iliffe S, Davies N, Vernooij-Dassen M, van Riet Paap J, Sommerbakk R,

Mariani E, Jaspers B, Radbruch L, Manthorpe J, Maio L, Haugen D,

Engels Y; IMPACT research team. Modelling the landscape of palliative

care for people with dementia: a European mixed methods study. BMC

Palliat Care. 2013 Aug 12;12(1):30.

Scherer M, Wollny A, Vollmar HC, Chenot JF, Baum E, Barzel A, Beyer M,

Egidi G, Kaufmann-Kolle P, Mainz A, Popert U, Schmiemann G, Voigt K,

Wagner HO,Szecsenyi J. [The Quality indicator project of the German

college of general practice and family medicine (DEGAM): development of

indicators based on the guidelines dementia, neck pain and sore throat]. Z

Evid Fortbild Qual Gesundhwes. 2013;107(1):74-86

van der Steen JT, Radbruch L, Hertogh CM, de Boer ME, Hughes JC,

Larkin P, Francke AL, Jünger S, Gove D, Firth P, Koopmans RT, Volicer

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L; on behalf of the European Association for Palliative Care (EAPC).

White paper defining optimal palliative care in older people with dementia:

A Delphi study and recommendations from the European Association for

Palliative Care.

DEMENTIA TOPICS

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2012

Ballard C, Corbett A. Dementia: New guidelines on disorders associated

with dementia. Nat Rev Neurol. 2012 Oct 23.

Connolly A, Iliffe S, Gaehl E, Campbell S, Drake R, Morris J, Martin H,

Purandare N. Quality of care provided to people with dementia: utilisation

and quality of the annual dementia review in general practice. Br J Gen

Pract. 2012 Feb;62(595):e91-8.

Corbett A, Stevens J, Aarsland D, Day S, Moniz-Cook E, Woods R,

Brooker D, Ballard C. Systematic review of services providing information

and/or advice to people with dementia and/or their caregivers. Int J Geriatr

Psychiatry. 2012 Jun;27(6):628-36

Dagneaux I, Gilard I, De Lepeleire J. Care of elderly people by the general

practitioner and the geriatrician in Belgium: a qualitative study of their

relationship. J Multidiscip Healthc. 2012;5:17-25

Holmerová I, Koopmans R, Skela Savič B, Egervári A, Hermann B,

Ruseckiene R, Tolson D. Advancing long term care: central European

perspectives. J Am Med Dir Assoc. 2012 Sep;13(7):578-80.

Keady J, Jones L, Ward R, Koch S, Swarbrick C, Hellström I, Davies-

Quarrell V, Williams S. Introducing the bio-psycho-social-physical model

of dementia through a collective case study design. J Clin Nurs. 2012 Sep

24. doi: 10.1111

Koch T, Iliffe S, Manthorpe J, Stephens B, Fox C, Robinson L, Livingston

G, Coulton S, Knapp M, Chew-Graham C, Katona C; CARE-DEM. The

potential of case management for people with dementia: a commentary.

Int J Geriatr Psychiatry. 2012 Dec;27(12):1305-14.

Macneil Vroomen J, Van Mierlo LD, van de Ven PM, Bosmans JE, van

den Dungen P, Meiland FJ, Dröes RM, Moll van Charante EP, van der

Horst HE, de Rooij SE, van Hout HP. Comparing Dutch Case

management care models for people with dementia and their caregivers:

DEMENTIA TOPICS

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The design of the COMPAS study. BMC Health Serv Res. 2012 May

28;12(1):132

Mets T, De Deyn PP, Pals P, De Lepeleire J, Vandewoude M, Ventura M,

Ivanoiu A, Albert A, Seghers AK; on behalf of the COGNOS group.

COGNOS: Care for People With Cognitive Dysfunction: A National

Observational Study. Alzheimer Dis Assoc Disord. 2012 Apr 2

Muntinga MM, Hoogendijk EO, van Leeuwen KM, van Hout HP, Twisk JW,

van der Horst HE, Nijpels GN, Jansen AP. Implementing the chronic care

model for frail older adults in the Netherlands: study protocol of ACT (frail

older Adults: Care in Transition). BMC Geriatr. 2012 Apr 30;12(1):19

Robben S, van Kempen J, Heinen M, Zuidema S, Olde Rikkert M, Schers

H, Melis R. Preferences for receiving information among frail older adults

and their informal caregivers: a qualitative study. Fam Pract. 2012 Apr 24

Samsi K, Manthorpe J, Nagendran T, Heath H. Challenges and

expectations of the Mental Capacity Act 2005: an interview-based study of

community-based specialist nurses working in dementia care. J Clin Nurs.

2012 Jun;21(11-12):1697-705.

Spector A, Orrell M, Schepers A, Shanahan N. A systematic review of

‘knowledge of dementia’ outcome measures. Ageing Res Rev. 2012

Jan;11(1):67-77.

Vasse E, Moniz-Cook E, Rikkert MO, Cantegreil I, Charras K, Dorenlot P,

Fumero G, Franco M, Woods B, Vernooij-Dassen M. The development of

quality indicators to improve psychosocial care in dementia. Int

Psychogeriatr. 2012 Jun;24(6):921-923

Verbeek H, Meyer G, Leino-Kilpi H, Zabalegui A, Hallberg IR, Saks K,

Soto ME, Challis D, Sauerland D, Hamers JP; RightTimePlaceCare

Consortium. A European study investigating patterns of transition from

home care towards institutional dementia care: the protocol of a

RightTimePlaceCare study. BMC Public Health. 2012 Jan 23;12:68.

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Yamada Y, Siersma V, Avlund K, Vasse M. Formal help services and

institutionalization. Arch Gerontol Geriatr 2012 Mar-Apr; 54(2).

DEMENTIA TOPICS

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2011

Goodman C, Baron NL, Machen I, Stevenson E, Evans C, Davies SL, et

al. Culture, consent, costs and care homes: enabling older people with

dementia to participate in research. Aging Ment Health 2011

May;15(4):475-81.

Iliffe S, McGrath T, Mitchell D. The impact of patient and public

involvement in the work of the Dementias & Neurodegenerative Diseases

Research Network (DeNDRoN): case studies. Health Expect 2011 Sep 8.

Iliffe S, Curry L, Kharicha K, Rait G, Wilcock J, Lowery D, et al.

Developing a Dementia Research Registry: a descriptive case study from

North Thames DeNDRoN and the EVIDEM programme. BMC Med Res

Methodol 2011;11(1):9.

Innes A, Kelly F, Dincarslan O. Care home design for people with

dementia: what do people with dementia and their family carers value?

Aging Ment Health 2011 Jul 1;15(5):548-56.

Keady J, Swarbrick C. Guest editorial: Time for a change. Int J Older

People Nurs 2011 Jun;6(2):81-2.

Lowery DP, Warner J, Cerga-Pashoja A, Thune-Boyle I, Iliffe S. Clinicians

as recruiters to dementia trials: lessons from the EVIDEM-E project. Int J

Geriatr Psychiatry 2011 Jul;26(7):767-9.

Ramakers IH, Verhey FR. Development of memory clinics in the

Netherlands: 1998 to 2009. Aging Ment Health 2011 Jan;15(1):34-9.

van den BH, Wiese B, Koller D, Eisele M, Kaduszkiewicz H, Maier W, et

al. Specialist involvement and referral patterns in ambulatory medical care

for patients with dementia in Germany: results of a claims data based

case-control study. BMC Health Serv Res 2011;11:148.

Verhey FR, Orrell M, Zarit S. Memory services and memory clinics. Aging

Ment Health 2011 Jan;15(1):2-4.

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Wimo A, Jonsson L, Gustavsson A, McDaid D, Ersek K, Georges J, et al.

The economic impact of dementia in Europe in 2008-cost estimates from

the Eurocode project. Int J Geriatr Psychiatry 2011 Aug;26(8):825-32.

Wolfs CA, Dirksen CD, Severens JL, Kessels A, Verkaaik M, Verhey FR.

[The costs and benefits of an integrated approach to dementia]. Tijdschr

Psychiatr 2011;53(9):657-65.

van den Dungen P, Moll van Charante EP, van Marwijk HW, van der Horst

HE, van de Ven PM, van Hout HP. Case-finding of dementia in general

practice and effects of subsequent collaborative care; design of a cluster

RCT. BMC Public Health. 2012 Aug 4;12:609.

DEMENTIA TOPICS

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PREVIOUS YEARS

Bartholomeyczik S, Holle B, Riesner C, Halek M, Vollmar HC. [Promoting

patient-oriented dementia research – current issues in the German Centre

for Neurodegenerative Diseases at the Witten/Herdecke University]. Z

Evid Fortbild Qual Gesundhwes 2010;104(10):744-53.

Bullock R, Iliffe S, Passmore P. Can we afford not to have integrated

dementia services? Age Ageing 2007 Jul;36(4):357-8.

Burns A, Iliffe S. Dementia. BMJ 2009;338:b75.

Cahill S. Developing a national dementia strategy for Ireland. Int J Geriatr

Psychiatry 2010 Sep;25(9):912-6.

Draskovic I, Vernooij-Dassen M, Verhey F, Scheltens P, Rikkert MO.

Development of quality indicators for memory clinics. Int J Geriatr

Psychiatry 2008 Feb;23(2):119-28.

Finnema, E., Dröes, R.M., Ribbe, M., Tilburg, W. van A review of

psychosocial models in psychogeriatrics; implications for care and

research. Alzheimer Disease and Associated Disorders, 2000,14(2): 68-

80.

Fox C, Boustani M, Moniz-Cook E. Treatment of dementia: where is it

going? Br J Hosp Med (Lond) 2009 Aug;70(8):450-5.

Goodman C, Evans C, Wilcock J, Froggatt K, Drennan V, Sampson E, et

al. End of life care for community dwelling older people with dementia: an

integrated review. Int J Geriatr Psychiatry 2010 Apr;25(4):329-37.

Gove D, Sparr S, Dos Santos Bernardo AM, Cosgrave MP, Jansen S,

Martensson B, et al. Recommendations on end-of-life care for people with

dementia. J Nutr Health Aging 2010 Feb;14(2):136-9.

Paratonia: a Delphi procedure for consensus definition

Hertogh CM. [Palliative care in dementia and the dismantling of the

treatment function of nursing homes]. Tijdschr Gerontol Geriatr 2007

Mar;38(1):2-5.

DEMENTIA TOPICS

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Hertogh CM. [Towards a new system of costs reimbursement in Dutch

long-term care facilities: a confidence-building development?]. Tijdschr

Gerontol Geriatr 2007 Aug;38(4):162-4.

Hobbelen JS, Koopmans RT, Verhey FR, Van Peppen RP, de Bie RA.

Paratonia: a Delphi procedure for consensus definition. J Geriatr Phys

Ther 2006;29(2):50-6.

Iliffe S. Thriving on challenge: NICE’s dementia guidelines. Expert Rev

Pharmacoecon Outcomes Res 2007 Dec;7(6):535-8.

Iliffe S. The National Institute for Health and Clinical Excellence (NICE)

and drug treatment for Alzheimer’s disease. CNS Drugs 2007;21(3):177-

84.

Iliffe S, Manthorpe J. Evaluating memory clinics. J R Soc Med 2010

Mar;103(3):81.

Iliffe S. National Dementia Strategy. Br J Gen Pract 2010

May;60(574):372.

Jolley D, Moniz-Cook E. Memory clinics are all about stigma, not

screening. BMJ 2009;338:b860.

Jolley D, Moniz-Cook E. Memory clinics in context. Indian J Psychiatry

2009 Jan;51 Suppl 1:S70-S76.

Lamura G, Mnich E, Wojszel B, Nolan M, Krevers B, Mestheneos L, et al.

[The experience of family carers of older people in the use of support

services in Europe: selected findings from the EUROFAMCARE project]. Z

Gerontol Geriatr 2006 Dec;39(6):429-42.

Lamura G, Mnich E, Nolan M, Wojszel B, Krevers B, Mestheneos L, et al.

Family carers’ experiences using support services in Europe: empirical

evidence from the EUROFAMCARE study. Gerontologist 2008

Dec;48(6):752-71.

Lyons C, Brotherton A, Stanley N, Carrahar M, Manthorpe J. The Mental

Capacity Act 2005: implications for dietetic practice. J Hum Nutr Diet 2007

Aug;20(4):302-10.

DEMENTIA TOPICS

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Manthorpe J, Clough R, Cornes M, Bright L, Moriarty J, Iliffe S. Four years

on: the impact of the National Service Framework for Older People on the

experiences, expectations and views of older people. Age Ageing 2007

Sep;36(5):501-7.

Manthorpe J, Iliffe S. A step in the right direction? Nurs Older People 2007

Jan;18(12):20-1.

Manthorpe J, Iliffe S. Timely recognition of dementia: community nurses’

crucial roles. Br J Community Nurs 2007 Feb;12(2):74-6.

Manthorpe J, Iliffe S. Seventeen steps: the dementia strategy. Ment

Health Today 2009 Apr;24-9.

Manthorpe J, Iliffe S. Viewpoint. Alzheimer’s drugs debate. Ment Health

Today 2010 Dec 20;31.

Manthorpe J. Commentary on Aselage MB & Amella EJ (2010) An

evolutionary analysis of mealtime difficulties in older adults with dementia

Journal of Clinical Nursing 19, 33-41. J Clin Nurs 2010 May;19(9-

10):1477-8.

Manthorpe J. National Dementia Strategy. Br J Gen Pract 2010

May;60(574):373.

Manthorpe J, Samsi K, Rapaport J. More of a leg to stand on’: views and

usage of the Mental Capacity Act 2005 among staff of local Alzheimer’s

Society and carer organisations. Aging Ment Health. 2012;16(1):102-9.

Meiland, F.J.M, Dröes, R.M., Lange , J. de, Vernooij-Dassen, M.

Development of a theoretical model for tracing facilitators and barriers in

adaptive implementation of innovative practices in dementia care.

Archives of Geriatrics and Gerontology, 2004, suppl. 9: 279-290.

Meiland, F.J.M., Dröes, R.M., Lange, J. de, Vernooij-Dassen, M.J.F.J.

Facilitators and barriers in the implementation of the meeting centres

model for people with dementia and their carers. Health Policy, 2005,

71(2): 243-53.

DEMENTIA TOPICS

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Mets T, De Deyn PP, Pals P, De Lepeleire J, Vandewoude M, Ventura M,

Ivanoiu A, Albert A, Seghers AK; on behalf of the COGNOS group.

COGNOS: Care for People With Cognitive Dysfunction: A National

Observational Study. Aging Ment Health 2006 Jan;10(1):55-62.

Quinn C, Clare L, Pearce A, van DM. The experience of providing care in

the early stages of dementia: an interpretative phenomenological analysis.

Aging Ment Health 2008 Nov;12(6):769-78.

Raivio M, Eloniemi-Sulkava U, Laakkonen ML, Saarenheimo M, Pietila M,

Tilvis R, et al. How do officially organized services meet the needs of

elderly caregivers and their spouses with Alzheimer’s disease? Am J

Alzheimers Dis Other Demen 2007 Oct;22(5):360-8.

Robinson L, Vellas B, Knox S, Lins K. Clinical practice patterns of

generalists and specialists in Alzheimer’s disease: what are the

differences, and what difference do they make? J Nutr Health Aging 2010

Aug;14(7):545-52.

Robinson L, Bamford C, Beyer F, Clark A, Dickinson C, Emmet C, et al.

Patient preferences for future care–how can Advance Care Planning

become embedded into dementia care: a study protocol. BMC Geriatr

2010;10:2.

Sloane PD, Brooker D, Cohen L, Douglass C, Edelman P, Fulton BR, et

al. Dementia care mapping as a research tool. Int J Geriatr Psychiatry

2007 Jun;22(6):580-9.

Sorg C, Riedl V, Muhlau M, Calhoun VD, Eichele T, Laer L, et al.

Selective changes of resting-state networks in individuals at risk for

Alzheimer’s disease. Proc Natl Acad Sci U S A 2007 Nov

20;104(47):18760-5.

Szychowski JM, Roth DL, Clay OJ, Mittelman MS. Patient death as a

censoring event or competing risk event in models of nursing home

placement. Stat Med 2010 Feb 10;29(3):371-81.

DEMENTIA TOPICS

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Testad I, Auer S, Mittelman M, Ballard C, Fossey J, Donabauer Y, et al.

Nursing home structure and association with agitation and use of

psychotropic drugs in nursing home residents in three countries: Norway,

Austria and England. Int J Geriatr Psychiatry 2010 Jul;25(7):725-31.

Van den BL, Van C, V, Deschepper R, Bossuyt N, Drieskens K, Bauwens

S, et al. Nationwide monitoring of end-of-life care via the Sentinel Network

of General Practitioners in Belgium: the research protocol of the SENTI-

MELC study. BMC Palliat Care 2007;6:6.

Van HS, De LJ. Does the use of care plans improve the quality of home

care? Qual Prim Care 2010;18(3):161-72.

Vernooij-Dassen M, Huygen F, Felling A, Persoon J. Home care for

dementia patients. J Am Geriatr Soc. 1995 Apr;43(4):456-7.

Vernooij-Dassen M, Wester F, Auf den Kamp M, Huygen F. The

development of a dementia process within the family context: the case of

Alice. Soc Sci Med. 1998 Dec;47(12):1973-80.

Vernooij-Dassen MJ, Van Hout HP, Hund KL, Hoefnagels WH, Grol

RP.Information for dementia patients and their caregivers: what

information does a memory clinic pass on, and to whom?Aging Ment

Health. 2003 Jan;7(1):34-8.

Waldemar G, Phung KT, Burns A, Georges J, Hansen FR, Iliffe S, et al.

Access to diagnostic evaluation and treatment for dementia in Europe. Int

J Geriatr Psychiatry 2007 Jan;22(1):47-54.

Wimo A, Jonsson L, Gustavsson A, McDaid D, Ersek K, Georges J, et al.

The economic impact of dementia in Europe in 2008-cost estimates from

the Eurocode project. Int J Geriatr Psychiatry 2010 Oct 28.